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Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS). |
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09-24-2011, 06:01 AM | #1 | |||
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I read everything I can get my hands on about fibro. It seems that many people do better when changing how they eat. Many doctors are now telling fibro patients to go gluten free, some grain free, to see how they do. Getting away from all processed foods often times helps. Do you take B12? Or Vit D?
I just read a good book called, "FibroWHYalgia" by Susan E. Ingebretson. She changed her fibro with diet changes. I have the memory issues, but only intermittently, like names, dates, how to spell a word, and such. I do have the chemical sensitivities, loud noises scare me, movement next to me sets me off...all those, and of course, constant shoulder/neck pain with headache.
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Deb We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right! |
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09-24-2011, 02:05 PM | #2 | ||
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The more reading I do about FMS the more it scares me. I have all the autonomic dysfunction (anhydrosis, mottled skin, migraine, heat/cold intolerance, high heart rate at night, low blood pressure ...) in addition to my cognitive challenges, and, of course, lots of pain and chemical intolerance. I've been having b12 injections for over two years. I think it helps me sleep, but I'm not aware of any other obvious benefit. I take 2000 D a day. As it happens, my naturopath has me on a gluten-free, no dairy diet for a few weeks to see if that helps. We are also trying rhodiola for adrenal support. I have tried many supplements and diet programs. Whatever is happening to me seems to be outside of the diet realm, but, as I said, am trying the gluten free diet again.
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"Thanks for this!" says: | Dmom3005 (10-02-2011) |
08-07-2012, 03:33 PM | #3 | ||
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just my experience...I know others that have gone gluten free and it has changed their lives...so it is to each his own and definitely worth the try... Lisa |
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"Thanks for this!" says: | Dmom3005 (08-12-2012) |
08-12-2012, 07:24 PM | #4 | ||
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Legendary
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I just came back and reread this thread. Shows how much my memory
goes after I go away from here. I forgot all about the coconut oil. I have to get some. Again trying to remember. Donna |
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