[susiemagoo]

Hello,
I'm usually on the Myasthenia Gravis page -- my son was d/x'd with MG at the age of 10. It was rough getting a d/x for him, which brings me to my story.

A few weeks ago I was on a flight, with a woman and her daughter sitting next to me. The woman told me her daughter, age 18, had been having seizures for the past 1.5 years. Her daughter would pass out and when she "came to", she would be unable to speak for a few minutes. Also, her legs would be weak or paralyzed. The girl had two such episodes during our 45 minute flight. Her legs were feeling weak when the plane landed, so the flight attendant called for a wheelchair.

The mother and daughter were on their way to Mayo Clinic, where my son had been 7 years ago. The Mayo "gods" had pronounced my son's problems as being psychiatric. Two hospitals and numerous doctors later, my son got the MG diagnosis.

I have kept in touch with this family since we parted ways at the airport. Mayo did the usual tests and pronounced the daughter as having psychiatric problems. Her EEGs have been normal, an EMG was normal, blah, blah, blah. The family is flying back home tomorrow, very frustrated. They did the psychiatrist evaluation months ago, which showed the daughter to be normal.

I kept my sanity during my son's two week stay at Mayo by the braintalk forum. I am determined to help this poor girl and her mother, as other MG patients helped my son and me.

One other thing -- the mom told me that her daughter also has episodes of her feet turning bright red. Sounds like Raynaud's Syndrome to me, which
indicates something autoimmune going on. My son has RS also, as does my sister who also has Lupus.

If these symptoms ring a bell with anyone, please drop me a line. Also, can you have seizures without them showing up on the EEG? I've run across Todd's paralysis during some of my internet searches. Don't know if that explains the residual weakness in one of this girl's legs and foot.

Looking forward to your input.

Thanks,
Susie