Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS).


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Old 01-23-2007, 03:45 AM #1
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Default Can anyone recommend a good book on Fibro?

I have seen several books on Fibro, I am wondering if there is one in particular that any of you would recommend?
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Old 01-23-2007, 09:40 AM #2
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The best fibro book (most people call it the "fibro bible") is a book that is written by Devin Starlanyl called -
Fibromyalgia and Chronic Myofascial Pain: A Survival Manual (2nd Edition)

Here is a link to the book on Amazon-
http://www.amazon.com/exec/obidos/AS...ibromyaandcmA/

There are a LOT of books out there about fibro, and in my opinion at least 85% of the books are full of junk and false statements and incorrect info about fibro.

Devin Starlanyl's book is the only one I have ever read that is completely accurate and is actually helpful for understanding fibro and learning how treat and manage fibro.

I hope that helps
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Old 01-24-2007, 07:59 AM #3
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If Liz hadn't already suggested the book I would have done so myself. I call it the FM Bible.
It should be easy to find at any bookstore and is at any book website.
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Diagnoses: FM, Sciatica, Rosacea, Piriformis Syndrome, SI joint disfunction, Joint Facet Syndrome L3-L5, Pinched Nerve (somewhere on the left side), Depression, Anxiety and Bipolar II

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Old 01-26-2007, 10:21 PM #4
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I third the motion. Devin Starlanyl's book is nearly a must for people with fibro. She also has a webpage where you can sample portions of her writing and get answers to some frequently asked questions.
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Old 01-30-2007, 04:21 AM #5
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Thank you so much. I wanted to make sure I got a good one, and I figured you guys would know. I will definately pick up a copy of it!
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Old 02-05-2007, 12:56 PM #6
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The best book I found was called" What your Dr. may not tell you about Fibromyalgia. I think it's by Devin Starlyndl. It is the best book I have seen. And If you can't afford to buy it the library have it or can get it for you to read.

Ada

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Old 02-06-2007, 02:09 AM #7
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The book is by a doctor named Robert Bennett. He is located in Oregon. I read that book a long time ago and I found it more depressing than informative. Devin Starlanyl's book is much better and more informative than Dr. Bennett's.
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Enjoy when you can, and endure when you must. -- Goethe

Diagnoses: FM, Sciatica, Rosacea, Piriformis Syndrome, SI joint disfunction, Joint Facet Syndrome L3-L5, Pinched Nerve (somewhere on the left side), Depression, Anxiety and Bipolar II

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Old 02-19-2007, 02:25 PM #8
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My favorite books are by Jacob Teitelbaum, MD : Pain Free 1 - 2 - 3 and From Fatigued to Fantastic Dr. T. is himself a former fibro sufferer, conducts research into effective treatments for fibro, and has recently been appointed medical director of Fibro & Fatigue Centers.

What I like second-best about Teitelbaum's books is that they are a gold mine of information & thoughtful commentary on the whole gamut of treatment options for fibro: medical Rx, complementary & alternative treatments, as well as self-help treatment.

Since I found that one-size-fits-all approaches weren't helpful for my fibro, I really appreciate a doc who admits both the inadequacy of conventional medicine in some cases, as well as the superiority of CAM in others.

What I like most about these books is that they have been extremely helpful to me, as well as to friends with fibro who have read them. Even if a person is flat broke, without any med insurance, there are tips in these books that are likely to be helpful. In part as a result of things I've read, my fibro pain is much reduced, my flares less frequent & less severe.

These books are also available at many public libraries. I also liked the Starlanyl book, however I found more personal benefit from the Teitelbaum books.

Best wishes.
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Old 02-21-2007, 04:43 PM #9
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Default Very frustrated

I am very frustrated with the med trials.

Here is what I have tried so far:

Plaquenil (extreme personality changes)
Neurontin (depression - however is WAS working for the pain)
Lyrica (sped up my nervous system - made me feel horrible! and don't even get me started on the withdrawal)
Prednisone (extreme agitation)


My doc says I only have a few options left. Morphine sulfate (which I am afraid to become addicted to) or Methotrexate (afraid of the side effects).

Is he right? Are these really my only options? Or do I need to consider finding another doctor? He seems to be getting frustrated with me in that I am having problems with these meds. He doesn't seem to understand that these meds interfere with my Bipolar meds and cause mood changes.

Any ideas you guys might have for me?
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Old 02-21-2007, 04:43 PM #10
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Sorry, didn't mean to post this here, was starting a new post!
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