Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS).


advertisement
Reply
 
Thread Tools Display Modes
Old 12-31-2009, 05:34 PM #1
Chotzey Chotzey is offline
Junior Member
 
Join Date: Dec 2009
Posts: 6
10 yr Member
Chotzey Chotzey is offline
Junior Member
 
Join Date: Dec 2009
Posts: 6
10 yr Member
Default does anyone experience numbness w/fibro

I was diagnosed w/fibro 12yrs ago. In March my left hand the first 2 fingers are numb, and my knuckles burn like fire, like I have been scalded. This has been continous pain, however I went to neurologists today to be checked for neuropathy and he said he thinks it is the fibro, so I was just wondering if anyone else has these symptoms or is he just blaming it all on fibro ? I had an EMG done and it came back normal. He wants to take me off my cymbalta and start me on savella...Im just not sure ???
Chotzey is offline   Reply With QuoteReply With Quote

advertisement
Old 12-31-2009, 05:43 PM #2
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

Your symptoms are classic carpal tunnel. I'd get a new doctor.

Fibro is a condition of pain perception in the brain. It is like minor pain is amplified to higher levels. I have never heard of numbness.

I had carpal tunnel really severely when I was pregnant. It resolved 80% after delivery of my son. But my EMG showed 80% loss of function. Another thing that causes carpal tunnel is hypothyroidism.

I think it is not fair or accurate to blame everything on one diagnosis. People can have multiple problems.

Have you tried putting ice on your wrist? If there is swelling there it will go down, and your fingers may feel better the next day.

I'd also check you B12 levels in the blood. And if below 400-500 I'd take a supplement. Also get the Vit D tested. This is new information and many people with neuro problems are showing up on these boards with very low levels of Vit D.

I'd suggest you visit our Vitamin forum and click on the saved links in the stickies at the top of the page. Alot of useful information there.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
Old 12-31-2009, 05:52 PM #3
Chotzey Chotzey is offline
Junior Member
 
Join Date: Dec 2009
Posts: 6
10 yr Member
Chotzey Chotzey is offline
Junior Member
 
Join Date: Dec 2009
Posts: 6
10 yr Member
Default

I have already seen a hand specialists and been checked for carpal tunnel..I do not have that. I have also been tested for vit deficiences. When I touch or rub my hand it is numb and feels like electrical shocks along w/my left foot on the side of the little toes. I have been to neuro-surgeon, who referred me to neurologists and they are referring to rheum. This has been going on for almost a year now. Thanks for your comment and have a Happy and Blessed New Year !!!
Chotzey is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
mrsD (12-31-2009)
Old 01-08-2010, 05:10 PM #4
tamiloo's Avatar
tamiloo tamiloo is offline
Grand Magnate
 
Join Date: Oct 2006
Location: Northern Utah
Posts: 3,465
15 yr Member
tamiloo tamiloo is offline
Grand Magnate
tamiloo's Avatar
 
Join Date: Oct 2006
Location: Northern Utah
Posts: 3,465
15 yr Member
Default

I do have numbness in my toes on both feet. The bottoms of both feet feel strange. When I put my shoes on it feels like something is in my shoe...take the shoe off and socks and I find nothing. I was diagnosed with fibro in 1990 but had symptoms since the 70's but didn't know why I felt the way I did.

I've had five back surgeries which could also have caused my numbness....but I really think it is the fibro...surgeon feels it is the fibro too.

__________________
My best friends live in my computer....
.
Suffered with back problems since birth...7 back surgeries to date, the last one being on 5/13/2015. Fibromyalgia, PTSD, Chronic Pain

“Being my sweethearts full-time care partner, I have to remind myself, when some well-meaning friend or relative questions my methods or motives, that I know more than they do because I Live this life 24/7, and they only come for short visits.” Tamiloo


.
Gotta love my Olhipie! Dx'd RRMS 1986, SPMS 2004

.
Watch my Olhipie Skiing....

.
tamiloo is offline   Reply With QuoteReply With Quote
Old 01-31-2010, 03:34 PM #5
Feel the Burn's Avatar
Feel the Burn Feel the Burn is offline
Member
 
Join Date: Jan 2010
Posts: 152
10 yr Member
Feel the Burn Feel the Burn is offline
Member
Feel the Burn's Avatar
 
Join Date: Jan 2010
Posts: 152
10 yr Member
Default

When you hear a doctor say,, it might be part of this or part of that,, BEWARE,, Since having a DX of sjygrons and fibro,, every symptom is part of SS or Fibro,, in there minds,, if you feel its not right, it probably isnt,, your the one in misery,, always remember that,, they are not the ones suffereing,, push them to look further or get a new neuro,, you wouldnt go back to a mechanic if he cant fix your car right would you?
Feel the Burn is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
tamiloo (04-26-2010)
Old 02-03-2010, 07:49 PM #6
Dmom3005 Dmom3005 is offline
Legendary
 
Join Date: Aug 2006
Location: Indiana
Posts: 13,019
15 yr Member
Dmom3005 Dmom3005 is offline
Legendary
 
Join Date: Aug 2006
Location: Indiana
Posts: 13,019
15 yr Member
Default

I also have numbness with fibro. But I also have arthritis.

Donna
Dmom3005 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
tamiloo (04-26-2010)
Old 02-25-2010, 12:55 PM #7
numbum46 numbum46 is offline
Junior Member
 
Join Date: Mar 2008
Location: Southern Arizona
Posts: 16
15 yr Member
numbum46 numbum46 is offline
Junior Member
 
Join Date: Mar 2008
Location: Southern Arizona
Posts: 16
15 yr Member
Default

i was diagnosed with fibro in '95 but have had it much longer. i also have numbness and tingling in my feet and hands and sometimes in my limbs as well. I have it on both sides, and it comes and goes. I have arthritis also(osteo). The neurologists don't know why I have the "neuropathy" they checked for MS lesions several years back and found nothing. some family docs have said its the fibro. Who knows? They just don't knwo enough about this stuff yet. I also have seizures that they haven't found a cause. i have had them since I was 12. I think at this time (or really several years ago) they(neurologists) decided they were non epileptic seizures. They only showed up on one EEG in my life and that was when I was 13. I have been on and off seizure meds since I was 12. I do currently take neurontin and cymbalta and I feel they both help with the neuropathy pain.

Sara
numbum46 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
tamiloo (04-26-2010)
Old 02-26-2010, 09:20 AM #8
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

Hello Sara....

Since you have been taking antiseizure drugs for a long time, I'd suggest you get a Vit D test and see if you are low in this.
Most antiseizure drugs deplete Vit D and calcium.

I'd also get tested for B12 since you have the neuropathy symptoms. (get your results and they should be 400 or above--do not accept "normal" from your doctor as many doctors think normal can be in the 200's etc--using antequated lab ranges).

Fixing these two things if you are low, may really help your comfort levels.

Here is a new medical video explaining the critical importance of Vit D today, based on new research (your doctor may be behind the times on this)

http://www.youtube.com/watch?v=TQ-qekFoi-o

This website has good information also for you to read:
http://www.grassrootshealth.net/

I have other threads on the Peripheral Neuropathy forum and Vitamin forum that may help you.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
tamiloo (05-29-2010)
Old 02-26-2010, 10:43 AM #9
numbum46 numbum46 is offline
Junior Member
 
Join Date: Mar 2008
Location: Southern Arizona
Posts: 16
15 yr Member
numbum46 numbum46 is offline
Junior Member
 
Join Date: Mar 2008
Location: Southern Arizona
Posts: 16
15 yr Member
Smile

Hi Mrs.D,

I did just get my vit. D levels checked among many other things and they are low(17). The doc wants me to take 5000mgs. of Vit. D a day and said it will take a long time to get the levels up. I am also low in ferritin (9) I do have RLS and have been low with my ferritin since they first checked it back in '99. I was taking iron supplements for many years but was only aqble to ge the ferritin levels up to 20. Of course they say that is the beginning of "normal" but I know for RLs the desired level is 50. I have been off iron for a few years. So, back on it I guess. I need to get to the health food store to get a good brand of ferrous gluconate. But, he only wants me to take one a day as my hemoglobin etc. are normal. I was taking mirapex for the RLS for years but have been able to get off of it by taking magnesium supplements.
I also do have vit. B12 sublingual supplements to take as I also have trigeminal neuropathy that I got after a herpes outbreak on my mouth a few years back. I had a different doc then and she was more into natural methods and using supplements. so, I do go by what she said for the B12. But, i'm not sure if I have ever been tested for it. I was tested for my cortisol levels and adrenal function with this other doc a few years back and that was also found to be quite low. I was put on oral hydrocortisone for abut 6 months but she didn't want me on it for any longer than that. I feel it did help but, I have such "adrenal fatigue" that isn't being addressed by my currant doc who is very traditional. I am in the process of moving though so will be looking for a new doc and will hopefully find one that understands all of this. Not easy to find. I have a very bad case of FMS, and in the past few years have been taking narcotics for the pain which in my case really does help. I went for years with nothing more than ibuprofen or tylenol and would literally be writhing in pain. It was FMS stuff and arthritis as well as peripheral neuropathy with the burning and stabbing pains in my extremities. It was horrible. The fatigue is also very extreme and has been since the diagnosis although I have had a couple of semi-remission states where I was more functional. Stress is the worst culprit for my flaring and it doesn't matter if it is good stress or bad stress. I usually spend about 5 hours average in bed during the day but sometimes much more.

I will look at the vit. forum and will look at your links as well. thanks for the help!

Sara
numbum46 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
mrsD (02-26-2010), tamiloo (04-26-2010)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Secondary Fibro? Fibro-like Symptoms? Idealist Fibromyalgia and Chronic Fatigue 19 09-09-2012 06:02 PM
ms and fibro too? any others? peachyplane Multiple Sclerosis 7 07-10-2008 02:11 PM
Fibro and the Flu DaDiva Fibromyalgia and Chronic Fatigue 4 04-01-2008 02:06 PM
Fibro and CFS or something else? hurtsobad73 Fibromyalgia and Chronic Fatigue 3 02-12-2008 05:20 AM
Fibro From PN ?? nide44 Peripheral Neuropathy 16 02-05-2008 11:18 AM


All times are GMT -5. The time now is 06:23 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.