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Old 12-05-2007, 08:17 PM #11
2oxbowgirl 2oxbowgirl is offline
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I went through the same thing. It was called mental illness or that I was crazy. My friends did not want to be around me because they were afraid I would have a seizure when I was with them. Even though I explained about my type of seizure they avoided me.
I was so sad and depressed by it, but finally moved away, got started in my own business and made new friends. Now that I am disabled and unable to work, I am all alone again, but have been going to church where the few friends I have left go, and as a result I have made new friends.
My heart goes out to you and I will keep you in my prayers. Also count me as a new on-line friend.
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Old 12-16-2007, 01:02 PM #12
Tiger_lilly07 Tiger_lilly07 is offline
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Hi Cedar, I know exactly what you mean. For me it's not just dealing with people who say they are your friends then refuse to try and understand Epi. I have a very limited amount of "true" friends and I cherish each and every one of them. On the other hand, I can't seem to find a guy who will like me and my medical issues. Every boyfriend I've had got scared and didn't want to talk to me about it, so they just left me or cheated on me. I'm very lonely and I sometimes wonder if I'll ever find my "true love" so to speak. It gets frustrating and depressing but I just take my life one day at a time and hope for the best.
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Old 12-19-2007, 10:25 PM #13
MbGuy MbGuy is offline
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I hear what your going through. I've had epilepsy since I was 1 and everything was going good till I had 2 seizures when I was in high school then I started seeing people fade out of my friendship with no reason. Then I was diagnosed with a neuromuscular disease a few years ago and almost everyone dropped out of site. They seem to get scared because they don't know what to do if anything happens (I think anyways) but if a person tries to tell them about it and what to do, they have selective hearing. The few true friends I have they always ask me how my day is going or how I'm doing, they don't ask me about my health ( don't like getting asked about my health because thats all people will talk about). The new friends I make, I tell them up front about everything, if they can't cope with it best of luck to them. I'd rather have the few true friends rather than have lots of friends acting to be my friend.

Friendship is reaching for a hand there by touching a heart
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Old 12-20-2007, 08:09 PM #14
Cedar Cedar is offline
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Well thanks everyone for your understanding and compassion. I think with the holidays it is even more difficult, yet I am trying to just realize how lucky I ma to have a partner who truly appreciates me for woh I am not what I have for a health issue.
It would be nice to have friends who can truly value friendship with their hearts not base it on fear and ones health challenges are. For some of us do amazingly well with epilepsy as it gives us an inner strength and compassion to give and care for others no matter what. So for that I am grateful!

For those who are feeling lonely and can not find a person to share their life with. I am thinking of you and truly sorry you are not able to find that loving and caring person. As we all deserve that no matter what!!

I do hope all of you can have a peaceful and Happy holiday. As well as a Healthy new year will all your dreams coming true. Think of each of you !
Blessings of Peace, Cedar
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