From what I've read Todd's syndrome is not a "common" thing. Since I've never before had it untl a few months ago, I guess there may be some truth to that.
So I'm curious just what Dr's do say about it. I'll see my neuro next month & would like to appear to be a bit wiser than he is. It seems that Todd's only comes during a grand-mal.

(Maybe Ellie while you sit bored to death @ the hospital you can get some professional opinions). )

Thanks!

I finally figured out why I didn't recognize this name, and that's because I know of it as Alice in Wonderland Syndrome, and read it's also called "Todd's Paralysis” Syndrome".

(The disorder was first described in 1955 by the English psychiatrist John Todd (1914-1987), who named it for Lewis Carroll’s Alice’s Adventures in Wonderland.)

Todd's doesn't always come 'during' a Grand Mal. It is (from my understanding) more frequent to come after a seizure or after a series (cluster) of seizures which the end result being moderate weakness, paralysis, etc. It's also known to affect speech and other things.

From my understanding it is very important you discuss this with your Neurologist or Epileptologist as it may help them to properly diagnose your seizures (origin, starting point, etc) and/or alter any medications.

It also seems that this can last up to 48 hours and if it lasts longer than that, you should get to a doctor or hospital as it could be something else, or you may be having cluster seizures which is extremely important you get it taken care of to avoid any serious complications.

I would suggest you look up:

Todd's Paralysis
Alice in Wonderland Syndrome
Todd's Syndrome

Gather information on all three (basically the same thing, just different names and types). Print some information out and take it with you.

Make sure to keep us updated and sorry it took me so long, I wasn't familiar with this term and at the Epilepsy Center - they call it Todd's Paralysis.

Hope that helps some!