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Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS). |
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08-24-2013, 02:57 PM | #31 | ||
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08-25-2013, 08:12 PM | #32 | ||
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How do u find Fibro families?
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09-27-2013, 06:34 PM | #33 | ||
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I am sorry you have it so hard. I have had internal tremors for almost 20 years, getting worse. Lying in bed the skin is twitching and jumping. My head is always fuzzy, heavy , pain in neck and shoulders. I only have the Chronic Fatigue Syndrome diagnosis, not even looking for another. I understand if someone is really suffering they have to search, etc.. see specialists. I personally feel that most people will come back to the CFS diagnosis with its incredibly weird symptoms! I also have POTS, very weak standing. If you check ** , she is very knowledgeable and has lots of info. She has sever flashing in her eyes, especially at night.
Last edited by Chemar; 09-27-2013 at 08:27 PM. Reason: sorry but no websites/links allowed for new members |
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12-22-2013, 03:33 PM | #34 | |||
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I to have fibromyalgia and tremors, but mine are probably familial. My grandmother had them and I noticed mine about ten years ago but was told it was from the problems with my neck. Then a few months ago I changed blood pressure meds from a beta blocker to Norvasc. Going off of the beta blocker brought the tremors to full capacity and back to the doctor I went. I am now close to being diagnosed but am still having problems with meds but will see my Doc on Dec 31st and the Neuro Doc on Jan 20th. I am already being processed through SSI and hopefully will be approved soon.
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01-16-2014, 11:02 AM | #35 | ||
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Hello,
I was struck by the phrase, you know about fibro, but don't think it applies to you. I am in a similar boat. I have been in undiagnosed land for many years. So many docs all in a rush, no one taking the time to listen and act long term. For me, this website strengthens my resolve to care for myself...I see others, and the mistreatment they pay money for. The insults docs use...the garbage bag of diagnosis...meaning if they can't easily figure it out, they say, you are overweight, or depressed, or your meds are causing your problems. I can see what I would suggest for others, and it helps me have faith in what i need to do for myself. My husband is not a medical advocate...he is lots of wonderful things but not that. SO as tired as I am, as uncertain as i am about what is wrong with me, I can see that Today is our source of joy. I have decided to do what i can to unravel the mystery about my problems. i am getting my Vit B12 checked today, I am forcing myself to go to the Y to take a "keep Moving" water class. I have started removing wheat from my diet. I want to get better. I appreciate all the posts. I see how one persons journey helps others. LS |
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01-21-2014, 06:12 PM | #36 | ||
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02-22-2014, 03:13 PM | #37 | ||
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08-09-2014, 03:15 PM | #38 | |||
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Thank You so much for telling your story! I am bi-polar and have Fibromyalgia, tremors, degenerative disc, spinal stenosis, and other physical problems. The things that struck me were you said you are stiff in the morning and feel like bubbles in your head or a helmet on your head. I have this type of thing going on but feels like electrical shocks in my head. I just read another post about CRPS type I and II. (Type I used to be called RSDS) Almost every symptom on there matched mine. I am being referred to The University of Washington and that will be on my list of questions. Just Google it to read about it in Wikipedia. I hope you find some answers soon. The waiting is what kills me! I have a pretty low patience level anymore. Pain does horrible things to us physically, mentally, and emotionally.
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12-15-2014, 02:52 AM | #39 | ||
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Hi, as I read your initial post, it felt as if it were my history, only difference is that I know I have been having trouble since age 4 when my mom found me in the doorway crying because I could not walk. I was Diagnosed at 35 after many years of suffering. Everything always comes back normal. I have noticed that my tremors are getting worse. I have the inner tremor as if my muscles are trembling around my bones and also a shaking that takes hold of me when I am very happy or angry, I also sometimes have difficulty speaking, Bradykeneasia sometimes and I walk slowly and sometimes my voice is very soft. Though the Neurologist still said Fibro. I hate stairs because my legs shake so much. People do not get is atall. 3 other drs confirmed the Fybro, my initial physio said my muscles resembled those of someone with parkinsons. I am now taking a dopamine supplement and am feeling better than a week ago. |
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12-15-2014, 09:59 AM | #40 | ||
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Grand Magnate
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Welcome Jellybaby.
__________________
Kitt -------------------------------------------------------------------------------------------------------- "It is what it is." |
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"Thanks for this!" says: | bddouglas (01-11-2015) |
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