I was diagnosed with CRPS 3 years ago and now my PM doctor is thinking it could be fibromyalgia...anyone else have this happen? I am so confused, in so much pain, and just plain tired of not feeling good and not knowing definitively what is wrong with me....
Any input would be appreciated
Lisa (trying to be the "happygeek"!!)

That is confusing. And frustrating! Before I was finally diagnosed with FMS, I was told twice in a couple of months that I had a bad, full body virus and had to wait it out. I was given pain meds, which I was very grateful for!

Went back the 3rd month, crying with pain and was finally sent to a rheumatologist. He diagnosed the fibromyalgia.

Not sure what kind of insurance you have, or how easy your primary doctor is to work with. I would suggest asking for a referral to a rheumy.

Maybe you will see yourself in one of the following links.

This link describes CRPS.
http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0004456/

This link describes fibromyalgia.
http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001463/

Sometimes it is possible to have both conditions, if there isn't a clear distinction of one or the other.

Yes...I am seeing a rheumatologist but can't get in till June 14th....my pain management doctor is great he is just as confused as I am but more than willing to keep me on my prescribed course of meds so there is no concern there. I have seen this rheumatologist at the beginning of my CP journey and since I tested negative for the RA factor she sent me on my way...but now after 3 years of CP and tons of RA and fibro symptoms I am being sent back...the yo yo-ing begins...
On a somewhat happy note...my insurance finally approved Botox for my migraines...and I am getting it done today. So maybe I will have less headaches and look younger for my daughter's wedding in October, lol!
Lisa

That's awesome Lisa! Glad you have an appt with the rheumy and hope you check back with the results of the visit. Wonderful on the Botox. Until I hit menopause, I had horrible migraines since my 20s. The emergency room type migraines. I didn't know Botox could be used for those.

For the migraines I get now on occasion, I try plain aspirin first and when that doesn't work, get out my trusty Imitrex nasal spray.

Anyway, congrats!

I saw my rheumatologist today and she believes that I do have fibromyalgia. I am getting a full blood workup to check for other autoimmune issues. She said I seemed to have a lot of inflamation and she wanted to see what that was all about...anyone else have a problem with imflamation?
THanks for any help
L