Hi, everybody:

I have epilepsy, controlled by Keppra and Klonopin.

I love sky diving. It is my "drug". My neurologist does not want me to do this sport and I refuse, I absolutely refuse to abandon this sport I love so much. We are several people to jump, me and my friends, one by one. In the area where I am supposed to land, there are several people waiting with a very large sort of net to catch me when I land and avoid injuries to my head and to the rest of my body, where I have RSD.

I do everything I can to avoid injuries with my epilepsy and RSD when sky diving and landing from sky diving, so I do not understand this neurologist's attitude, especially considering the fact that my orthopedic surgeon said I can sky dive as much as I want.

Thanks for sharing your opinions.

[Porkette]

Hi Kitty,

I love to fly even though it's gotten expensive. I know that if I were in your place I would continue to sky dive. Just because a person has epilepsy doesn't mean we can't live a normal every day life like everyone else. Unless the sz. got really severe like a status sz. I would keep sky diving.
Here's wishing you well and May God Bless You!

Sue

Hi, Porkette:

Quote: "Just because a person has epilepsy doesn't mean we can't live a normal every day life like everyone else." This is so true. If only doctors would understand it!

Quote: "Unless the sz. got really severe like a status sz. I would keep sky diving." What do you call a status seizure? I have never heard of it and my neurologists never told me about it.

Thanks for your encouragements and kind words.

[Porkette]

Hi Kitty,

A status sz. is when a person has sz. after sz. one right after the other or it can be a sz. of any kind that will last longer than 15 min. I had absence status sz. when my family Dr. put me on the drug "Neurontin" I would be in a sz. from 10 min. to 3 hrs. and sometimes a person has to go to the hospital ER and the Dr. will start an IV with sz. med to stop the sz. This type of sz. is dangerous and can cause more brain damage.
Keep flying high and dive safely. I think it would be a lot of fun.
Wishing You only the best and May God Bless You!

Sue

[Darlene]

One of the many things I always taught my kids is that no one is perfect. In today's a person can come up with a medical problem. I feel when someone with the problem have a easier way to assist others. Prayers and thoughts are with you.

Darlene

Hi, Darlene:

Quote: "One of the many things I always taught my kids is that no one is perfect. In today's a person can come up with a medical problem. I feel when someone with the problem have a easier way to assist others." You are obviously a good mother, who educates her children very well. They are lucky to have you. I try to educate my two-year-old baby boy in ways adapted to his age, so that he can love and respect people, including those that are different from us.

Thanks for your kind words and prayers.

Hi, Porkette:

Thanks for your information about status seizures. I learned something new about epilepsy today.

I had absence seizures twice, but I did not know these were called absence status seizures. These two absence status seizures, which lasted much longer than 15 minutes, occurred when my primary care physician put me on Gabitril, an epilepsy medication. I thought such medications were supposed to prevent seizures from happening, not make them happen. Maybe this is an allergy an epileptic person has for a particular epilepsy medication.

Thanks also for understanding my desire and pleasure for sky diving. With my generalized internal chronic RSD, epilepsy, asthma, and hypothyroidism, I do not have many people who want to be friends with me, as if I was going to contaminate them with my health conditions. Most of the activities I enjoy fortunately do not require the presence of friends; I say fortunately because I have so few friends. I enjoy sky diving, horseback riding (circus type or not), rock climbing, mountain hiking, water skiing, and reading. Reading is hard because I have trouble concentrating and understanding words even though I know these words. This is a symptom of my hypothyroidism.

Thanks for your kind words.

[ginnie]

I have done this sport just a couple of times and had to quit because of my neck and ankles. If you can keep jumping, do so. Maybe the one doctor was afraid you would pass out or something. I don't give up anything I like to do, until this body says no more. I loved jumping while I was able to, and am glad I tried it. What fun, and I was over 50. Enjoy the scenery! ginnie

[Porkette]

Hi Kitty,

The amount of natural progesterone cream I put on my arms was
just enough to cover my arms like when a person puts lotion on their skin when it gets dry. I hope th natural progesterone works for you and don't forget to eat the peanuts or almonds they will help you also.
Wishing You Well and May God Bless You!

Sue

[lcms0516]

Originally Posted by kittycapucine1974

Hi, everybody:

I have epilepsy, controlled by Keppra and Klonopin.

I love sky diving. It is my "drug". My neurologist does not want me to do this sport and I refuse, I absolutely refuse to abandon this sport I love so much. We are several people to jump, me and my friends, one by one. In the area where I am supposed to land, there are several people waiting with a very large sort of net to catch me when I land and avoid injuries to my head and to the rest of my body, where I have RSD.

I do everything I can to avoid injuries with my epilepsy and RSD when sky diving and landing from sky diving, so I do not understand this neurologist's attitude, especially considering the fact that my orthopedic surgeon said I can sky dive as much as I want.

Thanks for sharing your opinions.

For you it is sky diving. For me, it is riding my racing bike on the road.

Like you I do everything I can do to avoid an accident.

While it is your neurologist that is having a cow about what you love to do, for me it is my parents' despite my being 44. While I have been in a couple bike accidents where I have been hit by cars, none of the bike-car collisions has necessitated going to the hospital. When I ride my racing bike(look at the line of bikes at www.specialized.com, specifically the Allez' line, that will give you a picture of my racing bike), I can ride 20-30mph. Which is faster than the regular cyclist.