Hi CZ,
How are things going? I wish you only the best of luck with your check up. You might want to mention something to the Dr. you see to have them do a special e.e.g. on you where they flash different color strobe lights one at a time to see if certain colors trigger sz. for you. If this happens it's known as being "Photosensitive" many people with E have this problem. If you think of any questions you want to ask your Dr. you might want to write them down so you don't forget. I always do that so I don't forget to ask any questions. Here's wishing you well and Have a wonderful weekend. May God Bless You!

Sue

Sue, my primary ordered a STAT cat scan, looking for a bleed she said, it came back negative, so thats good news. The question is where do I go from here? No explanation for the seizures yet. do I move forward and see the neurologist? Push to have the eeg and mri? Please advise. I guess my question is is the cat scan enough or do I need the other tests to find out what is causing these sz? thanks Sue, CZ

Hi CZ,
My advice to you is to set up an appt. with an neuro or epileptologist and have them handle the case. A CT scan isn't going to show as much as an MRI will or an e.e.g just make sure when and if you have the MRI done that they do it where they give you a shot of the dye that makes you feel hot for a couple of min. I can't remember the name of the dye but take my word it shows a lot of detail that a CT scan won't show. What the Dr. should do is do an MRI taking a few pictures without the dye and then give you a shot and the dye will go through your system and they can get more detail taking a few more pictures with the dye. As far as the e.e.g. have the Dr. order a sleep deprived e.e.g that will probably show more. A sleep deprived e.e.g. is when a person has to stay awake all night and can't go to bed. This in turn can trigger sz. for many people. Lack of sleep, and stress are the 2 main things that can cause sz. If neither of these tests show any problems it could be that you have brain damage to deep in the brain and the tests aren't showing it. That happened with me on the left side of my brain. Here's wishing you well and May God Bless You! Thanks for keeping me posted.

Sue

Hi CZ,
Sorry I forgot to tell you that if you have an MRI done you might want to ask the Dr. to order a FMRI (functional MRI) or a comtrast MRI with the comtrast MRI they will do a quick blood test first and then they will have you drink or either give you a shot of the comtrast dye and sometimes people get sick from the dye. I know the last time I had this done I had a nausea for 2 days and then it cleared up. Here's wishing you well and May God Bless You!

Sue

Thanks Sue - I will definitely ask when I speak with the doctor this am. I know they are ordering the eeg as well- dont know if I am spelling that correctly! i hope they find what is causing these sz and the non stop headaches-the headaches are getting worse and seem to be on the left side primarly- I dont know if that is significant- also have vertigo. thank you again for all your help Ill let you know. Sincerely, CZ

Hi CZ,
I hope all went well for you when you saw your Dr. My prayers are with you and I wish you the best. May God Bless You!

Sue

Hope everything went good with your doctor's visit.

Darlene

Hi thank you so much everyone, My MRI is wednesday and my EEG is Thursday, i will let you know how things go. Another site recommended that I have a sleep apena test as well. This was primarly because of the fear in my seizures. I was wondering if anyone else has sleep apnea along with their sz. Hope I didnt post some of this already, I have severe memory loss from my RSD treatments! So forgive me if I did, Sincerely, CZ

Hi CZ,
I'm glad that you are having a sleep apnea test done. I have a brother that has sleep apnea but he's never had a single sz. his Dr. has him on a breathing object (I'm not sure what it's called) because when he tries to sleep he snores so loud and he stops breathing, then he can't get to sleep but since he's been using the breathing object it's helped him greatly. I know there are different form of sleep apnea and it can lead to sz. for some people. I have also wondered if you may have narcolepsy which could answer the questions as to why you wake up scared or frightened sometimes. After you get your test results back this will answer all of your questions as to what's going on. I wish you the best of luck and May God Bless You!

Sue

Hi CZ,

I also do have Sleep aphea. I go with the Cpat, which it wasn't hard to get use to. It keeps my breathing steady and during the night I seem to sleep better. I really have not had problems with them together.

Let me know if you have any questions.

Darlene