Hi I am Mere. I usually post at peripheral neuropathy, but also lurk here. I have suffered fibromyalgia, arthritis and peripheral/autonomic neuropathy for close to 18 years after suffering a monoclonal viral infection.

I have tried just about everything out there at least once and in some cases twice. It is well known that those of us with fMS do not tolerate meds too well.

I am now trying Savella. It seems to be helping and so far and I am tolerating it. Neurontin also helped but I was unable to take more than 600 mg as I would develop pitted edema. I needed the higher dosage of at least 900 mg in order to get any pain relieving benefit. I was unable to tolerate Cymbalta or Lyrica. Tamiloo, what side effects did you suffer with Savella?

I am sorry you are so sick right now. It can all feel so overwhelming at times...Hope the better comes soon...

Mere