Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS).


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Old 05-10-2010, 01:48 PM #1
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Default April showers bring May flares?

I have been battling major pain the last few weeks more than usual. And it's like...it just hits! Wake up in the early morning and every fiber of your being just aches and throbs and hurts. I've had quite a few days when absolutely nothing has helped.

Well, one day I had relief when my son-in-law gave me 2 of his percodans from his recent ear surgery. Everything quit hurting except for the very tips of my knees! (What is it with knee pain never going away???) I was so greatful.

But that was that day. Vicodin does nothing unless I take 2 at a time, makes me really sleepy, and isn't effective enough..

My doc suggested I try Savella and my response is no way. I refuse to take anything that makes me gain weight ever again. Wait, what's the other problem with Savella? Oh, I've heard a lot of talk about high blood pressure. I don't need that either!

Did I mention I can't think or talk coherently either? LOL! I feel like I've lost whatever memory I had left! I just look at people trying to think of words and feel like an idiot. Does anyone else in here have the fibro fog problem? Seriously, sitting at work and dealing with higher education folks...I feel like a complete idiot most days when I try to carry on a conversation and halt constantly trying to think of the correct words. Geesh!

I just wanna go to sleep for a long time! Wake me when it's over!
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Old 05-10-2010, 05:37 PM #2
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me me me me me me!!! Geesh, what a whiney post. I bet a lot of you are having some major spring flares as well. I'd love to hear how you all are doing as well. After all these years with fibro, you'd think I'd get used to the unexpected pain coming out of nowhere at any time!

((hugs))
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Old 05-12-2010, 07:29 PM #3
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You are right...there are many reading this thread who are suffering with all you described.

My spring has been no fun either I have no idea what to do...I have to do what I can to keep up with the house work before the house gets condemned...just kidding. I just know that years ago I could work and keep up with the house with fibro to boot!

I have a couple of trigger points that are just killing...elbow...inside. It hurts just to brush my hands over them. I'm wearing long sleeves so they don't rub against me. I always tell my Olhipie that my skin hurts!

I was trying to find more info about injections...as for you I will not take the drugs they have created for fibro...to many side-effects!


Take care my dear....thanks for starting this thread.
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Old 05-13-2010, 05:17 PM #4
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hi Doody and Tamiloo

I too have been suffering. But I can't tell if its fibro, planters factifus,
or artritus. Or whom there is something else. Oh yes, I can't seem
to get rid of the migraines right now either.

For a while I couldn't get rid of the allergies and asthma, and now its
these. So ugh.

There are a couple of things that are helping me right now.

One is a massage, and I try my best to get one every week.

The next is that I take cymbalta for other issues, but it seems
to be being used for this now. I also take neurotin and zanaflex.

I was already taking zanaflex for tight muscles and it was not
causing problems. And the neurotin has helped all things in my
life.

So much so that when I go back to my pain doctor next month
I'm debating requesting a upping of either my cymbalta which
isn't something he prescribes. Or the neurotin.

Honestly I'm so glad someone is in here writing again.

Donna
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Old 05-16-2010, 03:54 PM #5
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Gosh, thanks, I just wondered if anybody else has seen an increase in the pain level!

And Ms. Tammi, I tell you what. Yes, it doesn't seem that long ago that I could keep up with my house. Now, it takes a tremendous amount of effort just to keep up with dishes. Wait, I don't! I used to spend all weekend cleaning. Now...well, I don't.

I also hear you about the skin. Seriously, I can't be touched anywhere that isn't tender. Handshakes even hurt.

DMom, my arthritis in my hands has flared as well and that's extremely interesting to me about the migraines as well! I haven't had emergency room migraines, but lots of what I call the milder ones!

I go to a massage therapist every other week and I know she helps me. She's very well trained. It just costs so darned much, and my job has been cut to 3/4 time starting July 1. Bless her heart, she said that I could spend time helping her at her office in trade for every other visit!

I have tried Cymbalta and it DID help with the fibro. That was so evident when I quit taking the Cymbalta. However, it was also a period in my life when I was overwhelmed with suicidal ideation. Very overwhelmed. Every now and then I still get that way but nothing like I did when I was taking that!

I think I'll ask my doc again about muscle relaxants. I never really did give those a chance, I don't think. I just need one that doesn't make me tired.

Thanks you guys, and I'm sorry for your pain!
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Old 05-16-2010, 04:45 PM #6
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Doody

I have Derrick to thank lots of times for putting the dishes in the dish washer.
Thank fully.

I can't seem to clean the house either. I have to find a way to though.

Derrick is getting ready to graduate in 2 or 3 weeks. I have to figure
out what we are going to do. Its a big thing. Ugh.

Now I have to do this. I have to make my husband get started. He is
a good cleaner. And has promised, but that is hard to do.

Donna
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Old 05-28-2010, 10:26 AM #7
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Smile Hi!

Quote:
Originally Posted by Dmom3005 View Post
Doody

I have Derrick to thank lots of times for putting the dishes in the dish washer.
Thank fully.

I can't seem to clean the house either. I have to find a way to though.

Derrick is getting ready to graduate in 2 or 3 weeks. I have to figure
out what we are going to do. Its a big thing. Ugh.

Now I have to do this. I have to make my husband get started. He is
a good cleaner. And has promised, but that is hard to do.

Donna
Hi! I'm new to the forums and truly glad to have found you!
I was diagnosed with fibro 16+ years ago. I also have sleep apnea, depression, thyroid issues, osteoarthritis. Such fun!
I live in south Florida on a small horse ranch. Summers here are absolute torture. Aside from the heat and humidity, we have daily sea breeze fronts. The onshore cooler air from the ocean collides with the offshore hot air of inland and creates a drop in pressure and thunderstorms most every afternoon, akin to the cold fronts attached to winter storms. So most afternoons are accompanied by twinges in my fingers, aches in my body. We truly are affected by the weather!
Anyway, delighted to meet you all!
Sue
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Old 06-03-2010, 11:55 AM #8
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Well, its raining again...beautiful green...however, did I say its raining again? Went to see the Rheumy yesterday and I think I hate him!! Got the Fibro Fog really bad...hate it! Thank goodness I have a very patient family, they just think I'm going crazy...not really...

I did over do yesterday with my Olhipie...went bike riding, adaptive...I think it was worth it to see the smile on his face because he hadn't rode a bike in probably close to 30 years.

Well, I guess I should load up on something to take the edge off...Olhipie is stirring!
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Old 06-06-2010, 11:04 AM #9
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Quote:
Originally Posted by Doody View Post
...My doc suggested I try Savella and my response is no way. I refuse to take anything that makes me gain weight ever again. Wait, what's the other problem with Savella? Oh, I've heard a lot of talk about high blood pressure. I don't need that either!...
I don't manage fibro drugs too well, i.e., I have every conceivable side effect. But I was prescribed Savella and so far it seems to be helping. I was not aware it causes weight gain. With me it is the opposite - I am loosing the Neurontin weight quite rapidly since taking Savella. BP is fine so far and I suffer from autonomic neuropathy so it could potentially be a problem.

Everyone is individual in their reactions to meds. Perhaps the Savella would help. Maybe worth a try if the narcotics alone are not working.

Mere
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