Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS).


advertisement
Reply
 
Thread Tools Display Modes
Old 03-17-2011, 07:15 PM #1
Doody's Avatar
Doody Doody is offline
Grand Magnate
 
Join Date: Aug 2006
Location: Iowa
Posts: 4,582
10 yr Member
Doody Doody is offline
Grand Magnate
Doody's Avatar
 
Join Date: Aug 2006
Location: Iowa
Posts: 4,582
10 yr Member
Default D-Ribose

In another thread in this forum, MrsD mentioned taking D-Ribose with a link to another thread in which she was posting updates while taking D-Ribose.

I was so intrigued with her good reaction to it, I bought a jar myself. Knock on wood....it really has been helping with energy and pain levels!

Just today on Facebook there was a post from the Fibromyalgia & Fatigue Centers talking about D-Ribose. I thought you all would be interested.

http://www.fibroandfatigue.com/the-a...-d-ribose.html
Doody is offline   Reply With QuoteReply With Quote

advertisement
Old 03-18-2011, 07:32 AM #2
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
10 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
10 yr Member
Wink

Thanks for the link. I have always had sore muscles, poor response to exercise and a "suspected" fibro diagnosis. But I just am not severe enough to be considered a Fibro patient.

I think the Ribose is good for anyone suspected of low mitochondrial functions...and PN and some other chronic pain states. Some drugs damage mitochondria...like statins do for lowering cholesterol. So many people may be developing low functions, where the ribose may help. Not just the Fibro patients.

I found that I do well on lower doses after 6mos of 7.5grams a day. In fact, I don't use it every day anymore. I think this summer I will however, being more active.

There are researchers who say simple aging results in low mito functions, and there are supplements for this, like Juvenon.
If you go to Juvenon.com you'll see graphics and papers about using acetyl carnitine and lipoic acid as mito supports. Both of these also help PN, it turns out.

That link I gave you to my thread has some information for diabetics. I'd like to expand on that. If any here try the ribose, be aware that some glucose monitoring meters, would read its presence and give a false high reading. The only meter I know now that is unaffected by this is One Touch. This is because the other meters use a different chemical to read the glucose. (it includes all sugars, even those in artificial sweeteners). The One Touch only reads glucose in the blood.
This post has a link that describes this chemistry in more detail.

http://neurotalk.psychcentral.com/post748576-2.html

Ribose itself does not raise glucose and has shown no effect on diabetics in gram ranges of 10gr/day.

I really don't think really high doses are necessary, but to start when you may be really low, you need to be patient. I found this a very SLOW supplement to show effects. But once it gets rolling you do feel so much better if you need it. You should know by the end of the first tub if you buy the 8oz one.

It also helped me with sleeping problems.

Thanks for the link!
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
Old 03-18-2011, 12:35 PM #3
Doody's Avatar
Doody Doody is offline
Grand Magnate
 
Join Date: Aug 2006
Location: Iowa
Posts: 4,582
10 yr Member
Doody Doody is offline
Grand Magnate
Doody's Avatar
 
Join Date: Aug 2006
Location: Iowa
Posts: 4,582
10 yr Member
Default

Thanks MrsD!!! Like any supplements or medicines, I started on a low dose of it and yes, it did take awhile to notice results. And I've only been doing one scoop a day. I'm planning to up that to 2 scoops for awhile.

I love that you can't even taste it. I put mine in my morning juice and you'd never know the D-Ribose is int he juice. No taste! I remember you commenting about the smell. Guess my smeller is different because the smell doesn't bother me one way or another. The first time I opened the jar I prepared myself to be disgusted with the smell, LOL!

Thank you for the other critical information. I think this stuff is simply amazing.
Doody is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dmom3005 (06-25-2011)
Old 03-18-2011, 12:43 PM #4
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
10 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
10 yr Member
Lightbulb

The odor is not "disgusting"....it is just unpleasant to me... like a burnt food item. (unappetizing). I don't like burnt food.

I put mine just in water, and it is just faintly sweet. Very easy, I agree.

I am glad it is working for you. I sort of feel like caffeine without the tension, etc. It is a gentle but positive "lift". It also helps me sleep.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dmom3005 (06-25-2011), Doody (03-18-2011), Nervous (11-19-2015)
Old 03-18-2011, 12:47 PM #5
Doody's Avatar
Doody Doody is offline
Grand Magnate
 
Join Date: Aug 2006
Location: Iowa
Posts: 4,582
10 yr Member
Doody Doody is offline
Grand Magnate
Doody's Avatar
 
Join Date: Aug 2006
Location: Iowa
Posts: 4,582
10 yr Member
Default

I stand corrected. I'm not sure about the helping with my sleep yet. I've been having a bit of a stretch of problems with sleeping. But then...that could be for so many other reasons.

And yes, you're right. It is just a gentle lift. Like...you are almost a normal person with energy and no pain!
Doody is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dmom3005 (06-25-2011), mrsD (03-18-2011)
Old 11-19-2015, 02:05 PM #6
caroline2 caroline2 is offline
Magnate
 
Join Date: May 2015
Location: Santa Monica, CA
Posts: 2,810
5 yr Member
caroline2 caroline2 is offline
Magnate
 
Join Date: May 2015
Location: Santa Monica, CA
Posts: 2,810
5 yr Member
Default

Oh I see there is an earlier posting on DRibose. I'm doing more research since I've been out of it recently and "think" I was feeling worse. Back on it thankfully. I try various brands and need to keep within my so called budget. I've found info on it's effects for pain in general too. I've been taking it off and on since about 1999 but take it faithfully at this time.
__________________
OA onset at 18, now 81. Fibro onset at 61, Hip Replacement "mess" 72 (nerve damage, IT band damage, shorter leg). Otherwise, pretty good health.

Most important supplement: grape seed extract
caroline2 is offline   Reply With QuoteReply With Quote
Old 08-18-2020, 12:56 PM #7
caroline2 caroline2 is offline
Magnate
 
Join Date: May 2015
Location: Santa Monica, CA
Posts: 2,810
5 yr Member
caroline2 caroline2 is offline
Magnate
 
Join Date: May 2015
Location: Santa Monica, CA
Posts: 2,810
5 yr Member
Default

I was off it for some time and now back on and HOPE it will help me walk better. A fellow on an FM/CFS group said he walks much better since taking 2-3 rounded tsps daily....I'm upping my dose now and will buy the bulk product from amazon or ebay soon enough to save $$$,

5 Emerging Benefits of D-Ribose
__________________
OA onset at 18, now 81. Fibro onset at 61, Hip Replacement "mess" 72 (nerve damage, IT band damage, shorter leg). Otherwise, pretty good health.

Most important supplement: grape seed extract
caroline2 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Nervous (08-18-2020)
Old 08-18-2020, 03:36 PM #8
Nervous Nervous is offline
Member
 
Join Date: Jul 2010
Posts: 308
10 yr Member
Nervous Nervous is offline
Member
 
Join Date: Jul 2010
Posts: 308
10 yr Member
Default

@caroline2: Please post a link with the best price that you find. I shop on Vitacost and Amazon. Not so much on eBay. Also started using nuts.com for açaí.

I haven't used D-ribose in a long time. Maybe I wasn't using enough to reach an effective dose. My neuropathy is so bad this summer, I don't even want to get out of bed.

Hope everyone here is getting along.
Nervous is offline   Reply With QuoteReply With Quote
Old 08-18-2020, 04:22 PM #9
caroline2 caroline2 is offline
Magnate
 
Join Date: May 2015
Location: Santa Monica, CA
Posts: 2,810
5 yr Member
caroline2 caroline2 is offline
Magnate
 
Join Date: May 2015
Location: Santa Monica, CA
Posts: 2,810
5 yr Member
Default

I just purchased the 500grams of bulk on ebay for 26.42...amazon has same deal and if you can get within that range, it's a good deal. It's the bulk powder.
__________________
OA onset at 18, now 81. Fibro onset at 61, Hip Replacement "mess" 72 (nerve damage, IT band damage, shorter leg). Otherwise, pretty good health.

Most important supplement: grape seed extract
caroline2 is offline   Reply With QuoteReply With Quote
Old 08-18-2020, 06:43 PM #10
Nervous Nervous is offline
Member
 
Join Date: Jul 2010
Posts: 308
10 yr Member
Nervous Nervous is offline
Member
 
Join Date: Jul 2010
Posts: 308
10 yr Member
Default

^^Excellent! One pound on Vitacost is approx. $42.00. I'll look on Amazon (even though I hate Amazon).
Nervous is offline   Reply With QuoteReply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
d-ribose cat265 Vitamins, Nutrients, Herbs and Supplements 1 10-21-2009 09:31 AM


All times are GMT -5. The time now is 04:37 AM.

Powered by vBulletin • Copyright ©2000 - 2021, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2021 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.