[traciboop]

This is Traciboop I Have Had Epilepsy for 44 years now yes I just gave my age kinda lol.and recently I have been diagnosest with a certain kind of glaucoma.when I have a seizure my eye muscles get a real work out and that is not good the Optomrtrist says.well my Question is this do any of you guys out there have the same problem or am I just a weird child my eyes always told ppl when I was going to have a seizure they would get big in the puplies I really was just curious thanks
traciboop

[Porkette]

Hi traciboop,
I've never had glaucoma, but each time I have an absence (petit mal) or complex partial sz. my pupils dialate which is normal when a person has a sz. You might want to speak to your neuro about trying the drug Diamox it's used for epilepsy and glaucoma I've been taking it for many yrs. and it works great. I've been told over the yrs. that certain AED's (sz. med) can cause problems with some peoples eyesight. I know that when I took tegretol my eyesight got really bad. I've had epilepsy for 36 yrs. now and I've found diamox a great help. If you do go on diamox I want to let you know that you can't take asprin. Only tylenol. Here's wishing you well and May God Bless You!

Sue

[traciboop]

I will ask my nero about this drug Diamox, because as you have stated I to have been on this drug tegretoll long term well sence I was a child I would say,but thank you for that information it helps me a great deal,
I can now understand why my eyes are so bad at a young age.and it does not run in my family

[Porkette]

Hi traciboop,
I hope I was of some help. If I may ask have you been taking tegretol or tegretol xr? I've been on both and I found it was that tegretol xr that messed up my eyesight the worst. Some of the problem could be from the area of where your sz. are coming from especially if they are starting in the opticcal lobe that's the area for our eyesight that's in the back of the head. I see you posted on braintalkcommunities if nobody responds you might want to make that a seperate post I'm sure others will respond. Here's wishing you well and May God Bless You!

Sue

[traciboop]

Originally Posted by Porkette

Hi traciboop,
I hope I was of some help. If I may ask have you been taking tegretol or tegretol xr? I've been on both and I found it was that tegretol xr that messed up my eyesight the worst. Some of the problem could be from the area of where your sz. are coming from especially if they are starting in the opticcal lobe that's the area for our eyesight that's in the back of the head. I see you posted on braintalkcommunities if nobody responds you might want to make that a seperate post I'm sure others will respond. Here's wishing you well and May God Bless You!

Sue

Yes Sue you did help me I have been on tegretoll xr for a very long time first I was on just regular tegretoll as a kid now I am on both tegretoll 400 and 100mg xr
I am going to talk to my doctor as soon as My opointment comes up,maybe he can change me to this drug Diamox you where talking of,thats if I have not every tryed it you see I have been on so many that I have forgot some of there names, Traciboop

[Porkette]

Hi traciboop,
I will let you know that diamox is a diuretic that helps get rid of extra fluids in the body. Just like you I've taken both tegretol and tegretol xr but never at the same time. In case your Dr. hasn't told you never eat grapefruit or drink grapefruit juice while on tegretol or tegretol xr because the enzymes in the fruit can mess up the drug and cause many problems.
As far as the diamox goes you may notice that you don't want to eat that much and that's because the drug makes you feel full but other than that I've had no other side effects from the drug. I wish you the best of luck and May God Bless You!

Sue

[traciboop]

I would like to thank you porkette for all of your good information.I went to the eye doctors the other week and I asked him alot of questions that I would have not ordanarly asked because of you.and he told me this one: the glaucoma is not caused from my tegretoll xr it is not Intracranial presure,it is in my field of vision so he does not want me to worry about that but as long as I want to change drugs and see if Diamox can help me that will be ok with him any thing that will help my eyes at this point is a good thing he said so I just wanted you to know that I am well on my way with helping my eyes more and its because of you thank you again.and god bless you are a very special person to me. traciboop

[Porkette]

Hi traciboop,
It's great to hear from you again! I'm glad things are working out for you and I was able to help you out. Feel free anytime to ask any questions I've learned a lot from you and others here even though I've had epilepsy for 36 yrs. I will let you know that Diamox can cause a bad sunburn, loss of appetite, and since it's a dieuretic you have to use the restroom more frequently to get rid of fluids. You can not take asprin while on diamox and you have to check the wbc (white blood count) along with the drug level every now and then. Keep me posted on how things go for you if you don't mind. I hope things get better with your eyesight and that your sz. stop forever. May God Bless You!

Sue

[traciboop]

Originally Posted by Porkette

Hi traciboop,
It's great to hear from you again! I'm glad things are working out for you and I was able to help you out. Feel free anytime to ask any questions I've learned a lot from you and others here even though I've had epilepsy for 36 yrs. I will let you know that Diamox can cause a bad sunburn, loss of appetite, and since it's a dieuretic you have to use the restroom more frequently to get rid of fluids. You can not take asprin while on diamox and you have to check the wbc (white blood count) along with the drug level every now and then. Keep me posted on how things go for you if you don't mind. I hope things get better with your eyesight and that your sz. stop forever. May God Bless You!

Sue

And I sure will let you now what I find out thank you a bunch.