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Old 01-04-2008, 05:12 AM #11
Roy Browning Roy Browning is offline
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Join Date: Nov 2007
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Roy Browning Roy Browning is offline
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Question Followup

Apparently, Neurontin was the cause of my 2 seizures.

3 CT-scans, negative.
2 MRIs, negative (with and without contrast) Ganglion totally normal.

I don't have Epilepsy. I appear to have *nocturnal trigeminal neuralgia*
affecting the secondary trigeminal branch where an incompetent ENT burned
me with a defective CO2 laser.

Two months without Neurontin -- no seizures.

Very strange though ... *nocturnal* TN. What the hell is that??

But who knows? ... sinus/brain/dental surgery can cause anything.

Current meds I'm trying for sleep and pain relief are:

Keppra 500 mg.
Valium 20 mg.
Soma 700 mg.
Klonopin 4 mg.
Some Red Wine.
Clonidine .4 mg.

NO SLEEP MEDICATIONS!!! (ie Ambien, Lunesta)

I'm trying to get sleepy with the Keppra, but its a little weak.
However, it has killed the nerve pain.

I'll try to titrate down. (anything but Neurontin and sleeping pills!)

Thanks.

-Roy
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Old 01-04-2008, 12:49 PM #12
Roy Browning Roy Browning is offline
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Join Date: Nov 2007
Posts: 15
15 yr Member
Roy Browning Roy Browning is offline
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Join Date: Nov 2007
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15 yr Member
Default Update

NO EFFECT FROM 1000 mg. of Keppra and Valium and Soma and Wine.

It killed the pain, but NOT the sudden nocturnal electric shocks.

Had to go back to Neurontin and Lyrica and Vodka.

I'm calling my Neuro today and I'm going to try Tegretol.

I know it's a VERY dangerous med, but I don't like the
cocktail that I have to take to sleep.

I'm moving my post over to the TGN forum because I don't
have epilepsy.

Thanks, and may God Bless you all.

-Roy
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Old 01-04-2008, 03:37 PM #13
LIZARD LIZARD is offline
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Join Date: Aug 2006
Location: RI
Posts: 595
15 yr Member
LIZARD LIZARD is offline
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Join Date: Aug 2006
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Posts: 595
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Exclamation

Quote:
Originally Posted by Roy Browning View Post
NO EFFECT FROM 1000 mg. of Keppra and Valium and Soma and Wine.

It killed the pain, but NOT the sudden nocturnal electric shocks.

Had to go back to Neurontin and Lyrica and Vodka.

I'm calling my Neuro today and I'm going to try Tegretol.

I know it's a VERY dangerous med, but I don't like the
cocktail that I have to take to sleep.

I'm moving my post over to the TGN forum because I don't
have epilepsy.

Thanks, and may God Bless you all.

-Roy
Roy,

Whether you have epi or not, you must understand that mixing alcohol with AEDs is extremely dangerous. It can provoke seizures...and even worse. Please stop drinking. You could kill yourself.


LIZARD, worried for you!
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Old 01-13-2008, 12:15 PM #14
cazzie cazzie is offline
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Join Date: Jan 2008
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cazzie cazzie is offline
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Smirk

hi ray
Do not drive please
please get some help soon welcome to the fourm

cazzie
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