Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS).


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Old 10-23-2012, 07:41 PM #1
krysy8 krysy8 is offline
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Arrow hello. im new here.

hello, ive just been dx w Fibromyalgia... so im here to learn from others, hear experiences of others. i had heard of FM before being dxed, and had heard it wasnt real, but never really thought much of it. i had been being treated for chronic lower back pain. Seen a pain specialist, had spinal epideral injections, and a radiofrequency neuropathy, physical therapy and so on. then the pain started to occur in my arms/shoulders/ chest. and this wierd burning feeing near my collar bone.. Not to mention the ongoing extreme tiredness. docs found nothign abnormal in my blood, or xrays. thats when the FM dx came in. i now do definatly believe fm i real and feel lke a jerk for not really believing much in it before! (sorry)

So ive been given meds to help, and just started taking them, litereally today. it sooo confusing all this new stuff. im worried about all the different pills! ive been started on gabapentin 300 mg 3x a day, also etodolac had been added to replace my naproxen ih ave been on for months. Then he said i should take Prilosec to hellp my tummy not get upset. AND lexapro for depression. i think i im only depressed cuz i hurt so much. These meds, well.... this seems like a lot. For pain i have tramadol. I sure hope all this works, an is not going to cause wierd side effects together.

Does it seem like a good starting point?????
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Old 10-24-2012, 10:09 AM #2
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lots of views-no replys!
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Old 10-24-2012, 10:15 AM #3
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Hi and welcome

just wanted to mention that the views you get do not only reflect other members here...many "guests" read the boards as well as the bots from Google and other search engines...and none of them can reply.

You only made your post last night and it may be that none of the other members who also have fibromyalgia or CFS have logged on yet today...so don't lose hope of replies
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Old 10-24-2012, 01:43 PM #4
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Hi Krysy8,

You are correct and the people you listened to are correct. Fibromyalgia is not really anything .....in the sense that nothing in your body is causing you pain. The feeling of pain is real, because your pain nerves are transmitting pain impulses.

Do you believe that the medication you are receiving is a permanent cure? Or are you planning to live the rest of your life dependent on modern pharmaceuticals? Do you think your ancestors lived this way?

Medical science does not recognize a cause of fibromyalgia. Doctors do not know what causes it. That's why most doctors treat fibromyalgia by treating the symptoms, the inflammation and sensation of pain.

You believe that your depression is simply a reaction to your fibromyalgia. That's possible, but it's just as possible that the two conditions represent dual effects of common causes.

You need to look into why some people get nerve demyelination, and how shortages of adenosine and choline cause indiscriminate firing of nerves.

http://www.wheatbellyblog.com/
http://jackkruse.com/brain-gut-1-who-are-we-really/
.....and my post here:
http://neurotalk.psychcentral.com/thread13427-7.html

Your journey needs to start with the rejection of two mainstream media myths, 1) Eat less fat, and 2) Eat more "healthy" whole grains. Eat MORE fat. Replace ALL grassy grains in your diet with meat.

Good luck.
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Old 12-11-2012, 12:22 PM #5
lemac259 lemac259 is offline
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Quote:
Originally Posted by krysy8 View Post
hello, ive just been dx w Fibromyalgia... so im here to learn from others, hear experiences of others. i had heard of FM before being dxed, and had heard it wasnt real, but never really thought much of it. i had been being treated for chronic lower back pain. Seen a pain specialist, had spinal epideral injections, and a radiofrequency neuropathy, physical therapy and so on. then the pain started to occur in my arms/shoulders/ chest. and this wierd burning feeing near my collar bone.. Not to mention the ongoing extreme tiredness. docs found nothign abnormal in my blood, or xrays. thats when the FM dx came in. i now do definatly believe fm i real and feel lke a jerk for not really believing much in it before! (sorry)

So ive been given meds to help, and just started taking them, litereally today. it sooo confusing all this new stuff. im worried about all the different pills! ive been started on gabapentin 300 mg 3x a day, also etodolac had been added to replace my naproxen ih ave been on for months. Then he said i should take Prilosec to hellp my tummy not get upset. AND lexapro for depression. i think i im only depressed cuz i hurt so much. These meds, well.... this seems like a lot. For pain i have tramadol. I sure hope all this works, an is not going to cause wierd side effects together.

Does it seem like a good starting point?????
Your post was 3 months ago, how are you doing? I just joined, so just saw your post. Sounds like your doc was trying to get your pain under control. Is it any better? My doc's always want to put me on an antidepressant, because when they look up fibro, that's what it says to do. But I feel the same way you do, the pain and lack of sleep because of the pain is the cause of any anxiety or sadness I may have. I chose not to let it ruin my day, but there are different degree's of pain and different degree's of coping skills as well. I do not like antidepressants or the way they make me feel, so I don't take them. I chose to be happy in spite of the pain. This works most days Friends and co-workers do not see the pain typically. My poor husband does and hates that he cannot 'fix' it. But I do not let it control me. My concern is that even though this pain is constant, I can still work with it. I know that many cannot and recognize how blessed I am. It may get worse, but today it is tolerable and I choose to focus on others and life and my 12 grandchildren and my hunka hunka husband for as long as possible.
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