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Epilepsy For support and discussion about Epilepsy and Seizure Disorders. |
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10-04-2006, 04:04 PM | #1 | ||
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Zoe has been doing this for the past 30 minutes. I just took some footage of it. We have a call into the Neuro. She is breathing well but hard to arrise.
http://fluffypenguin.com/Videos/zoescary.MPG Does this look suspicious to you? Be honest with me. Either way. I want to hear I am being over worried. But tell me your gut feeling. |
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10-04-2006, 04:50 PM | #2 | |||
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Senior Member
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30 minutes?
I don't think there is such thing as being 'too worried' when it comes to your children. I (personally) would take her to get checked. It could be nothing, but it's always best to be safe. As a side note, she is just as cute as a button! Pinch those cheeks for me! Best of luck to you, and please update this. -Ellie |
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10-04-2006, 04:58 PM | #3 | ||
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I called the neuro before even filming it.
I administered diastat after shooting the footage. I could not arouse her. I could not stop the movement. I could not distract her. Within 15 minutes of the diastat, she is responding. We just spent 5 minutes saying "hi" to each other back and forth. As a clarifcation, in the video she was pre diastat. As soon as I stopped filming, I gave the diastat. She is sick too with pneumonia (why they are not hospitalized, i do not know). I know her seizure threshold is low because she is ill. It took her 15 minutes after giving her the diastat before she started responding to me. I did hear back from the Neuro. He gave me the office email address for his assistant and I am to send him the footage. He will get back to us tommorow. I smell a hospital visit tonight perhaps. |
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10-05-2006, 08:24 PM | #4 | |||
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Kamie,
Update me when you can! I'm worried still. *Hugs* |
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10-05-2006, 10:10 PM | #5 | |||
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Kamie where are you???
__________________
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10-05-2006, 10:24 PM | #6 | ||
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Sorry for my delay!
Zoe, Natie, and now my husband are all sick. I am sick too but you know how it is being a mom. We never get sick days. Neuro called. He said it does look like seizure activity but could be related to her fever. If she does it again and is unresponsive to diastat, we are to call 911. He said the EEG on the 19th should be very revealing. He said he thinks it is unlikely her EEG will be normal. That depresses me. |
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10-05-2006, 10:29 PM | #7 | |||
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Thanks soooo much for the update! I hope the family and you are all feeling well soon.
For what it is worth, I have never had a 'normal' EEG and I'm pretty much OK (cept I'm known to be a goof at times!). I'm sure things will work out for all of you, you certainly deserve good things! |
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10-05-2006, 10:47 PM | #8 | ||
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We have a ton of good things. I honestly feel like we were given the situation we have because we can deal with this and that we have the support available to make sure that Zoe will thrive. It honestly could be a lot worse. Zoe is here. She is alive. She is realtively healthy. Her prognosis is a lot better than it was originally. I am very happy about that.
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