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Epilepsy For support and discussion about Epilepsy and Seizure Disorders. |
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07-03-2012, 11:38 PM | #21 | ||
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New Member
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Hello,
I have been having problems for the last 4 months myself. For some reason (no one knows why) the right side of my body goes completely paralyzed. Starting with my finger tips to my legs to my toes. This takes about 45 seconds so usually have time to sit down some times I don't. My face sags a bit and my speach is slured. At first they thought they were TIA's but now the doctors believe they are seizures. This event will last about 10 mins then the feeling comes back and its like it never happened. This can happen 2 or 3 times a day. I hope they figure it out soon. Vinman |
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07-04-2012, 02:40 AM | #22 | |||
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Wisest Elder Ever
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Welcome to NeuroTalk:
Have your doctors tested you for homocysteine levels? If this is elevated in people, it irritates blood vessels and can cause serious blood flow problems. High homocysteine points to low B12, folate and B6 status. In about 10% of people B12 and folate cannot be activated in the body to work properly. This is genetic and can be tested for using a special DNA test. If you have this error, called MTHFR polymorphism, then you need to take special forms of B12 and folate. They are called methylcobalamin and methylfolate. The methylation aspect is what is not working. The 3 vitamins I listed are used to convert homocysteine to SAM in the body. SAM moves methyl groups all around, to take care of many biochemical reactions. When this system fails, homocysteine builds up and damages the linings of blood vessels, and reduces blood flow. So make sure this biochemical potential is tested for.
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08-07-2012, 01:31 PM | #23 | ||
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New Member
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I am a 31 yr old Female. I have just started having seizures and neurological migraines(the ones that mimic a stroke) about a 1.5 months ago. 2.5 months ago I had surgery to remove a stage 1 ovarian tumor. 1 month ago I had some cervical lymph nodes removed, now in the CT scans they found that my right jugular vein is bulging into my inner ear which is causing severe ringing in the ear and at times really odd migraines that sounds like a million chimes swooshing in my ears. The worst migraines are the ones that leave me completely paralyzed. I have notice the seizures mainly favor the left side but in have had a couple times where my whole body just froze up. The Neuro I went to had the balls to say I don't know and I think you are faking it even after the ER seen me have a few grand mal and I heard the doc at the ER call them Clonic Tonic. What the Hell. I am now waiting for my new appointment with my new Neuro and next month get to go to the University of Utah to the Epilepsy institute in hopes to find some answers. So frustrating and scary. I was so angry at the doc that said I should just go see a therapist! Are you kidding me! I did not just waist all my wedding money on ER visits to get attention
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08-08-2012, 02:26 AM | #24 | |||
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Legendary
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summerworkman81,
It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please let us know how we can help you out. You will find out we are supportive and relaxing place. There a great friends here. You should see an Epileptologist (Dr. specializing in epilepys) at an Epilepsy Center which are usually at University or big hospitals. Your need to cut out the carbs and starch foods because they will trigger seizures. Start keeping track of your seizures by writing them down on a calendar, by doing this the Dr. may see a pattern in your seizures. Get yourself on vitamin B12 500 mcg. once a day. Also avoid very bright light, like at a theater, the flashing can bring on a seizure. Just close you eyes and turn your head at that time. Please keep us up to date on her condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. Darlene
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08-08-2012, 03:41 PM | #25 | ||
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Senior Member
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Hi summerworkman81,
Welcome to the forum! Darlene gave you some excellent info. I've had epilepsy for 40 yrs. and before my sz. started I had wicked migraine headaches then after they started the sz. started up. It's up to you but I would turn the neuro you saw into the medical conduct board in your area. I've had to do that with a neuro I've seen in the past that messed me up really good giving me sz. med then refusing to do blood tests on me to find that I almost bleed to death from the med. Keep track of the weather sometimes a low pressure in the weather can cause sz. or migraine headaches even if the bad weather isnt' supposed to hit for a couple of days. I also found out that some people can be cell phone sensitive which means if you or others around you are using a cell phone it can trigger a sz. and that's because of the frequency the cell phone uses. I found out that it causes me to have sz. and when I go to the stores I have to be very careful that I'm not around people using their phone. Feel free to ask any questions any time. I will tell you hormones changing can trigger sz. for some people. I started cold water therapy and that has helped reduce my sz. a lot. If I feel a sz. coming on or a migraine headache I put a cold washcloth on my face and neck 3 times a day or more and this stops the sz. and headache because it's calming the neurons down in the brain. Wishing you only the best and May God Bless You! Sue |
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