I just wanted to clarify......the right-sided weakness and tremor......do you have them all the time? Or any neurological symptoms that are separate from the seizure spells? Lesions in the brain, those white spots on an MRI, can cause seizures by destabilizing the area, depending on where they are located. I, too, would want to know more about the lesions. You might post over on the Multiple Sclerosis board to ask if they've ever heard of lesions just being due to age.

The reason I say this is that, of all the people I know, I would have expected lesions on my MRIs. I've always been under stress, etc., but my scans were all clear (ages36-39; I was getting them yearly to check for suspected lesions). My sister, however, had six on a recent MRI. She probably has MS (her symptoms include lower body weakness in general, along with others).

Jingle, that is AWFUL about a doctor missing the mass on your MRI. That happened to my sister, too!!!!! Her new neuro looked at an old MRI that my sister brought from a few years ago; my sister had loss of feeling in her hand that the old neuro said was due to carpal tunnel.... The new neuro said there were lesions in her brain even back then, but no one had ever told her!!! She could have started medication years earlier!!!

Yeah, don't let a doctor blow off lesions (or spots) in the brain, *especially* since you are having neurological symptoms.

(and fwiw, my seizures started at around 36yo, out of the blue. Mine are related to my hormone cycle, too. I take progesterone daily and it seemed to help. Progesterone is a calming hormone for the brain, actually, and I don't think my body makes enough)

Oh, and I take lyrica for the partial breakthroughs, in combination with keppra (which I take for my Tonic Clonic seizures), and that seems to work for me.

Oh, and ( ) I would suggest not eating something heavy in sugar/carbs when you are feeling off. I only suspect, don't know for sure, but I think heavy sugar (maybe causing a dumpage of insulin, or the dumpage of insulin causing a sudden drop in blood sugar) was related to my first two seizures (they were both major holidays......what can I say?!).

Footprints,

The right sided weakness is mainly after a seizure. I have the tremor all the time. I also have trouble with word retrieval and stumbbling over words for at least a day after a seizure. I am finding that I am having more episodes of haziness? Can hear a person or something going on as if in a dream like state, but can not respond when asked a question. I respond in my head, but delayed verbal responce.
I am not sure where the white areas are in the brain. I will go over to the MS board and see if age could be the problem Have a nice holiday


Garney