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Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS). |
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10-29-2019, 09:39 PM | #1 | ||
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Also, I changed chiropractors on advice of my orthopedic specialist to a chiropractor who tests and reactivates the muscles that don't want to work properly - for me these are my glutes and lats. I also attend physical therapy there. I learn simple exercises to help me keep up or reactivate muscles and just recently added strengthening. This could mean doing only 5-10 reps because exercise exacerbates other conditions I have. I love a massage even if it's just all about an hour of relaxation. I call it my reset switch! Be your own advocate! Best of luck! |
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10-08-2011, 10:42 PM | #2 | ||
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Thanks for being a messenger regarding the presentation made by Dr. Clauw. It is always good news when there is proactive research to link what works and does not work to manage eliminate symptoms. However, I do experience great relief from the flex excercising such as stretching, yoga, etc. I am just beginning to exercise after an immedaiate and tremendous weight gain from a previous medication. I am in water therapy classes and the relief is astounding. I feel so much better follwoing any of these modalities. Due to medication related weight gain....I did not want other health problems to crop up (diabetes, etc.). After weaning off the Lyrica (600mg daily) My Rheumo placed me on cymbalta. I take it along with the combination of drugs taken psych trauma stress syndrome. I believe that my fibromyagia was absolutely brought on by a stress related event. Though I tend to steer clear of opiods but must say on a really bad painful day a little bit goes a very long way. Well, thanks for the information ou posted. It offers me hope that I may be on the right path....for me. Every body is unique and I do not believe there is one answer for all of us . THANKS AGAIN |
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01-10-2012, 08:14 PM | #3 | ||
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New Member
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I just want to for taking the time to share with us, I appreciate all the info you have posted, I look forward to your next posting
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05-25-2013, 10:13 AM | #4 | ||
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New Member
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I just joined this site and I am so thankful I did. Even just reading everyone's posts made me feel I'm not alone. I really get the "i'm 40 but feel like 90". I don't want to feel this way anymore. I have chronic headaches... tension I guess the most but leads to migraines. I'm suppose to see a neurologist in July at Vanderbilt and I guess go from there. I would love input from you all as to which direction to go. I just came off Paxil because I just took it while in Nursing School and all the stress with it. But all the pain is still there, from head to my toes. My shoulder blades and neck are unbearable at times. I can take a lot of pain but its to the point where I'm grouchy and I don't do things like I use to do. I've been taking Valium and Fioricet® (Butalbital, Acetaminophen, and Caffeine) and that can give me some relief for a very short while. I've taken Amitriptyline but those class of drugs make my ears ring very loud, so we stopped those in hopes of something else. I started Lyrica last night, 75mg and woke up this morning very dizzy. And I read on here about people taking 600mg a day. How does one function? Right now I'm tired, hurting and can't even think what to do next. Being in nursing.. I sure can't go around dizzy. The valium etc does not make me sleepy at all so I have no problems taking it and functioning. But I just live with the pain until I break and cannot bear it anymore. sigh... like I said... i'm just overwhelmed, hurting all over, and I don't know what to do as the drugs that are for Fibro seem to give me side effects I can't live with either. Any thoughts are appreciated so much!
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06-19-2013, 03:03 PM | #5 | |||
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Wisest Elder Ever
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This is very interesting:
http://psychcentral.com/news/2013/06...gia/56233.html nerves around certain blood vessels, which may malfunction and actually cause Fibro.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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"Thanks for this!" says: | glenntaj (06-20-2013) |
11-06-2013, 11:53 AM | #6 | |||
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Wisest Elder Ever
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Here is another new paper on Fibro and its associated pain state:
http://psychcentral.com/news/2013/11...ays/61672.html
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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01-31-2014, 08:45 PM | #7 | |||
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Elder
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Question: does fibro cause spasticity-severe enough to cause a 12 degree bend in the knee joint?
I was dxd with fibro in the mid 80s and have had few flares in the past decade. I was dxd with MS in late 08 after a few years of increasing sxs. I had knee replacement surgery 8 weeks ago…the narcotics worked on the pain from spasms and the surgical site, but then I had a severe flare of fibro that continues to this day; I also had a flareup of MS sxs. The narcotics did nothing for the fibro pain. I discontinued the narcotics several weeks ago, and my joints and muscles are feeling that old familiar ripping feeling of fibro. Just wondering if the spasms are from MS or from fibro...
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Instant Karma's gonna get you-gonna knock you right in the head...John Lennon |
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10-29-2019, 10:07 PM | #8 | ||
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I've been the medicine guinea pig for years. I feel your pain! It's hard to find the perfect "cocktail" for relief. One medicine I've tried with some success for general pain is Low Dose Naltrexone from a local compounding pharmacy. In larger doses, the med is used to treat drug addiction. However, Neurologists and Rheumatologists are using this medication at low doses for FM/neuropathy/arthritic pain. I was ramped up every 30 days from 1mg to 2mg to 3 mg to 4.5 mg. For onset of my headaches, I use Ketamin nose spray (also from a compound pharmacy), Clonazepam orally disintegrating tablet 0.25 mg and Carbamazepine (Tegretol), 100 mg tab chew. The ketamin burns, so I swab with a gel I was also prescribed prior to use. This is the first time I've been given this combination and it works about 50% of the time. The key is getting the meds in upon first symptoms. Mine just come on very quickly. I wish you the best of luck. Be your own advocate! |
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09-05-2014, 02:11 PM | #9 | ||
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I realize I am on an old thread but wanted to see if there was any mention of the relationship between FMS and Small Fiber Neuropathy. I have SFN and was dx'ed about a year ago. I now have pain all over and won't go into that. I'm posting here(though I could not find the "New Thread" anywhere and I am a member)because I have recently read that there have been some small studies done on people with FMS and SFN showing that a quite a few also have SFN! Since my dx of SFN, my pain has increased, intensified and spread. I am now wondering if the SFN caused the fibro? Can anyone help me? I have been looking all over this site for more information about SFN, how to treat it, IF my symptoms are fibro and not SFN or a combination of the two. I am really searching for answers and cannot find any because SFN is pretty rare and most drs know very little about it.
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09-06-2014, 05:46 AM | #10 | ||
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Magnate
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--small fiber neuropathy is hardly rare; it is the most common type of neuropathy from diabetes and a large majority of "idiopathic" neuropathy sufferers have predominantly small-fiber involvement.
There well may be a link between small fiber neuropathy and fibromyalgia--but a lot of that would depend on what one's criteria for fibromyalgia are (a subject that is still in considerable dispute among doctors and researchers). Small fiber neuropathy, by definition, involves the small, unmyelinated nerves that subsume the sensory sensations of pain and temperature, and also most autonomic functions. There is no muscle involvement with small fiber neuropathy, as it is the larger, myelinated nerves that ennervate muscle. However, some think that muscle knots or trigger points can tighten and compress small fiber nerves that pass nearby them, leading to neural symptoms. The muscle involvement reported with fibromyalgia (myo means "muscle") makes it unlikely that small fiber dysfunction is the primary or only mechanism involved in the condition. It is likely multifactorial and would certainly involve larger, myelinated nerves as well. |
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