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-   -   any particular medication or treatment options for CFS/fibro? (https://www.neurotalk.org/fibromyalgia-and-chronic-fatigue/101441-particular-medication-treatment-options-cfs-fibro.html)

watsonsh 09-02-2009 10:41 PM

Yes, but taking it has had an amazing effect on my fibro and muscle issues and fatigue. So has the l-lysine which is also recommended for herpes. But there are many herpes viruses and most of the population is infected. In some of us it just starts to run amok.

Epstein Barr and HHV6 (all part of the herpes family) are some culprits behind chronic fatigue syndrome as the stanford study is proving out. Google Dr montoya at stanford and his new treatment for chronic fatigue. There is also a Dr Lerner in Michigan that is working along the same angles. Also google the HHV6 site. I am sure there are many others as well. I had my antibody titres tested and sure enough sky high.

But once I started on an anti-viral even my physical therapist commented that my muscles have never been better. It even improved my frozen shoulder.

Some think that viruses are behind many neurological issues. And these viruses can be active for years. I will be on valtrex for at least a year.

But its an individual thing so what worked for me as a virus is my underlying cause may not be the case for others.

The other thing I have been reading about for fibro that is having some success is LDN - low dose naltrexone...also in a current study at stanford showing good early results.

bruegger84 09-02-2009 10:59 PM

im glad that that treatment is working for you, and maybe will give a few people ideas. but alas, that type of valtrex treatment won't fly by with most docs, unless you happen to have herpes.

However, L-lysine is a more viable option, I can see that used, I however had no luck with it.

Fly_Girl 09-09-2009 09:49 PM

I have tried a number of NSAIDs and a few others. For a while, Effexor (anti-depressant) was working quite well, and then I started working alternate shifts and the pain started getting worse. I can sleep when I take Flexeril (muscle relaxant) , but then I have problems waking up and functioning the next day. Finally got referred to a Pain Specialist (I'm in the military and can't see doctors outside the military with a referral - unless I wanted to pay for them myself) and he has referred me for Aqua Therapy (still waiting for the approval from my insurance) and Acupuncture/Message Therapy (Have to pay for this myself, my insurance won't cover it). He has also put my on Lyrica, but I am just starting to take it today.

Okay, to get to the point, the Acupuncture/Message Therapy is actually doing pretty good. I have had 3 appointments so far and feeling good. I have also been diagnosed with osteoarthritis in my knees and today, the acupuncture doc put a couple extra needles in this human pin cushion for my knees. There are still some dull aches, but the sharp pains are gone. Actually did a bit of running on the treadmill and my knees are feeling great compared to normal. Last visit, he put in some extra needles for my elbows and I haven't had pain in them for 2 weeks.


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