finding the good old stuff

annie · 08-25-2006, 02:29 PM

does anyone have a copy of Rabbit's hints for new posters? don't know how long we are going to be here but that should definitely be posted.

does anyone have an e mail for anyone? this is very frustrating.

think up all the stuff we need to put back up here and let's see who has it saved.

Toad · 08-26-2006, 08:18 PM

i just fired off a dozen or more emails, we shall see how many addies are correct still. rabbit was one.

working on back files, think i have them save but they may be too deep

toad

Rabbit · 08-27-2006, 02:06 PM

Annie,
I think it is still in my computer and I will post it when I find it.

It is so good to 'see' you all and get back to helping people.

Rabbit

annie · 08-28-2006, 12:52 AM

yea rabbit!

glad toad found you.

that information was excellent and i think definitely needs to be posted as soon as possible. we are going to be having lots of people who don't know all the shortcuts we use, and we need your post.

as old timers come in they will be picking up where we left off. must be like coming into the middle of a movie for new posters. the least we can do is give them a cheat sheet.

how is your husband? how are you?

happycat · 08-30-2006, 02:14 AM

We need a thread with good links in really get things going Annie. The old thread was a great useful thread with some good stuff posted in there. We are going to be having lots of people who don't know all the shortcuts, and who are looking for help- so we need a good links thread going.

Cat.

Rocking4Epilepsy · 09-02-2006, 12:32 PM

I have just started a thread for useful links.
please add any if I missed them,
I will be adding more soon

betty-anne · 09-02-2006, 12:32 PM

Quote:

Originally Posted by Rabbit

Annie,
I think it is still in my computer and I will post it when I find it.

It is so good to 'see' you all and get back to helping people.

Rabbit

Rabbit,

It's in my computer, too.

Here it is:

Brazenly stolen from "Rabbit" of "Braintalk"

Recently revised! Long but worth reading!

This message was compiled from the suggestions of a whole bunch of posters [on Braintalk]. It can be helpful in understanding the information specific to this site.
Here are some abbreviations and terms we tend to use, in no particular order.

AED - Anti Epileptic Drug

Neuro - neurologist

E - Epilepsy

TLE - Temporal Lobe Epilepsy

RTL - Right Temporal Lobe

sz - seizure

CP or CPS - Complex Partial Seizure

SP - Simple Partial Seizure

GM - Grand Mal seizure (now called a tonic-clonic seizure)

TC - Tonic-clonic seizure (formerly called grand mal)

A - Absence seizure

EPI - Epileptologist

dx - diagnosis

JME- Juvenile-onset Myoclonic Epilepsy

Catamenial epilepsy - seizures somehow connected with/related to hormones and the female cycle

VNS - Vagus Nerve Stimulator, an implanted device that can help control/stop seizures

DBS - Deep Brain Stimulation, a form of surgery where a stimulator is put in the upper chest with wires & electrodes attached to the brain, stopping or cutting back on the amount of seizures.

Deja vu - (deja vu = French: already seen) - a sense of having felt/experienced/done something already.

Jamais vu - sort of the opposite of the above: the sense of the "familar being unfamiliar." (even though it really should be).

VEEG - Video EEG - this is where they put you in the hospital for several days (or more) hooked up and watched on camera at all times. Helps in identifying the seizure focus, or in finding seizures a regular EEG did not pick up.
Getting the glue out of your hair has been the topic of many discussions here!

AEEG - ambulatory EEG - this is where you are hooked up to an EEG machine that you 'wear', then you go home with it. Usually 24-48 hours.

Neuropsych - Neuropsychological testing - a series of tests (written, oral, manipulation, etc.) which are designed to help understand where in the brain you are processing information. This abbreviation may also mean Neuropsychologist: a doctor specialising in this field.

Kindling - this is a theory that not all neurologists agree on. It says that the brain "learns" to seize, by seizing. You create neural pathways (get better at doing something) by doing something repeatedly, so theoretically the brain gets better at seizing. Under this theory, it is important to stop ALL seizures, not just most.

Auras - the distortions of perception - simple partial seizures that come before a complex partial or grand mal seizure

Ictal - the period of time that is the seizure.

Post Ictal or "P-I" - the period of time after a seizure (often includes confusion, sleepiness, exhaustion)

Status (or status epilepticus) - a condition of continual seizures (of any kind) that can be life-threatening and requires emergency attention.

For women mainly: Many of the anti epileptic drugs cancel out the birth control pill. Check with your doctors to make sure that you are not going to have any surprises.

In reference to med dosage:

bid - twice daily

tid - three times daily

qid - four times daily

po - orally, by mouth

And "bump" is when someone thinks the topic is important enough to go up on the list so that everyone else has the chance to comment on the topic (when you reply to a topic, that moves it to the top of the list).

LOL............... laughing-out-loud!
IMHO............ in my humble opinion
BTW............. by the way
ROTFLMAO.... rolling on the floor laughing my _ _ _ -off
DH.............. Dear Husband (likewise, DD for Dear Daughter, you get the idea)

Remember that this is a bulletin board, not a chat room. You may not get an immediate response to your question, because members are 'on' at different times of the day (and different time zones!). Allow your question several days, hopefully including a weekend, before you conclude you've gotten all the answers you will get.

Some helpful tips: please try not to write in all capitals, as this is considered "yelling" in the electronic communication world. ALSO it helps readability if you break your post into paragraphs or sections, rather than confronting the reader with a 'wall' of text.

Searching past posts - people new to the forum usually need to know that they can find a lot of information about a question in past posts, if no one's around to answer right away. You can search for either a subject - ie Tegretol, complex partial seizure, status, etc., or for past posts by a specific member, by nickname. Do this by going to the top of this page, type a word next to the blank to the "Search" bar, then press "Search."

Graphics - some of the posters and readers here have trouble with moving graphics. Please do not upload "Moving Icons."
______________

With many thanks to Rabbit and the other members of of Braintalk.

Betty Anne

I didn't even see that Rabbit had started the thread already!!