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Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS). |
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08-02-2012, 09:46 PM | #1 | ||
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08-04-2012, 11:04 PM | #2 | |||
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I haven't been dx with Fibro but I have all the symptoms. My massage therapist is questioning why I'm not healing from my whiplash. It's been 4 months and no change. ANA was negative.
I'll be seeing neuro next month and I'm trying to figure out what t say. Should I just go over symptoms and make him guess or just come out and say Fibro. I'm afraid of being treated like a nut case like my GP is.
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I have PCS, PTSD, Panic Attacks, Occipital Neuralgia, Ataxia.CT normal. |
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12-11-2012, 12:30 PM | #3 | ||
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Yes - When I wake up in the morning I am very stiff all over - major stretching before I get out of bed helps, yoga for flexibility helps.
Yes - My body aches all the time, all over, feels like sparkler's on the 4th of July, but inside my legs and arms and they hurt more because they are constant. Yes - The muscles in my neck and across the tops and back of my shoulders feel like rocks to the touch, with marbles of pain in them. Trigger point massage therapy hurts like heck, but really helps. No - When I move my head, I often hear a crackling sound - I'm in my 50's, most bones crackle when I move them so my neck does, but don't think it's more than anyone else's. No - Sometimes I have the sensations of bubbles in my head...strange. Yes - Sometimes my head feels like a have a helmet of numbness on. - which is like neuropathic sensations. Yes - a tremor on movement. Yes - I also have muscle twitches all over my body - these are called Fasciculations and I have them all the time all over. No - lights in my eyes that flash |
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08-02-2013, 04:48 PM | #4 | ||
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Hello Evonne,
Your post was very interesting to me. I also have the "shakes" with my fibro, but not as often as you. I take Flexoral for it. It helps me, but of course, you would have to talk to your Dr. about taking it for yourself. There are times I can not walk without losing my balance. I also have the jerks and kicks at night when I am sleeping. My husband has his own bedroom because of all the girations I go through when I'm sleeping. I've found that magnesium really helps my restless leg syndrome more than anything. There again, you would have to ask your Dr. about this and how much you can take a day. I've had fibromyalgia since 1994. I got a bad case of e-coli and was extremely ill. I never felt back to 100% afterwords. The Dr. said I was perfectly ok and the e-coli was out of my system, but I knew there was something wrong. I checked myself into Mayo Clinic in Scottsdale, AZ. and they diagnosed me and I had never heard of such a thing as Fibromyalgia. My first Dr. that I had for fibromyalgia after my diagnosis, told me to roll with it because if I fight it, IT will win. I never forgot those words and started gradually changing my attitude about it. Hard thing to do. Bless your heart Evonne. You are doing the right thing, to find a Dr. that will listen to you and then take action. I don't go to anyone that doesn't understand this disease. Good luck to you. Blossom 25 |
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08-24-2013, 02:57 PM | #5 | ||
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08-25-2013, 08:12 PM | #6 | ||
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How do u find Fibro families?
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12-22-2013, 03:33 PM | #7 | |||
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I to have fibromyalgia and tremors, but mine are probably familial. My grandmother had them and I noticed mine about ten years ago but was told it was from the problems with my neck. Then a few months ago I changed blood pressure meds from a beta blocker to Norvasc. Going off of the beta blocker brought the tremors to full capacity and back to the doctor I went. I am now close to being diagnosed but am still having problems with meds but will see my Doc on Dec 31st and the Neuro Doc on Jan 20th. I am already being processed through SSI and hopefully will be approved soon.
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01-21-2014, 06:12 PM | #8 | ||
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02-22-2014, 03:13 PM | #9 | ||
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08-09-2014, 03:15 PM | #10 | |||
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Thank You so much for telling your story! I am bi-polar and have Fibromyalgia, tremors, degenerative disc, spinal stenosis, and other physical problems. The things that struck me were you said you are stiff in the morning and feel like bubbles in your head or a helmet on your head. I have this type of thing going on but feels like electrical shocks in my head. I just read another post about CRPS type I and II. (Type I used to be called RSDS) Almost every symptom on there matched mine. I am being referred to The University of Washington and that will be on my list of questions. Just Google it to read about it in Wikipedia. I hope you find some answers soon. The waiting is what kills me! I have a pretty low patience level anymore. Pain does horrible things to us physically, mentally, and emotionally.
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