i am so blessed to have such a flexible work environment. my boss and hr have been so willing to help me and accomodate me while i get this seizure stuff figured out.

however, i get the feeling the don't quite know what to think about the whole situation. a lot of people don't know a lot about seizures, myself included before i did a lot of research. and my meds are making me just downright loopy at times and i don't want them to think i'm losing it. (well i may be, but still, i'm blaming the meds LOL)

so i was thinking of writing up a really brief document of the kids of seizures i'm having, what happens before/during/after, using medical documentation of course, so that they know what's going on. i also want to let them know the side effects of my meds and what the possible side effects are, so that they can know what's going on with that.

my question is: am i oversharing? i don't want to swamp them (them being my boss, the HR girl, and the office manager) with information that they don't need or want to know. but i also want them to know as much as possible so that if they notice something amiss, they know what's up. also if i'm acting sketchy, that they know there's a medical reason behind it.

would you say this is a good idea or a bad idea?

Hi,
In my opinion I think it is a GREAT idea to educate them about your sz and epilepsy.

Our office(not affiliated with NeuroTalk) mails info if you would like some please contact us at Rocking4Epilepsy@yahoo.com


I wish more were like you and be open about epilepsy

hugs

Ashsky, HERE is a link to a pretty nice website. You may be able to just copy/paste some of that into a notepad and print it - or just print it all.

I would give them information, but keep it simple so it's easier for them to remember. I'd explain your seizure type and maybe a copy of the actual medical description of it along with your own (heaven knows none of us ever fit the exact definition they give). I'd also tell them your medications and just make a copy of the side effects listed, and let them know if any of them have any impact on you (such as a disturbance in your short term memory).

Having a form for them would help if you do not have a medical id bracelet. Let them know your 'official' diagnosis (Seizure type) and medications along with the phone number to contact your doctor or loved one (whoever would know what to do faster) in the event of an emergency.

Best of luck to you, and that's awesome you get to work! I can't wait until I get to work again.

i'm a boss. hubby and i own our own business.

we have had employees who have shared medical information and some who haven't.

in your state it may not be a law that you have to share medical info.

it was not a very good situation with the employee who did not share. not being informed didn't allow us to know what to do when a crisis happened.

also making sure that employers are given more than 1 emergency contact numbers is helpful.

i totally agree with what ellie said about medications. if something were to happen, then they would have the list to give to ems.

thank you guys so much for your input! that website looks great ellie. i was leaning towards NOT b/c i didn't want to have a strike against myself, but given the accomodations they've already made for me, and their willingness to help out, i think they deserve to know more specifics.