Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS).


advertisement
Reply
 
Thread Tools Display Modes
Old 09-02-2009, 10:41 PM #11
watsonsh watsonsh is offline
Grand Magnate
 
Join Date: Dec 2006
Posts: 4,642
15 yr Member
watsonsh watsonsh is offline
Grand Magnate
 
Join Date: Dec 2006
Posts: 4,642
15 yr Member
Default

Yes, but taking it has had an amazing effect on my fibro and muscle issues and fatigue. So has the l-lysine which is also recommended for herpes. But there are many herpes viruses and most of the population is infected. In some of us it just starts to run amok.

Epstein Barr and HHV6 (all part of the herpes family) are some culprits behind chronic fatigue syndrome as the stanford study is proving out. Google Dr montoya at stanford and his new treatment for chronic fatigue. There is also a Dr Lerner in Michigan that is working along the same angles. Also google the HHV6 site. I am sure there are many others as well. I had my antibody titres tested and sure enough sky high.

But once I started on an anti-viral even my physical therapist commented that my muscles have never been better. It even improved my frozen shoulder.

Some think that viruses are behind many neurological issues. And these viruses can be active for years. I will be on valtrex for at least a year.

But its an individual thing so what worked for me as a virus is my underlying cause may not be the case for others.

The other thing I have been reading about for fibro that is having some success is LDN - low dose naltrexone...also in a current study at stanford showing good early results.
watsonsh is offline   Reply With QuoteReply With Quote

advertisement
Old 09-02-2009, 10:59 PM #12
bruegger84's Avatar
bruegger84 bruegger84 is offline
Member
 
Join Date: Aug 2007
Posts: 367
15 yr Member
bruegger84 bruegger84 is offline
Member
bruegger84's Avatar
 
Join Date: Aug 2007
Posts: 367
15 yr Member
Default

im glad that that treatment is working for you, and maybe will give a few people ideas. but alas, that type of valtrex treatment won't fly by with most docs, unless you happen to have herpes.

However, L-lysine is a more viable option, I can see that used, I however had no luck with it.
__________________
dx: fatigue,, SOB at times(asthma), insomnia, anxiety.

fatigue, insomnia, migraine issues


neurontin
omega 3 fish oil, b complex,
acid blocker(famotidine)
Lopressor
NAC
low dose aspirin


Former, experience in:
Prozac
bruegger84 is offline   Reply With QuoteReply With Quote
Old 09-09-2009, 09:49 PM #13
Fly_Girl Fly_Girl is offline
Junior Member
 
Join Date: Apr 2009
Location: Alamogordo, NM
Posts: 13
15 yr Member
Fly_Girl Fly_Girl is offline
Junior Member
 
Join Date: Apr 2009
Location: Alamogordo, NM
Posts: 13
15 yr Member
Thumbs up

I have tried a number of NSAIDs and a few others. For a while, Effexor (anti-depressant) was working quite well, and then I started working alternate shifts and the pain started getting worse. I can sleep when I take Flexeril (muscle relaxant) , but then I have problems waking up and functioning the next day. Finally got referred to a Pain Specialist (I'm in the military and can't see doctors outside the military with a referral - unless I wanted to pay for them myself) and he has referred me for Aqua Therapy (still waiting for the approval from my insurance) and Acupuncture/Message Therapy (Have to pay for this myself, my insurance won't cover it). He has also put my on Lyrica, but I am just starting to take it today.

Okay, to get to the point, the Acupuncture/Message Therapy is actually doing pretty good. I have had 3 appointments so far and feeling good. I have also been diagnosed with osteoarthritis in my knees and today, the acupuncture doc put a couple extra needles in this human pin cushion for my knees. There are still some dull aches, but the sharp pains are gone. Actually did a bit of running on the treadmill and my knees are feeling great compared to normal. Last visit, he put in some extra needles for my elbows and I haven't had pain in them for 2 weeks.
Fly_Girl is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Pain Treatment Options wannabe Chronic Pain 5 05-03-2018 03:42 AM
Spinal lesions only. Treatment options??? MistiC Multiple Sclerosis 8 11-11-2008 06:16 PM
Treatment options in Canada? Kat_1 Thoracic Outlet Syndrome 8 02-27-2008 10:40 AM
Treatment options for neuropathic pain wannabe Multiple Sclerosis 0 09-27-2006 11:18 AM


All times are GMT -5. The time now is 09:12 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.