Karen,
Sorry again, I have not responded for awhile, I am not always on my computer. I'm glad the Keppra is working for your husband. My husband is on Topamax and Lamictal, but I think he needs some changes. One of them is also used for headaches, but he still gets severe headaches almost everyday. My husband has tried all of the prescription medications for his headaches, (imitrex, zomig, maxalt), but they none work for him. My husband has been on disability since 2001. Along with the seizures he also has sleep apnea, glaucoma, diabetes, delayed gastric emptying, copd, headaches, hypothyroidism and probably something I'm forgetting. The amazing thing is he never complains, he doesn't like to worry me. It is really nice to have someone to talk to, and I am glad you replied to the posting I left awhile back ago. Take care and I hope your husband has a good day:)
Laura

Karen,
Hi! Just wanted to check and see how everything is going for you and your husband. I hope you are both doing well. I am home from work today, my husband had a bad seizure last night and his delayed gastric emptying is really bad also today. I just didn't want you to think I forgot about you. I emailed you before but I don't know if you got it, since I am not quite sure how to post replies on this site. Take care Laura

things are going well here. Somedays hubby has several seizures somedays and somedays he can go all day without having one. With Epilepsy you really do have to live one day at a time. Hope things are well with you.

Karen

Laura,
Sounds like your hubby has a lot
going on with his health. It's a lot to deal with and I
understand how hard it is just to make time to sit down at the computer for a few minutes. Hope things are going well...just remember we just have to take one day at a time

Karen

Ladies
 

Let me introduce myself. My name is Tyler and I am 27 years old. On Dec 30, my wife went into a grand Mall Seizure for the first time in her life. It was the scariest moment in my life. Since that time, she has had 2 other seizures both at night. The neurologists have been able find abnormal activity in her left side of the brain (Down toward the bottom of the brain). They put her on Kepra. She had reactions to the pill and they pulled her off of it. The reason why I am intrigued with your post is because she starting getting ringing in her left ear back in Aug of last year. We went to see a ENT and all he said was, "You have the ears of a 80 year old women (I know, a lot of help!). She has continued to have occasional ringing in her left ear which will make her right leg go numb. Just recently she has had the ringing in both ears making both of her legs to go out and making her pass out (or go into a minor seizure). I am looking to see if the doctors have been able to correlate your husbands seizures with his ringing in his ears?
I had a second opinion done on her ears and the new ENT has never heard of anyone having an issue as her case, but her hearing if normal except for high pitch frequency, wherein she has lost 40% hearing in that area. She is health as a horse before this all started and I am lost on where to turn to next.
I am trying to get her into a specialist at Barrows neurological institution in Phoenix but feel I am going to run into another dead end there. Can you share any enlightenment on your husbands ringing with me. I am trying to figure out if there is any correlation.

Thanks,
Tyler

Tyler,

I'm not one of the two ladies, but I also have ringing of the ear. Mine is due to brain surgery. I also had problems with sleep apnea which caused the ringing to get worse at the beginning. If your wife is having problems where her leg is now going numb, have her see a sleep specialist of the ENT won't do anything. The ringing isn't always caused by ear problems.

Becky

Thank you all for sharing your stories. I hope today finds you and your spouses seizure free and tranquil.

I too have seizures, mainly at night (grand mal). I've also had an odd type of sound in my ears, I believe since the seizures started. I hadn't really connected the noise with the seizures - until now. The sound isn't really "ringing;" I'd describe it more like a clicking or small snap, almost as though hearing turns off and on momentarily. In fact, it's more as though I'm feeling it rather than hearing it. I very much dislike the days when I have this sensation.

Thank you
 

Thank you for this post. Hope that your husband is doing better now. Please don't give up. Keppra is an anticonvulsant and an anti-migrainal drug. I take it with Topamax which is another of the same type. I have had migraines all my life and seizures for 2 years. Something my old neurolgist had me do was to keep a migraine journal, I have adapted that idea to keep track of the seizures too. Well my husband does most of that. When ever I see my neuro Dr I give him the latest version. This seems to help him understand what's happening to me even though I forget a lot of things due to the seizures. This might be useful for your husband as well, you document what you see on the outside, and he documents what he experiences.

Hi sorry to hear about everyones problems. I myself had a seizure about a month ago, i had severe brain damage when i was 7 i am now 31 it was a shock to have a seizure after such a long time. It was my first seizure and i haven't had one since, but reading this forum i've seen a few symptoms i'm having that i didn't know could be linked e.g. feeling tired, starring in one direction for a short amount of time, limbs going cold, shooting pains in various places. Today my ears started burning and they still are and they're really aching, has anyone esle had burning ears or maybe its not related to seizures. it's a bit of a worry when i feel like so will be nice to hear from other people. take care everyone

[QUOTE=KAREN1202;478483]Laura you described my husband to a T. Do you still check
posts? Would like to know how thingllp