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Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS).

Do yu think I have Fibro

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Old 03-22-2011, 10:56 AM   #1
razzle51
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Default Do yu think I have Fibro

symptoms

achy legs , numbness and tingling legs , numb knee caps

achy arms and burning from elbow down

NS says I do have fibro. I dont think so .
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Old 03-22-2011, 11:47 AM   #2
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We can't diagnose you over the internet, but there are some great fibro sites to visit listed in the sticky thread at the top of the Forum page.

My fav is the mayo clinic - http://www.mayoclinic.com/health/fibromyalgia/DS00079

From there, you can see the list of symptoms and trigger points associated with fibromyalgia and have a clearer understanding of what fibro is about.

The symptoms you list could be associated with fibro, but they could be something else as well. Why do you think that your NS is wrong in their dx of fibro?

Always,
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Old 03-22-2011, 02:40 PM   #3
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The conferences I have been attending..for the past few years, have new ideas and results from research.

Here is the thread I made from the first one I went to.

Dr. Clauw stated back then that trigger points were being dropped as a diagnostic criteria.

http://neurotalk.psychcentral.com/thread20030.html
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Old 03-22-2011, 10:52 PM   #4
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Trigger points or tender points?

That is the question ...

or do neither one matter for fibro??

Some sites still mention tender points and some suggest they are trigger points , but i think they are separate things, myself..

I have a few of the tender point locations as shown on the big name medical websites in the fibro sections - hopefully they are kept up to date...

I for sure get trigger points that can be resolved by the pressure techniques.

my tender points - no change at all

but I don't have any of the main sx of fibro - no fatigue, no all over pain .
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Old 03-23-2011, 02:21 AM   #5
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Dr. Clauw's didn't mention "tender points" only trigger points in his lecture on Fibro.

His lecture was geared to the doctors in the audience.
I think it will take alot of time, to turn around the fibro diagnosis.
Many fibro patients still take opiates, and he also said that opiated don't work well for fibro either.

Here is what I found on the definitions of these terms:
http://docs.google.com/viewer?a=v&q=...FgGa3R3TDMwf4g

@Razzle--- your symptoms seem more like a neuropathy to me.
Fibro is often labeled when doctors don't understand the pain situation the patient is describing. I think this label is often misapplied.
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Old 03-23-2011, 12:32 PM   #6
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I need to copy that link to the TOS forum, I have her website link in the stickys there but maybe seeing the TrP info in this format will help members to understand it better.
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Old 03-24-2011, 09:22 AM   #7
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I have both. Though my doctor and massage therapist both insist that CMP and FMS are the same. Always wondered about that because the TrPs get really bad for me, especially the arms and legs.

I'm going to print that out and show it to my massage therapist and see what she says.

Dysfunction with the fascia affects so many parts of your body because of the connectivity of the fascia throughout your body.
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Old 04-02-2011, 01:39 PM   #8
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Doody
I'd be interested in what your massage therapist has to say.

I have fibro, but at times it seems like other things are going on too.

Right now there are from a car accident.

Donna
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Old 04-02-2011, 01:59 PM   #9
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I would think one of the differences between them might be the extreme fatigue factor.
Does CMP have fatigue as a sx also?

I read up on these back in 04/05 when I was trying to help drs figure out what I had.. but haven't researched on it lately.


I do like Devin J. Starlanyl's site - seems to explain a lot of it logically & clearly.
http://homepages.sover.net/~devstar/define.htm
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Old 04-09-2011, 05:04 AM   #10
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Default fibro

thanks for all the response but I do not have Fibro.
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