So I went to the nuero surgeon yesterday...the one that orginally found my avm...He went over my MRI results with me, and very clearly explained, that some people have seizures due to epilepsy, and there is no lesion on the brain, I said, you mean idopathic epilepsy...he said exactly....He went on to tell me, that not only do I have one lesion on my brain but I have three lesions that are Known to cause epileptic seizures...

We went on to discuss alot of the details..but it comes down to this simply..im going to be on medications for the rest of my life...period, even if I have long periods of being seizure free, and that because of the avm resection, the meningioma and the MTS, I will be at risk for break through seizures at anytime...which translates to...probably being unable to drive ever again, memory problems that will just progressively get worse...etc.

He is going to get me in to see this nuero in a clinic, and I am going to start being treated by a team of doctors there...that is a major relief considering my insurance issue. He was good...great bedside manner and answered all my questions. Tremendous improvement from the surgeon that actually did the avm surgery...who forgot to tell me about the presence of the meningioma.

So things are looking up a little bit after seeing him yesterday. Although I have alot to face medically...I now have a doctor on my side who wants to help me get through all this as easily as I can.


Peace and love everyone!!

Amanda