Karen,
Sorry it took so long to get back to you. My husband was in the hospital for a few days--not related to seizures, things have been hectic.
I am sorry to say that nothing has really changed as far as his seizures, migraines, ringing in ears, etc. In fact, he had a seizure yesterday that left him temporarily paralyzed on the one side of his body while sleeping yesterday and then he had another this morning in his sleep. Lately he also jerks involunatarily while awake and asleep. I want him to go back to his neurologist, but he is pretty fed up with them.
How are things with your husband?

Laura

Laura,
My husband has been having seizures for30+years. He has only had a couple eposides where he would feel paralyzed on one side. The first time he was in a grocery store.He felt the seizure coming on and laid on the floor...but then couldnt' move his right side. 911 was called and he was takin to the hospital about 15-20 min's away...and by the time he got there he was feeling ok. They checked his heart and sent him home thinking it was
seizure related. A week later he had a heart attack and we
were back to the hospital. Now over a year later...a couple weeks ago he had a seizure that left him paralyzed for a few minutes.Makes me wonder if it's head or heart related? He complaines of headaches now and says he
hears a humming noise in his ears. Like your husband he doesn't call his docs unless he has to. He gets so frustrated with them. He was having the involunatary jerking and grand mal seizures when he was asleep. Doc's put him on Keppra with his Dialitan which took them away.Since the Keppra he hasn't had any grand Mals..but still has the ones where he falls and can't respond for about 40seconds.
Somedays he will have several a day..then will go days without having one. It is very frustrating for the spouses also worring about them and not being able to help. My husband sounds much like yours...when you have had this for so many years, they feel they know as much if not more than there docs. lol.

I can ramble on forever!

Karen

Karen,
Anytime you would like to talk I am here for you. My husband had a bad seizure yesterday while asleep and today while asleep-and become paralyzed on the right. (I took an FMLA day from work today--to stay home and keep an eye on him. I hate having to go to work when he is so sick. Lately he has nightmares that seem to bring on the seizures.
I don't know anything about Keppra--does it work strictly for seizures or does it help with migraines, etc.?
Please take care, maybe we can help each other by comparing notes or just having someone to talk to.

Laura

[QUOTE=aunt_laura;485556]Karen,
Anytime you would like to talk I am here for you. My husband had a bad seizure yesterday while asleep and today while asleep-and become paralyzed on the right. (I took an FMLA day from work today--to stay home and keep an eye on him. I hate having to go to work when he is so sick. Lately he has nightmares that seem to bring on the seizures.
I don't know anything about Keppra--does it work strictly for seizures or does it help with migraines, etc.?
Please take care, maybe we can help each other by comparing notes or just having someone to talk to.

Laura,
Hope hubby is feeling better today and you can enjoy your day off. I know what you mean about having to go
to work when they are having a rough day. But I have to work for the Insurance.
My husband had seizures while sleeping for years. He would have the grand mall seizures.I hated those sleeping seizures.We would dread seeing the night time come. Those were the darkest hours. Since starting on the Keppra with his Dialantin he doesn't have the grand malls at night.
He still has small ones when first going to sleep sometimes. Yes Keppra is an anti-seizure drug. Since starting the Keppra he isn't having the involuntary jerks he was having in his arms/hands either. He is also on Zannax ...which is an anxiety drug. He takes this at night
before going to bed. It calms him down and helps him rest
better. If he gets jittery durning the day and feels like he
might have a seizure he takes one also. My husband has not worked for alittle over a year now. I think the less stress they have in their lives helps alot. Does your husband still work?

As for the headaches..this is all new for us. The heaches have just started in the last month or so. His head hurts
on the very top of his head. He says feels like he has a cap on...a painful cap!. He has complained of a headache this morning with a bit of sick stomach. I'm crossing my fingers that this isn't a start of a bad day for him. He has
not told the doctors about the headaches..so is only taking
over-the -counter drugs for them.

Hope you have a good day!
It's nice having someone to talk with that you know understands. So glad I found this site.
Karen

Karen,
Sorry again, I have not responded for awhile, I am not always on my computer. I'm glad the Keppra is working for your husband. My husband is on Topamax and Lamictal, but I think he needs some changes. One of them is also used for headaches, but he still gets severe headaches almost everyday. My husband has tried all of the prescription medications for his headaches, (imitrex, zomig, maxalt), but they none work for him. My husband has been on disability since 2001. Along with the seizures he also has sleep apnea, glaucoma, diabetes, delayed gastric emptying, copd, headaches, hypothyroidism and probably something I'm forgetting. The amazing thing is he never complains, he doesn't like to worry me. It is really nice to have someone to talk to, and I am glad you replied to the posting I left awhile back ago. Take care and I hope your husband has a good day
Laura

Karen,
Hi! Just wanted to check and see how everything is going for you and your husband. I hope you are both doing well. I am home from work today, my husband had a bad seizure last night and his delayed gastric emptying is really bad also today. I just didn't want you to think I forgot about you. I emailed you before but I don't know if you got it, since I am not quite sure how to post replies on this site. Take care Laura

things are going well here. Somedays hubby has several seizures somedays and somedays he can go all day without having one. With Epilepsy you really do have to live one day at a time. Hope things are well with you.

Karen

Thank you for this post. Hope that your husband is doing better now. Please don't give up. Keppra is an anticonvulsant and an anti-migrainal drug. I take it with Topamax which is another of the same type. I have had migraines all my life and seizures for 2 years. Something my old neurolgist had me do was to keep a migraine journal, I have adapted that idea to keep track of the seizures too. Well my husband does most of that. When ever I see my neuro Dr I give him the latest version. This seems to help him understand what's happening to me even though I forget a lot of things due to the seizures. This might be useful for your husband as well, you document what you see on the outside, and he documents what he experiences.

Hi sorry to hear about everyones problems. I myself had a seizure about a month ago, i had severe brain damage when i was 7 i am now 31 it was a shock to have a seizure after such a long time. It was my first seizure and i haven't had one since, but reading this forum i've seen a few symptoms i'm having that i didn't know could be linked e.g. feeling tired, starring in one direction for a short amount of time, limbs going cold, shooting pains in various places. Today my ears started burning and they still are and they're really aching, has anyone esle had burning ears or maybe its not related to seizures. it's a bit of a worry when i feel like so will be nice to hear from other people. take care everyone