[lcms0516]

Does anyone feel like they are doomed to be alone for the rest of their lives? I have been epileptic pretty much since I was an infant. I was born with a ventricular brain aneurysm. Which caused Hydrocephalus. The brain surgeries for both(six by 9yrs.-old, none for the past thirty-five years) of them, caused Epilepsy.

I was married(1992-2000). I was engaged to be married(2002-2007). I am in relationship(2007-present) with a woman at present. But I always fear ultimately dying alone, due to one of my health problems.

[Porkette]

Hi lcms,

I understand how you feel lonely but keep your chin up and remember there are others in this world that have things a lot harder than we do. I've lived with epilepsy for 39 yrs. and I've had 2 brain surgeries to help reduce my seizures. I am married but everyone in my family except my Grandparents and my aunt and uncle have rejected me. I have a brother who has a family and they have never come over to visit in 25 yrs. My father hasn't seen me in 6 yrs. and it was over a yr. before my mom came to see me. I've been married for 25 yrs. now and I guess what has kept me going is seeing my aunt who had MS suffer until she passed away and knowing there was nothing her Drs. could do for her as well as seeing my Uncle die from cancer.
I feel lonely a lot of the time but I try to keep busy and reach out to others who have life much harder than I do. I love to write and often I write my feelings into poems or short stories always remember that someone out there in the world has it a lot harder than we do. Don't let your health get to you remember depression is part of having epilepsy so try and turn that frown upside down. Here's wishing You Well and May God Bless You!

Sue

[Darlene]

lcms,

Hello and welcome to the forum. You will find a group of caring friends to listen to you. I have had epilepsy since I was 10, and it was developed they ran away from me. A number of those fellow friends have made up with me in the past. I was very lucky to come across I well loving man. We have been married for 38 years. I have always look at other people with problems and been to assist as I can. Yes I have had a number of people being rude to me in the world, but the best I can do is be a good example to them. Just do as Sue said hold your head up. My thoughts and prayers are with you.

Darlene

[lcms0516]

Originally Posted by Porkette

Hi lcms,

I understand how you feel lonely but keep your chin up and remember there are others in this world that have things a lot harder than we do. I've lived with epilepsy for 39 yrs. and I've had 2 brain surgeries to help reduce my seizures. I am married but everyone in my family except my Grandparents and my aunt and uncle have rejected me. I have a brother who has a family and they have never come over to visit in 25 yrs. My father hasn't seen me in 6 yrs. and it was over a yr. before my mom came to see me. I've been married for 25 yrs. now and I guess what has kept me going is seeing my aunt who had MS suffer until she passed away and knowing there was nothing her Drs. could do for her as well as seeing my Uncle die from cancer.
I feel lonely a lot of the time but I try to keep busy and reach out to others who have life much harder than I do. I love to write and often I write my feelings into poems or short stories always remember that someone out there in the world has it a lot harder than we do. Don't let your health get to you remember depression is part of having epilepsy so try and turn that frown upside down. Here's wishing You Well and May God Bless You!

Sue

Sue, My interest is bicycle advocacy, as to the laws on the state, county, and city level.

I know that some people have it a lot harder as far as illness goes. I try not to let it get me down. But I keep thinking of the emotional rejection that I keep experiencing.

I have a sinking feeling that my girlfriend does not want to talk to me because of my depression, even though she has told me on the phone that I did nothing wrong.

[lcms0516]

Originally Posted by Darlene

lcms,

Hello and welcome to the forum. You will find a group of caring friends to listen to you. I have had epilepsy since I was 10, and it was developed they ran away from me. A number of those fellow friends have made up with me in the past. I was very lucky to come across I well loving man. We have been married for 38 years. I have always look at other people with problems and been to assist as I can. Yes I have had a number of people being rude to me in the world, but the best I can do is be a good example to them. Just do as Sue said hold your head up. My thoughts and prayers are with you.

Darlene

Darlene, Thank you for the response. I try to hold my head up. My only solace, is that I advocate online for people with disabilities being able to ride a bike. Other than that, I don't feel very positive about myself.