Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS).


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Old 11-07-2013, 07:15 AM #1
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Default Medical Marijuana

i searched this forum for info on medical marijuana and i am curious if anyone else has had success of any kind...

i am in Colorado and have access to potent and 'clean' marijuana.

i smoke right before bed and i now go to sleep easily...before, it was a major struggle for me to fall asleep and stay asleep...

i take melatonin for sleep...i cannot tolerate sleep meds...

i have had a huge problem with restless leg, and it disappeared at night when i smoke...

i have had problems with fibro for 25+ years, and tried marijuana about 1.5 years ago and it has made a positive difference in my life.

i do NOT use pot socially...i do absolutely nothing after i smoke...i always smoke and go right to bed and straight to sleep...

i have asked every health professional i know: internist, neurologists, psychiatrist...even my 80 year old mother...all approve without hesitation...but then again, they are all in Colorado and the attitudes here are different...

my biggest concern is the long term effect of smoke...while in Colorado, i can buy edibles, although their effect on me is not the same as smoking.

all of this from a 52 year old dad with 7 kids, some of which we drug tested while in high school as it became problematic for them...so i was quite hesitant to even try...

but i am glad i did.

anyone else?

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Old 11-08-2013, 06:19 PM #2
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I use m.m. nightly after dinner to get thru the evening and be able to sleep with my neuropathy. I smoke it as well, as edibles are too unpredictable for me. I either get no relief, or I'm a zombie.

Is the smoke bad for you? I imagine it isn't good for you, but weigh the alternatives. It doesn't harm your liver like pills and alcohol do. I don't know about you, but I wake up refreshed, unlike if I had taken painkillers.

You know, a vaporizer pretty much takes care of the smoking aspect, so you may want to look into that. It doesn't burn the bud, but just the ingredients you want and need.

I am 56 with two grown sons that I watched like a hawk growing up. One now smokes occasionally and it doesn't cause him any problems. The other one used to, but now chooses not to. They don't think any less of me for using it as they know my goal is to stay away from pharma's and they know I experience a lot of pain daily. I prefer that they smoke weed than drink alcohol. By far.

It sounds like your looking for validation that its okay to use m.m. I personally think you need to get over that. We've been brainwashed to think of it as being evil, but now the cats out of the bag. The famous t.v. Doctor that did a program on m.m. admitted he had been mislead by the government and
apologized for his hard anti pot stance he had preach for so long. It was a CNN special and I'm sure you can watch it on YouTube.

Should kids do it? Of course not! That's the anti m.m. slogan that is spouted by those who either have a vested interest in keeping it illegal or people who now know they have been wrong, but are incapable of changing their opinions.

Do what you need to do and stop worrying about it.
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Old 11-09-2013, 11:06 AM #3
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Quote:
Originally Posted by Brainstemmed View Post
i searched this forum for info on medical marijuana and i am curious if anyone else has had success of any kind...
There are many threads on other forums as well; you can easily find them via the global search.

Quote:
i take melatonin for sleep...i cannot tolerate sleep meds...
As with melatonin, regular use of mm for sleep can become less effective—sometimes even causing sleep problems—over the long term. Taking occasional "vacations" can help with this.

Quote:
my biggest concern is the long term effect of smoke...while in Colorado, i can buy edibles, although their effect on me is not the same as smoking.
As surfer mentioned, vaporizers theoretically eliminate the smoke particles.

I would if I could, but I can't (legally) so I don't.

Doc
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Old 11-18-2013, 01:24 PM #4
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Default the effects

the side effects as one mentioned
smoke being my concern
it does relieve for me
certain sense of calm
the ability to become talkative
thru my dulled pain friends and i concur
having the ailments such as us
i am unable to take anything for the nerve problems
such as Lyrica Cymbalta and Neurontin
neuropathy fibromyalgia RSD and many other mechanical
problems opiates make me vomit sick
it helps with nausea since i use it for that
to find it does ease some things
how it works i'll leave that up to the experts
i do not trust the government who dabble in crap
like crack heroin prevalent in the world
and my personal experience
23 years sober i drank wine and vodka and what
was my favorite Johnny Black the obsession
lifted if my children adult as we speak how we
look over our children like hawks and like
for what it never gets anywhere
they are going to do what they can
get away with the norm of it
fact of the matter smoking mm has
always been around
the strains in today's world
here in the U.S.A. mutation
now the properties that is more
helpful to the patients are denied
i heard a story where a couple married
his wife a cancer patient bought an island
trying to get it on the map
point
the husband bought it grows it to ease what
ever her pains were but it eased her pain
she passed and others travel there for
their last days i do not remember much
but the love of family
and all because not legal
and the only one holding back
when kept in the context of its use
i take issue with those who do not
take the word of the PATIENTS in the world
is overlooked



I DON'T THINK SO
to many persons
companies stock
to those who have the most
to loose
and not the patients win
politics of this subject
as one who can speak of
personal experience
many turn their heads to it
and just like any thing else
what works for one may not
work others
children today children tomorrow

the worry if it strikes, or spark other
careless behavior they are doing prescription
medication i mean i have to lock up my meds
i err to the side as prior comment all in what
context are we dealing with
oh to only to be high in Spirit
what a better world it would be
oh yeah not for use of children
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Old 11-19-2013, 12:23 PM #5
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Default my last sentance

dearest young baby
i think she is two
as this was a televised program
suffered constant seizures
i am a mother of a 32 year old
epileptic daughter
it was a hell for her
her first grand maul seizures
at 23 in the end of it all
brain surgery included
a VNS implant
is worse off now
than ever before
it helps her
now about little children
this couple with there 2 year
old up to 100 and more seizures
the Governor of our state
who i bet is fixing on being
one strong candidate
knew about this child
and her need for MM
a need a must have
are taking her to
another state as
a parent will do anything
to make their child
okay in every way
God is watching
angles working overtime
AMEN!
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Old 11-27-2013, 10:47 AM #6
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Default

Sorry to butt in, but I sort have a comment as well as would like suggestions.

I usually use marijuana for sleep. But I think, realistically for me, that since my problem normally isn't getting to sleep BUT staying asleep, I use edibles, because they will last all night without my waking up every 2-3 hours to vape. I can't smoke it.

Does anyone have a better idea than edibles for sleeping all night without waking? I am open to suggestions as I would agree that edibles are more unpredictable.
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Old 11-27-2013, 03:16 PM #7
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Default try this..

you might wanna try the vaporizer idea along with 1-3 mg of melatonin...

i know that is all i need and i sleep well also...
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Background:

52 year old with 25+ years of problems associated with Fibromyalgia...

What happened:

while seeking relief from the scourge of fibro, i rec'd 12-15 increasingly significant concussions to my brain stem from a risky chiropractic adjustment. Last one on May 10, 2013...at 11:45 AM that day, my life changed instantly.

Symptoms:
cognitive dysfunction, sleep disruption, highly emotional, easily overwhelmed & overloaded, unrelenting tinnitus, memory loss, facial masking, difficulty with speech, trouble finding words, headache, widespread Fibro pain mostly in my neck, shoulders, back, hips, knees...

unable to: drive or ride in a moving vehicle for any length of time, watch TV or movie, read books, tolerate more than one soft conversation at a time.

i am hyper sensitive to light, noise, motion and crave dark, quiet and very, very slow...


Current Meds:


10 mg Ritalin,
450 mg Lyrica
5 mg prednisone (aka poison)
amatryptaline
5 mg melatonin
plus daily vitamin & supplement regimen: B, D, Fish Oil, plus a lot of brain food: nuts, berries, fish, etc,..

legal, MM approved by ALL my docs for 2 very limited purposes.(not recommended for all, be cautious)
2 mg Valium as needed
Tramadol as needed
Percocet as needed
lidocaine patches (yea!)
Outpatient Infusion for migraine cocktail once per week as needed
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Old 11-28-2013, 12:07 AM #8
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Quote:
Originally Posted by reesecups View Post
Sorry to butt in, but I sort have a comment as well as would like suggestions.
First, butting in is permitted!

Second, can you elucidate why you're not able to stay asleep (e.g. fibro, pain, medications, anxiety, brain chemistry/melatonin imbalance, etc.)?

Doc
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All opinions expressed are my own. For medical advice/opinion, consult your doctor.
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Old 11-28-2013, 11:18 PM #9
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Quote:
Originally Posted by Dr. Smith View Post
First, butting in is permitted!

Second, can you elucidate why you're not able to stay asleep (e.g. fibro, pain, medications, anxiety, brain chemistry/melatonin imbalance, etc.)?

Doc
Thanks!

I've had insomnia pretty much all the time for about 35 years. Not from pain. Not always sure why. Everyone has assumed it is mental/emotional for the most part.

Also, sleeping is not helped by melatonin. At one time I was on 400mg Trazadone and 20mg Ambiem which, like most things I've tried, worked for a while and stopped. Melatonin made me even more depressed than I was.
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Old 11-29-2013, 04:35 PM #10
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Quote:
Originally Posted by reesecups View Post
I've had insomnia pretty much all the time for about 35 years. Not from pain. Not always sure why. Everyone has assumed it is mental/emotional for the most part.
Ever had a sleep study done?

I'm guessing that edibles (mm) are unpredictable due to there being no way to control consistency of the various cannabinoids (THC, CBD, etc). I also don't know if the makers of edibles even stick to the same strains/varieties.

I would think determining the best strain for a particular patient's needs would come first, and then determine the best delivery method for that individual.

Doc
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