Epilepsy For support and discussion about Epilepsy and Seizure Disorders.


advertisement
Reply
 
Thread Tools Display Modes
Old 02-05-2020, 10:47 AM #1
Fbutterw Fbutterw is offline
New Member
 
Join Date: Feb 2020
Posts: 4
3 yr Member
Fbutterw Fbutterw is offline
New Member
 
Join Date: Feb 2020
Posts: 4
3 yr Member
Default Anyone hear of or experienced this?

Our 37 year old son suffered a brain hemorrhage as a result of a depth electrodes study that was done to access the viability of surgery for seizure control.
Following this hemorrhage he has suffered almost daily staring spells that last anywhere from 2 hours to 8 or more hours.
His neurologist and neurosurgeon have not been able to identify a cause or a cure.
Has anyone else had any experience with this?
Once in a stare his day is lost until he falls asleep and comes out of it.

Would be interested to hear from anyone about your experiences you may have had.
Fbutterw is offline   Reply With QuoteReply With Quote

advertisement
Old 02-05-2020, 03:55 PM #2
suzanne.elizabeth suzanne.elizabeth is offline
New Member
 
Join Date: Feb 2020
Posts: 3
3 yr Member
suzanne.elizabeth suzanne.elizabeth is offline
New Member
 
Join Date: Feb 2020
Posts: 3
3 yr Member
Default

My son has a brain tumour and he use to do odd things as well. What part of his brain was effected when he hemorrhaged


Sent from my iPhone using Tapatalk
suzanne.elizabeth is offline   Reply With QuoteReply With Quote
Old 02-05-2020, 04:17 PM #3
Fbutterw Fbutterw is offline
New Member
 
Join Date: Feb 2020
Posts: 4
3 yr Member
Fbutterw Fbutterw is offline
New Member
 
Join Date: Feb 2020
Posts: 4
3 yr Member
Default

Hard to say. It was the left side.
He also has had 2 shunts put in to keep hydrocephalus pressure down
Fbutterw is offline   Reply With QuoteReply With Quote
Old 02-05-2020, 04:27 PM #4
kiwi33's Avatar
kiwi33 kiwi33 is offline
Grand Magnate
 
Join Date: Jan 2015
Location: Sydney, Australia.
Posts: 3,093
8 yr Member
kiwi33 kiwi33 is offline
Grand Magnate
kiwi33's Avatar
 
Join Date: Jan 2015
Location: Sydney, Australia.
Posts: 3,093
8 yr Member
Default

Hi Suzanne

Welcome to NeuroTalk .

I am sorry to read about your son.

Have the health professionals he has seen made any helpful suggestions?

With care.
__________________
Knowledge is power.
kiwi33 is offline   Reply With QuoteReply With Quote
Old 02-05-2020, 04:54 PM #5
suzanne.elizabeth suzanne.elizabeth is offline
New Member
 
Join Date: Feb 2020
Posts: 3
3 yr Member
suzanne.elizabeth suzanne.elizabeth is offline
New Member
 
Join Date: Feb 2020
Posts: 3
3 yr Member
Default

He has had his brain tumour since 10 and he is now going to be 21

With him things just worked themselves out to be honest very scary at the moment. He wouldn’t do staring however my son has had really weird things go on that has directly effected his lifestyle.




Sent from my iPhone using Tapatalk
suzanne.elizabeth is offline   Reply With QuoteReply With Quote
Old 02-05-2020, 04:57 PM #6
suzanne.elizabeth suzanne.elizabeth is offline
New Member
 
Join Date: Feb 2020
Posts: 3
3 yr Member
suzanne.elizabeth suzanne.elizabeth is offline
New Member
 
Join Date: Feb 2020
Posts: 3
3 yr Member
Default

Hi Kiwi

When his Timor gets to a certain size or it impedes him they go in and resection as much as they can without leaving him disabled from the neck down. He has done 70 rounds of chemo in the past and it grew the tumor. So he no longer will be ever to receive chemo again.


Sent from my iPhone using Tapatalk
suzanne.elizabeth is offline   Reply With QuoteReply With Quote
Reply

Tags
fbutterw, hear, hemorrhage, hours, suffered


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Has anyone experienced this? RAllen82 Traumatic Brain Injury and Post Concussion Syndrome 13 09-15-2014 09:44 AM
Has anyone experienced this??? EE03 Fibromyalgia and Chronic Fatigue 7 04-25-2008 03:26 AM
Have you ever experienced... michael7733 Parkinson's Disease 22 02-05-2007 04:34 PM
Has anyone experienced this? Denise G Reflex Sympathetic Dystrophy (RSD and CRPS) 24 01-09-2007 02:01 PM
has anyone experienced this or just me? ianj Hydrocephalus 0 10-30-2006 01:03 AM


All times are GMT -5. The time now is 06:36 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.