FAQ/Help |
Calendar |
Search |
Today's Posts |
|
Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS). |
Reply |
|
Thread Tools | Display Modes |
08-13-2010, 03:59 AM | #31 | |||
|
||||
Junior Member
|
I have looked at several articles that seem very positive about the LDN therepy. The dose is so low and side affects are so little that I think anyone who is suffering from chronic pain and fatigue should give it a try. I'm going to try it as soon as I can get a perscription for Naltrexone for my "drinking problem" and then split the 50mg tab into 4.5mg doses. Then take one of them once a night. It's important not to take more than 4.5mg. If it helps great. If not well no harm done. I have so much pain and fatigue I almost can't stand it. Some thing has to be done. After 12 years I'm getting so tired of feeling like dog doodoo. I hope this helps.
Quote:
|
|||
Reply With Quote |
11-13-2010, 09:52 AM | #32 | ||
|
|||
Junior Member
|
I have been diagnosed with peripheral neuropathy - in my feet and lower legs only. I do have pain in other areas of my body. I don't think this would be the right pace to post but this is where you, Mrs. D pointed me to on your welcoming reply (thank you for the warm welcome by the way).
My concern is that merely touching some of the areas of my body hurt, a lot, and I'm not even sure that I should go back to my Neurologist and talk to him about it. Don't worry, I'll learn my way around and fall into the right places to post. Soon I hope |
||
Reply With Quote |
11-13-2010, 11:53 AM | #33 | |||
|
||||
Wisest Elder Ever
|
Here is the link to our PN forum.... I specialize in helping people heal when they have nerve problems. It can be done for some using certain nutrients and supplements.
This is our PN forum: http://neurotalk.psychcentral.com/forum20.html At the top of that forum is the subforum with informational posts on it ...so you need to do some homework to learn about PN. There are many causes of PN and if some involving life style can be changed, you can get better.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
|
|||
Reply With Quote |
11-16-2010, 08:26 PM | #34 | ||
|
|||
Legendary
|
Thanks for the very interesting information. I love this when you post things that are helpful.
I tried the savella, it was a big mistake for me. I take something in every category except the night time sleeping one. Donna |
||
Reply With Quote |
01-25-2011, 10:07 PM | #35 | ||
|
|||
New Member
|
I have had fibromyalgia for 18 yrs and essential tremor for 30 yrs. After many Dr.s, ad nauseum, I finally resorted to fentanyl patches for pain. Many feel that opioids are not effective, but for me it has been the only relief, with no side affects. I have used them for over 10 years and would like to discontinue this pain reliever in order to assess my current pain level. Unfortunately the patches are extremely addictive, a fact that has been of no concern to my many drs. My tremors are getting more disabling, but according to my dr.s, this is not a result of the fentanyl. I have my doubts. And the depression! Every day is challenge. Any thoughts/info about Fibromyalgia and essential tremor would be greatly appreciated.
|
||
Reply With Quote |
02-06-2011, 09:58 AM | #36 | |||
|
||||
New Member
|
I was a healthy 44 year old man until a car accident left me with chronic pain, herniated discs, radiculopathy etc. Surgery helped the leg pain, but since then I developed a whole host of problems which I have reluctantly had to accept as fibromyalgia. Reluctant, because I am a doc who treats psych patients and when they say they have fibro and are wanting 5 Roxycontins a day I am immediately forced to question their motives. However, this damn condition is real and it causes me daily pain, occ numbness and weakness, insomnia, IBS, chemical sensitivities I never had, and overall decreased quality of life. It sucks.
I have not found a good doctor in my region so I end up being my own doc and telling my doc what to try....Lyrica helps me, Tramadol helps somewhat w pain, IBS, and anxiety, and various sleeping pills help at times. The fatigue is bizarre, sometimes really bad and I have tried Provigil, Nuvigil, Adderall and Vyvanse, all of which can help but all have side effects. Massage helps alot, but only for 24 hrs...cant get one every day! I have 16 out of the 18 trigger/tender points, so I'm not so sure thats not useful...those trigger points are on meridian lines and I am trying accupuncture now...we'll see. Doc Byrd |
|||
Reply With Quote |
02-06-2011, 12:33 PM | #37 | |||
|
||||
Wisest Elder Ever
|
Welcome to NeuroTalk! Minah Byrd
You might be interested in d-ribose. Here is a link to a thread about it, and acupuncture. http://neurotalk.psychcentral.com/sh...ghlight=ribose Ribose is part of the molecule adenosine. This is then part of ATP, ADP and AMP in the mitochondria. Adenosine is also the signaler of sleep. I've found that ribose is very helpful for chronic pain, and sleep problems. Also if your B12 is low, you are not making melatonin. MethylB12 is the cofactor for converting serotonin to melatonin. So do a blood test for that too. You should be at 400 or better, and not in the low ranges which are mistakenly given as "normal".. http://neurotalk.psychcentral.com/thread85103.html This thread has current medical information about this subject. Thirdly, you will need to test your Vit D levels. You can see significant improvement in a chronic condition like Fibro with raising your levels to the new suggested ones: http://neurotalk.psychcentral.com/thread92116.html And high dose tramadol can cause urinary retention and constipation in some patients.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
|
|||
Reply With Quote |
03-09-2011, 06:13 PM | #38 | |||
|
||||
Junior Member
|
Quote:
|
|||
Reply With Quote |
04-22-2011, 05:02 PM | #39 | ||
|
|||
New Member
|
I've been diagnosed with Fibro, CF, IBS, Hormone Imbalance, and suspected of having Lyme disease. Have read the most about Lyme, and now I am starting to find out more about Fibro. Thanks for the information from the conference! I was especially interested to hear that chiropractic and massage help very little.
I have needed chiropractic adjustments for 7 years, almost every day at first, now a couple times a week. I suspect the Lyme bacteria has damaged my ligaments, and has compromised my ability to hold my adjustments. Has anyone else ever had this problem? I have tried so much, and am tired of being in this frustrating cycle. The pain and muscle tightness gets debilitating if I don't go back in for relief. ANY HELP OUT THERE? |
||
Reply With Quote |
10-08-2011, 10:42 PM | #40 | ||
|
|||
Junior Member
|
Quote:
Thanks for being a messenger regarding the presentation made by Dr. Clauw. It is always good news when there is proactive research to link what works and does not work to manage eliminate symptoms. However, I do experience great relief from the flex excercising such as stretching, yoga, etc. I am just beginning to exercise after an immedaiate and tremendous weight gain from a previous medication. I am in water therapy classes and the relief is astounding. I feel so much better follwoing any of these modalities. Due to medication related weight gain....I did not want other health problems to crop up (diabetes, etc.). After weaning off the Lyrica (600mg daily) My Rheumo placed me on cymbalta. I take it along with the combination of drugs taken psych trauma stress syndrome. I believe that my fibromyagia was absolutely brought on by a stress related event. Though I tend to steer clear of opiods but must say on a really bad painful day a little bit goes a very long way. Well, thanks for the information ou posted. It offers me hope that I may be on the right path....for me. Every body is unique and I do not believe there is one answer for all of us . THANKS AGAIN |
||
Reply With Quote |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
Secondary Fibro? Fibro-like Symptoms? | Fibromyalgia and Chronic Fatigue | |||
Fibro and the Flu | Fibromyalgia and Chronic Fatigue | |||
Fibro From PN ?? | Peripheral Neuropathy | |||
RSD Medical Warning Sheet for Medical Personnel | Reflex Sympathetic Dystrophy (RSD and CRPS) | |||
I am new to fibro/CFS | Fibromyalgia and Chronic Fatigue |