Epilepsy For support and discussion about Epilepsy and Seizure Disorders.


advertisement
Reply
 
Thread Tools Display Modes
Old 03-08-2011, 10:53 PM #41
the dove the dove is offline
Junior Member
 
Join Date: Mar 2011
Posts: 10
10 yr Member
the dove the dove is offline
Junior Member
 
Join Date: Mar 2011
Posts: 10
10 yr Member
Default T.l.e

Quote:
Originally Posted by WordsnNumbers View Post
I said in my first post , I am not having spells. I know what they are; I've had them my entire life. I am not having them now. It's been quite literally years.

IF and WHEN I make the decision to medicate myself, I will make the decision, period.

I am trying to connect with people and talk with them and find out about their experiences here
Your on a journey to enlightenment. Seek and ye shall find. I sought and I found. The kingdom is with-in. This is one highlander that didn't lose his head. May grace and peace be with you. Alan Donald Kennedy
the dove is offline   Reply With QuoteReply With Quote

advertisement
Old 03-08-2011, 11:30 PM #42
the dove the dove is offline
Junior Member
 
Join Date: Mar 2011
Posts: 10
10 yr Member
the dove the dove is offline
Junior Member
 
Join Date: Mar 2011
Posts: 10
10 yr Member
Default T.l.e

Quote:
Originally Posted by WordsnNumbers View Post
I said in my first post , I am not having spells. I know what they are; I've had them my entire life. I am not having them now. It's been quite literally years.

IF and WHEN I make the decision to medicate myself, I will make the decision, period.

I am trying to connect with people and talk with them and find out about their experiences here
I also have it on the absolutely highest authority that when the kingdom comes they will cure epilepsy and I mean the highest authority. The ancient ones, the first ever stars created as the universe/galaxy was created were the seven stars of Ursa Minor that rotate around polaris, the first and the last, the alpha and the omega. The revelation says the seven stars are the seven angels of the seven churches, Ursa minor. You temporal lobe epileptics should have pieced this together by now. Thier on thier way. Am I the only temporal lobe epileptic that received the holy grail? I thought we all would have my brothers and sisters. Save me a dance at the wedding. love and peace to you all. Alan Donald Kennedy
the dove is offline   Reply With QuoteReply With Quote
Old 10-23-2011, 07:33 AM #43
Tshelbie Tshelbie is offline
New Member
 
Join Date: Oct 2011
Posts: 1
10 yr Member
Tshelbie Tshelbie is offline
New Member
 
Join Date: Oct 2011
Posts: 1
10 yr Member
Default Geschwinds syndrome

Hi, I saw your thread and decided to come out of hiding and join in. I too have epilepsy and recently had an episode of hypergraphia that came out of nowhere. I also have simple partials that are short and intense and seem to be increasing but just can't bring myself to meds again as I'm tired of the side effects. My hypergraphia came as a result of having several TL seizures and caused me to write feverously for about 72 days. It has resulted in a book that I hope to have published in a few months. When it happened I was treated like a psych person by some very ignorant people but luckily an informed doctor saw what was going on and treated it. It stopped the seizures but it also stopped the writing which sucked because it was a pleasurable experience for once. Its hard to explain this stuff to people, even professionals as anything that is brain related is so taboo with so many people in this country so you live in hiding and suffer. I'm hoping my book will shed light on what its like to live with seizures and in my case brain injury and let people know about this condition so it can be understood and not criticized. I'd like to meet others with similar experiences and am always looking for good true stories of other survivors who are brave enough to talk about it. A good book was "Midnight Disease" which is about a doctor who acquired this hypergraphia. It made me understand the phenomenum a little better. Hope it helps...














Quote:
Originally Posted by WordsnNumbers View Post
I remember being rather irked at the neurologist when he was trying to get me to take the Keppra. I can understand his apprehension; he's probably had to call the DMV on a few of his patients and doesn't care to do it. But it was like:

"We'll start you on Keppra."

"But I haven't had a full-on spell in years."

"You'll start with a low dose, and--"

"Doctor, I haven't -- "

"-- move up from there. There's also Lamictal, but that interferes with fertility -- "

"-- had a spell in -- "

"-- so we'll start off with the Keppra."

"-- years."

"What?"

"*sigh*"

He also told me nothing at all about signs to watch for that the stuff wasn't working well for me, until I asked him, "If this stuff makes my head go pear-shaped, what warning signs will I want to watch for?" That earned me a blank look.

And after hearing about the problems that people had had with settling on medications that work for them, I determined that I wasn't going to take a single one unless I had a damned good reason to do so, and given that it's been years since I've had a spell (and decades since what I've come to realize were complex partials), I'm not taking a thing. I'm not the denial type, so if it becomes evident that I need them, I'll take them. But until then?

Nope. Not unless it's needed.

Currently, the thing I'm the most interested in is actually Geschwind's Syndrome because I've been a very intense, hypergraphic person with unusual (and unusually distributed) skills for my entire life, and this is the first time I've ever seen myself described properly in a book of any kind. I'm 42 and I've never seen myself reflected so utterly anywhere before. It's an unusual experience to have for the first time in middle age.
Tshelbie is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
left temporal lobe lesion vickie General Health Conditions & Rare Disorders 12 10-30-2013 09:11 AM
Left Temporal Lesion ? Jen81 General Health Conditions & Rare Disorders 9 02-14-2008 07:36 AM
Very Interesting! Human Herpesvirus-6B with Mesial Temporal Lobe Epilepsy southie Epilepsy 1 08-17-2007 07:39 PM
left temporal lobe lesion vickie Social Chat 2 05-02-2007 06:34 AM
Another Day in the Frontal Lobe..... Nat Hyland Hydrocephalus 0 09-22-2006 11:09 PM


All times are GMT -5. The time now is 12:51 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.