Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS).


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Old 11-28-2013, 12:07 AM #1
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Originally Posted by reesecups View Post
Sorry to butt in, but I sort have a comment as well as would like suggestions.
First, butting in is permitted!

Second, can you elucidate why you're not able to stay asleep (e.g. fibro, pain, medications, anxiety, brain chemistry/melatonin imbalance, etc.)?

Doc
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Old 11-28-2013, 11:18 PM #2
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Originally Posted by Dr. Smith View Post
First, butting in is permitted!

Second, can you elucidate why you're not able to stay asleep (e.g. fibro, pain, medications, anxiety, brain chemistry/melatonin imbalance, etc.)?

Doc
Thanks!

I've had insomnia pretty much all the time for about 35 years. Not from pain. Not always sure why. Everyone has assumed it is mental/emotional for the most part.

Also, sleeping is not helped by melatonin. At one time I was on 400mg Trazadone and 20mg Ambiem which, like most things I've tried, worked for a while and stopped. Melatonin made me even more depressed than I was.
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Old 11-29-2013, 04:35 PM #3
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Originally Posted by reesecups View Post
I've had insomnia pretty much all the time for about 35 years. Not from pain. Not always sure why. Everyone has assumed it is mental/emotional for the most part.
Ever had a sleep study done?

I'm guessing that edibles (mm) are unpredictable due to there being no way to control consistency of the various cannabinoids (THC, CBD, etc). I also don't know if the makers of edibles even stick to the same strains/varieties.

I would think determining the best strain for a particular patient's needs would come first, and then determine the best delivery method for that individual.

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Old 11-29-2013, 08:41 PM #4
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Originally Posted by Dr. Smith View Post
Ever had a sleep study done?

I'm guessing that edibles (mm) are unpredictable due to there being no way to control consistency of the various cannabinoids (THC, CBD, etc). I also don't know if the makers of edibles even stick to the same strains/varieties.

I would think determining the best strain for a particular patient's needs would come first, and then determine the best delivery method for that individual.

Doc
Thanks Doc.

Unfortunately, even if it's legal in my state, there is nothing really but first hand knowledge from fellow users of the best way to do things. Doctors make a recommendation: Sativa, Indica or Hybrid. That's all they do. And frankly, the people at the dispensaries are usually not that knowledgeable. I found a sort of manufactured type edible that I'm using now that helps, but frankly can't handle marijuana every night yet.
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Old 11-29-2013, 10:35 PM #5
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Indica is WAY better for sleep...

at least for me...it works GREAT...
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Background:

52 year old with 25+ years of problems associated with Fibromyalgia...

What happened:

while seeking relief from the scourge of fibro, i rec'd 12-15 increasingly significant concussions to my brain stem from a risky chiropractic adjustment. Last one on May 10, 2013...at 11:45 AM that day, my life changed instantly.

Symptoms:
cognitive dysfunction, sleep disruption, highly emotional, easily overwhelmed & overloaded, unrelenting tinnitus, memory loss, facial masking, difficulty with speech, trouble finding words, headache, widespread Fibro pain mostly in my neck, shoulders, back, hips, knees...

unable to: drive or ride in a moving vehicle for any length of time, watch TV or movie, read books, tolerate more than one soft conversation at a time.

i am hyper sensitive to light, noise, motion and crave dark, quiet and very, very slow...


Current Meds:


10 mg Ritalin,
450 mg Lyrica
5 mg prednisone (aka poison)
amatryptaline
5 mg melatonin
plus daily vitamin & supplement regimen: B, D, Fish Oil, plus a lot of brain food: nuts, berries, fish, etc,..

legal, MM approved by ALL my docs for 2 very limited purposes.(not recommended for all, be cautious)
2 mg Valium as needed
Tramadol as needed
Percocet as needed
lidocaine patches (yea!)
Outpatient Infusion for migraine cocktail once per week as needed
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Old 12-08-2013, 02:05 PM #6
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Hi Brainstemmed,

I hope you don't mind me posting here I'm usually on the Epilepsy forum. Medical Marijuana has been proven to help people who have neurology or other problems like cancer. My Dr. wants to put me on m.m. to stop my seizures but I still have to wait for the state to okay it.
This past summer they had a special on CNN with Dr. Sanjay Gupta showing how medical marijuana reduced seizures in a little girl who was having 300 seizures a week.
The THC level is low and that's the part that's used for a person to get high while the CBD level is high and that is the part of the marijuana that helps people who have neurology and other medical problems. Check out the Stanley brothers who live in Colorado they grow medical marijuana for people who need it. I wish you the best of luck and May God Bless You!

Sue
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Old 12-16-2013, 10:35 PM #7
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Quote:
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Hi Brainstemmed,

I hope you don't mind me posting here I'm usually on the Epilepsy forum. Medical Marijuana has been proven to help people who have neurology or other problems like cancer. My Dr. wants to put me on m.m. to stop my seizures but I still have to wait for the state to okay it.
This past summer they had a special on CNN with Dr. Sanjay Gupta showing how medical marijuana reduced seizures in a little girl who was having 300 seizures a week.
The THC level is low and that's the part that's used for a person to get high while the CBD level is high and that is the part of the marijuana that helps people who have neurology and other medical problems. Check out the Stanley brothers who live in Colorado they grow medical marijuana for people who need it. I wish you the best of luck and May God Bless You!

Sue
I actually have a vape pen that contains 35% CBD. The last couple of times it gave me a headache, but sometime soon, I'll try it again.
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