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Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS). |
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06-01-2010, 12:27 PM | #1 | |||
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Grand Magnate
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I see my Rheumy tomorrow I have tons of questions. I am in so much pain, fatigue and all that fibro has to offer.
I'm sure there have been other threads asking the same question...don't have the time or strength to search...So I'm asking the question again... What works for you? What it does for you? If it didn't work and why...side effects. I tried Cymbalta a few years ago, did bad with the side effects. Tried Savella a year ago and couldn't do it... Please if you have time to share I would appreciate it greatly!!
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My best friends live in my computer.... . Suffered with back problems since birth...7 back surgeries to date, the last one being on 5/13/2015. Fibromyalgia, PTSD, Chronic Pain “Being my sweethearts full-time care partner, I have to remind myself, when some well-meaning friend or relative questions my methods or motives, that I know more than they do because I Live this life 24/7, and they only come for short visits.” Tamiloo . Gotta love my Olhipie! Dx'd RRMS 1986, SPMS 2004 . Watch my Olhipie Skiing.... . |
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06-01-2010, 12:33 PM | #2 | |||
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Grand Magnate
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I'm so sorry to hear the Fibro is being so painful for you right ow.
For me, Gabapentin is doing ok for me so far. I'm one of the few that don't have bad side effects with it. I take 900mgs at night to help me sleep (which really helps), and can take up to two additional 300mgs during the day if I need it. I've heard LDN might also have some benefits for Fibro patients, and I plan on asking my Rhuemy about that when I see him this week. You may wish to ask him about that as a possibility. Hope your doc can help you out. I know how bad this stuff can get and pray you find some relief soon!
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Strength comes in all types of packages, even those you don't expect Dx'd MS 2007, Fibro 2009 |
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"Thanks for this!" says: | tamiloo (06-01-2010) |
06-01-2010, 12:47 PM | #3 | |||
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Grand Magnate
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Thanks...I do take the Gabapentin, but only in small doses...gives me tremors and causes me to have problems with talking...can't grab the words and stutter a lot. I only take one 300mg at bedtime with the option of taking a 100 mg pill up to three times a day. It does help somewhat if I can endure the speech problems.
LDN..have heard a lot of folks taking it...I'll have to read up on it... Thanks again!
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My best friends live in my computer.... . Suffered with back problems since birth...7 back surgeries to date, the last one being on 5/13/2015. Fibromyalgia, PTSD, Chronic Pain “Being my sweethearts full-time care partner, I have to remind myself, when some well-meaning friend or relative questions my methods or motives, that I know more than they do because I Live this life 24/7, and they only come for short visits.” Tamiloo . Gotta love my Olhipie! Dx'd RRMS 1986, SPMS 2004 . Watch my Olhipie Skiing.... . |
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06-06-2010, 10:50 AM | #4 | |||
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Member
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Hi I am Mere. I usually post at peripheral neuropathy, but also lurk here. I have suffered fibromyalgia, arthritis and peripheral/autonomic neuropathy for close to 18 years after suffering a monoclonal viral infection.
I have tried just about everything out there at least once and in some cases twice. It is well known that those of us with fMS do not tolerate meds too well. I am now trying Savella. It seems to be helping and so far and I am tolerating it. Neurontin also helped but I was unable to take more than 600 mg as I would develop pitted edema. I needed the higher dosage of at least 900 mg in order to get any pain relieving benefit. I was unable to tolerate Cymbalta or Lyrica. Tamiloo, what side effects did you suffer with Savella? I am sorry you are so sick right now. It can all feel so overwhelming at times...Hope the better comes soon... Mere |
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"Thanks for this!" says: | tamiloo (06-06-2010) |
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