Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS).


advertisement
Reply
 
Thread Tools Display Modes
Old 09-24-2011, 06:01 AM #1
darlindeb25's Avatar
darlindeb25 darlindeb25 is offline
Member
 
Join Date: Aug 2006
Posts: 744
15 yr Member
darlindeb25 darlindeb25 is offline
Member
darlindeb25's Avatar
 
Join Date: Aug 2006
Posts: 744
15 yr Member
Default

I read everything I can get my hands on about fibro. It seems that many people do better when changing how they eat. Many doctors are now telling fibro patients to go gluten free, some grain free, to see how they do. Getting away from all processed foods often times helps. Do you take B12? Or Vit D?

I just read a good book called, "FibroWHYalgia" by Susan E. Ingebretson. She changed her fibro with diet changes.

I have the memory issues, but only intermittently, like names, dates, how to spell a word, and such. I do have the chemical sensitivities, loud noises scare me, movement next to me sets me off...all those, and of course, constant shoulder/neck pain with headache.
__________________
Deb

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!
darlindeb25 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
babytoes (06-13-2012), Dmom3005 (10-02-2011)
Old 09-24-2011, 02:05 PM #2
akimbo akimbo is offline
Junior Member
 
Join Date: Aug 2008
Location: Canada
Posts: 24
15 yr Member
akimbo akimbo is offline
Junior Member
 
Join Date: Aug 2008
Location: Canada
Posts: 24
15 yr Member
Default

Quote:
Originally Posted by darlindeb25 View Post
Many doctors are now telling fibro patients to go gluten free, some grain free, to see how they do. Getting away from all processed foods often times helps. Do you take B12? Or Vit D? ...
The more reading I do about FMS the more it scares me. I have all the autonomic dysfunction (anhydrosis, mottled skin, migraine, heat/cold intolerance, high heart rate at night, low blood pressure ...) in addition to my cognitive challenges, and, of course, lots of pain and chemical intolerance. I've been having b12 injections for over two years. I think it helps me sleep, but I'm not aware of any other obvious benefit. I take 2000 D a day. As it happens, my naturopath has me on a gluten-free, no dairy diet for a few weeks to see if that helps. We are also trying rhodiola for adrenal support. I have tried many supplements and diet programs. Whatever is happening to me seems to be outside of the diet realm, but, as I said, am trying the gluten free diet again.
akimbo is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dmom3005 (10-02-2011)
Old 08-07-2012, 03:33 PM #3
Happygeek Happygeek is offline
Junior Member
 
Join Date: Apr 2012
Location: Thousand Oaks, Ca
Posts: 28
10 yr Member
Happygeek Happygeek is offline
Junior Member
 
Join Date: Apr 2012
Location: Thousand Oaks, Ca
Posts: 28
10 yr Member
Default gluten-free

Quote:
Originally Posted by akimbo View Post
The more reading I do about FMS the more it scares me. I have all the autonomic dysfunction (anhydrosis, mottled skin, migraine, heat/cold intolerance, high heart rate at night, low blood pressure ...) in addition to my cognitive challenges, and, of course, lots of pain and chemical intolerance. I've been having b12 injections for over two years. I think it helps me sleep, but I'm not aware of any other obvious benefit. I take 2000 D a day. As it happens, my naturopath has me on a gluten-free, no dairy diet for a few weeks to see if that helps. We are also trying rhodiola for adrenal support. I have tried many supplements and diet programs. Whatever is happening to me seems to be outside of the diet realm, but, as I said, am trying the gluten free diet again.
I went gluten free to see if it affected my health in any way....no difference in my pain, headaches, or IBS...just ended up spending 3x the amount of money on food and gained 10lbs!! I gave it 90 days also...so it was not just a week and then quit!!
just my experience...I know others that have gone gluten free and it has changed their lives...so it is to each his own and definitely worth the try...
Lisa
Happygeek is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dmom3005 (08-12-2012)
Old 08-12-2012, 07:24 PM #4
Dmom3005 Dmom3005 is offline
Legendary
 
Join Date: Aug 2006
Location: Indiana
Posts: 13,019
15 yr Member
Dmom3005 Dmom3005 is offline
Legendary
 
Join Date: Aug 2006
Location: Indiana
Posts: 13,019
15 yr Member
Default

I just came back and reread this thread. Shows how much my memory
goes after I go away from here.

I forgot all about the coconut oil. I have to get some.

Again trying to remember.

Donna
Dmom3005 is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 05:28 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.