Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS).


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Old 05-06-2010, 05:32 PM #1
perfectlypeg perfectlypeg is offline
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Join Date: May 2010
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perfectlypeg perfectlypeg is offline
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Join Date: May 2010
Posts: 9
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Default Possible Fibromyalgia treatment?

Greetings,
I am new here and might not fit into the correct catagory but wanted to share some hope for other fibro-friends.
I had a serious case of fibromyalgia with over 43 points of pain that would set off a migratory pain session that could make a grown man cry. A grown woman too. I didn't take the medications that seem to be prescribed recently but did take considerable pain meds as well as facet injections. I do not know how fibromyalgia is approached now but back in the early 2000's I was told that most disease processes will accompany fibro. I have several chronic conditions including Variable Immune Deficiency, Chronic Lyme, Endocrine deficiency of both adrenal and pituitary glands and Central Sleep Apnea.
Anyway.....to my news...
Several years ago, 2006 to be exact, I participated in a year long, 3x weekly, Hyperbaric Oxygen protocol for the Lyme Disease. I didn't notice the pain changing much in the beginning but around the 6 month mark I noticed that every month I was having left over pain medications. By the end of the year I noticed that I hadn't had a fibromyalgia symptom in a while. I consider my fibromyalgia to be resolved, but I do still occasionally experience pain. It is just from a different source and I can specifically pin point where the pain originates. Whereas the fibromyalgia always seemed to have a mind of its own which was so frustrating, never knowing where it would go next.
Well, I still have the lyme disease but the HBOT wasn't a complete waste of time as I believe that it did take care of the fibromyalgia. It wasn't always easy and eventually I stopped the sessions as I needed to take other medical protocols and the HBOT is time consuming.
I did read in some publication that medical pactitioners should consider the lack of oxygenated cells as problematic in fibromyalgia. I am sure that some will just conclude that other things were in play and I cannot contest that notion. But in the end, it is what we feel that is important. And until medicine comes up with definitive cures instead of just symptom management, then we should be able to try anything we feel would be effective. Luckily my insurance covered the HBOT or I probably wouldn't have been able to use it for so long.

I hope this information in some form helps someone.
Regards,
Perfectly Peg
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Dmom3005 (05-07-2010), Doody (05-16-2010), Megan (05-10-2010)

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Old 05-07-2010, 06:24 PM #2
Dmom3005 Dmom3005 is offline
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Default

Quote:
Originally Posted by perfectlypeg View Post
Greetings,
I am new here and might not fit into the correct catagory but wanted to share some hope for other fibro-friends.
I had a serious case of fibromyalgia with over 43 points of pain that would set off a migratory pain session that could make a grown man cry. A grown woman too. I didn't take the medications that seem to be prescribed recently but did take considerable pain meds as well as facet injections. I do not know how fibromyalgia is approached now but back in the early 2000's I was told that most disease processes will accompany fibro. I have several chronic conditions including Variable Immune Deficiency, Chronic Lyme, Endocrine deficiency of both adrenal and pituitary glands and Central Sleep Apnea.
Anyway.....to my news...
Several years ago, 2006 to be exact, I participated in a year long, 3x weekly, Hyperbaric Oxygen protocol for the Lyme Disease. I didn't notice the pain changing much in the beginning but around the 6 month mark I noticed that every month I was having left over pain medications. By the end of the year I noticed that I hadn't had a fibromyalgia symptom in a while. I consider my fibromyalgia to be resolved, but I do still occasionally experience pain. It is just from a different source and I can specifically pin point where the pain originates. Whereas the fibromyalgia always seemed to have a mind of its own which was so frustrating, never knowing where it would go next.
Well, I still have the lyme disease but the HBOT wasn't a complete waste of time as I believe that it did take care of the fibromyalgia. It wasn't always easy and eventually I stopped the sessions as I needed to take other medical protocols and the HBOT is time consuming.
I did read in some publication that medical pactitioners should consider the lack of oxygenated cells as problematic in fibromyalgia. I am sure that some will just conclude that other things were in play and I cannot contest that notion. But in the end, it is what we feel that is important. And until medicine comes up with definitive cures instead of just symptom management, then we should be able to try anything we feel would be effective. Luckily my insurance covered the HBOT or I probably wouldn't have been able to use it for so long.

I hope this information in some form helps someone.
Regards,
Perfectly Peg

Peg

Thank you for the information. Its not something many of us would not want to give up on trying. Something new.

Donna
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Old 05-10-2010, 08:15 AM #3
Megan Megan is offline
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Default HBOT and Fibro symptoms!

Just a question Peg!

Did you have Autonomic symptoms when you had your Fibromyalgia? If so, did they resolve with HBOT?

Thanks

Megan
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