Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS).


advertisement
Reply
 
Thread Tools Display Modes
Old 01-21-2007, 05:14 AM #1
Rainbowlight2007 Rainbowlight2007 is offline
Junior Member
 
Join Date: Jan 2007
Posts: 14
15 yr Member
Rainbowlight2007 Rainbowlight2007 is offline
Junior Member
 
Join Date: Jan 2007
Posts: 14
15 yr Member
Default Neurontin question

Hi. My doctor recently prescribed Neurontin for fibro. Does everyone gain weight on this med? and I have also heard rumors that is causes some very bad hair loss?
Rainbowlight2007 is offline   Reply With QuoteReply With Quote

advertisement
Old 01-21-2007, 03:58 PM #2
Jomar's Avatar
Jomar Jomar is offline
Co-Administrator
Community Support Team
 
Join Date: Aug 2006
Posts: 27,685
15 yr Member
Jomar Jomar is offline
Co-Administrator
Community Support Team
Jomar's Avatar
 
Join Date: Aug 2006
Posts: 27,685
15 yr Member
Default

Hi Rainbowlight2007- welcome to the forum.

I just was looking at some info on Neurontin the other day-
some info and links-
below a section from - http://web.tampabay.rr.com/lymecfs/nfaq.htm
[KIDNEYS

It is important, since Neurontin is excreted through the kidneys, that your creatinine level is normal. This is a routine blood level that would have been drawn along with your usual yearly blood work. Neurontin is not metabolized by the liver.

Many users have found that hydration is vitally important while using this drug. A small amount of water retention is normal, especially when ramping up (increasing) doses. If you find that your rings are tight and/or your toes are swollen, AND you are drinking less than four quarts (approximately four liters) of water a day, you may find that increasing your intake of water will help eliminate any excess fluid unless your doctor has placed you on a water restriction. However, if you gain over 5-10 pounds, you may temporarily need an occasional diuretic to help flush out the excess water.

If you find that you are continuing to have worsening water retention, your doctor needs to be consulted as soon as possible to insure your kidney and cardiac functions are normal.

BLOOD LEVELS

Over the years, the need for obtaining gabapentin levels have become less important.

After about two weeks on round-the-clock doses, Neurontin is totally excreted from the body within 8-9 hours (if there are no kidney problems).

If one is not on round-the-clock doses, Neurontin is totally excreted from the body in approximately 4 hours.

For optimal dosing, Neurontin should be divided into a four (or more) times a day frequency to keep a constant blood level. If one is taking Neurontin on a three (or less) times a day and is experiencing break-through pain, the easiest experiment (with the doctor's permission) would be to divide the daily dose into four equal doses to see if that solves the problem. ]

and a list of info sites -
http://www.google.com/search?q=Neuro...ient=firefox-a
__________________
Search NT -
.
Jomar is offline   Reply With QuoteReply With Quote
Old 01-21-2007, 09:41 PM #3
Idealist's Avatar
Idealist Idealist is offline
In Remembrance
 
Join Date: Sep 2006
Location: Central VA
Posts: 1,937
15 yr Member
Idealist Idealist is offline
In Remembrance
Idealist's Avatar
 
Join Date: Sep 2006
Location: Central VA
Posts: 1,937
15 yr Member
Default

I was on neurontin for a year and a half. I didn't put on any weight, but I did notice a bit of hair loss while I was taking it. It also gave me a craving for sweets.
Idealist is offline   Reply With QuoteReply With Quote
Old 01-24-2007, 08:08 AM #4
fiberowendy2000's Avatar
fiberowendy2000 fiberowendy2000 is offline
Senior Member
 
Join Date: Aug 2006
Location: Massachusetts
Posts: 1,071
15 yr Member
fiberowendy2000 fiberowendy2000 is offline
Senior Member
fiberowendy2000's Avatar
 
Join Date: Aug 2006
Location: Massachusetts
Posts: 1,071
15 yr Member
Default

I gained 50 pounds on this med. I was up to at one point 2400 mgs a day but was mostly at 1800 mgs for quite a while. This medication has made me unrecognizible from my driver's license picture. I feel like a weeble wobble. I am 4' 11" and I weigh 185 or so. You can imagine what my body image must be like. This is after being off the med for over a year now and I am still fighting side effects.
While it is not a glowing review of the med, it is better to know than not know at all.
__________________

.

Enjoy when you can, and endure when you must. -- Goethe

Diagnoses: FM, Sciatica, Rosacea, Piriformis Syndrome, SI joint disfunction, Joint Facet Syndrome L3-L5, Pinched Nerve (somewhere on the left side), Depression, Anxiety and Bipolar II

.
fiberowendy2000 is offline   Reply With QuoteReply With Quote
Old 01-30-2007, 06:33 AM #5
Lilith Lilith is offline
Junior Member
 
Join Date: Nov 2006
Posts: 16
15 yr Member
Lilith Lilith is offline
Junior Member
 
Join Date: Nov 2006
Posts: 16
15 yr Member
Default neurontin

Yes I gained about 20lbs on that med..... I am off of it now...Lilith
Lilith is offline   Reply With QuoteReply With Quote
Old 03-28-2007, 03:18 AM #6
julia julia is offline
New Member
 
Join Date: Mar 2007
Posts: 2
15 yr Member
julia julia is offline
New Member
 
Join Date: Mar 2007
Posts: 2
15 yr Member
Default neurontin i gained weight $) lbs and lost hair .....get on something else regards jul

Quote:
Originally Posted by Rainbowlight2007 View Post
Hi. My doctor recently prescribed Neurontin for fibro. Does everyone gain weight on this med? and I have also heard rumors that is causes some very bad hair loss?
yes i gained weight and lost hair .....ask for something else oxo
julia is offline   Reply With QuoteReply With Quote
Old 03-28-2007, 06:40 AM #7
skyspirit skyspirit is offline
Junior Member
 
Join Date: Mar 2007
Location: Michigan
Posts: 8
15 yr Member
skyspirit skyspirit is offline
Junior Member
 
Join Date: Mar 2007
Location: Michigan
Posts: 8
15 yr Member
Crazy Hi rainbow


I've been on 600 mg of neurontin for 2 months and they uped it tp 1800 mg's. I've been on 1800 mg's for 2 weeks and don't like it. I can't sleep cause I either have insomnia or talk too much in my sleep. It's making me so exhausted throughout the day. I have possible multiple sclerosis, cause they ruled out fibromyalgia, supposibly. I still say it could be either or.
Do you have sleeping issues like me? I've noticed my face being a tiny bit bigger and mys tomach being slightly more bloated, but not enough to tell if I'm gaining weight from it. I have a decreased appetite from it. I'm going to call my doctor to see if I can take herbs like st. john wort instead of the neurontin since I can't sleep and been more exhausted than whats manageable. If you have any comments or questions you can contact me at SKYSPIRIT@AOL.C0M Take care.
skyspirit is offline   Reply With QuoteReply With Quote
Old 04-10-2007, 09:39 PM #8
RahaelOuch RahaelOuch is offline
New Member
 
Join Date: Apr 2007
Location: NJ
Posts: 1
15 yr Member
RahaelOuch RahaelOuch is offline
New Member
 
Join Date: Apr 2007
Location: NJ
Posts: 1
15 yr Member
Note Definite weight with Neurontin

I was on it for headaches almost 10 years ago. I was on a very high does, even for a seizure patient and have been off it for quite a few years. I gained weight very quickly with it and haven't been able to loose any since. I recently found this out ... Anticonvulsants tend to cause hyperinsulinemia (elevated insulin in the blood) and increased appetite leading to weight gain. Hyperinsulinemia also results in increased testosterone, which causes a risk to women on these medications for development of Polycystic Ovary Syndrome (POS). Polycystic ovary syndrome can cause weight gain, male pattern baldness, increased facial hair, skin tags, acne, infertility, high blood pressure, abnormal lipid levels, and heart disease.

Seizure disorder studies showed that patients taking anticonvulsants who had either a normal or below normal body mass index had the most severe weight gain.
http://www.netnutritionist.com/fa12.htm
RahaelOuch is offline   Reply With QuoteReply With Quote
Old 05-19-2007, 12:20 PM #9
razzle51's Avatar
razzle51 razzle51 is offline
Senior Member
 
Join Date: Aug 2006
Location: Iowa
Posts: 1,028
15 yr Member
razzle51 razzle51 is offline
Senior Member
razzle51's Avatar
 
Join Date: Aug 2006
Location: Iowa
Posts: 1,028
15 yr Member
Default Neuor

I gain 60 lbs it was awful , got off it quick . I am now on Keppra and it works well
__________________
Remember That Life Is Short!!!" break the rules, Forgive quickly, Love truly, laugh uncontrolably, And never regret anything that made you smile
razzle51 is offline   Reply With QuoteReply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Long Term Side Effects Of Neurontin?? lookingup58 Epilepsy 26 06-24-2013 01:40 AM
Neurontin Withdrawal ms_kathy Reflex Sympathetic Dystrophy (RSD and CRPS) 13 05-15-2009 01:29 AM
Question Alffe Survivors of Suicide 3 01-05-2007 04:12 PM
Question FeelinGoofy Caregivers Support 6 12-04-2006 09:00 AM
Question on Neurontin lookingup58 Meralgia Paresthetica 2 10-07-2006 01:49 AM


All times are GMT -5. The time now is 12:06 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.