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Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS). |
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01-31-2014, 08:45 PM | #51 | |||
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Elder
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Question: does fibro cause spasticity-severe enough to cause a 12 degree bend in the knee joint?
I was dxd with fibro in the mid 80s and have had few flares in the past decade. I was dxd with MS in late 08 after a few years of increasing sxs. I had knee replacement surgery 8 weeks ago…the narcotics worked on the pain from spasms and the surgical site, but then I had a severe flare of fibro that continues to this day; I also had a flareup of MS sxs. The narcotics did nothing for the fibro pain. I discontinued the narcotics several weeks ago, and my joints and muscles are feeling that old familiar ripping feeling of fibro. Just wondering if the spasms are from MS or from fibro...
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09-05-2014, 02:11 PM | #52 | ||
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I realize I am on an old thread but wanted to see if there was any mention of the relationship between FMS and Small Fiber Neuropathy. I have SFN and was dx'ed about a year ago. I now have pain all over and won't go into that. I'm posting here(though I could not find the "New Thread" anywhere and I am a member)because I have recently read that there have been some small studies done on people with FMS and SFN showing that a quite a few also have SFN! Since my dx of SFN, my pain has increased, intensified and spread. I am now wondering if the SFN caused the fibro? Can anyone help me? I have been looking all over this site for more information about SFN, how to treat it, IF my symptoms are fibro and not SFN or a combination of the two. I am really searching for answers and cannot find any because SFN is pretty rare and most drs know very little about it.
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09-06-2014, 05:46 AM | #53 | ||
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Magnate
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--small fiber neuropathy is hardly rare; it is the most common type of neuropathy from diabetes and a large majority of "idiopathic" neuropathy sufferers have predominantly small-fiber involvement.
There well may be a link between small fiber neuropathy and fibromyalgia--but a lot of that would depend on what one's criteria for fibromyalgia are (a subject that is still in considerable dispute among doctors and researchers). Small fiber neuropathy, by definition, involves the small, unmyelinated nerves that subsume the sensory sensations of pain and temperature, and also most autonomic functions. There is no muscle involvement with small fiber neuropathy, as it is the larger, myelinated nerves that ennervate muscle. However, some think that muscle knots or trigger points can tighten and compress small fiber nerves that pass nearby them, leading to neural symptoms. The muscle involvement reported with fibromyalgia (myo means "muscle") makes it unlikely that small fiber dysfunction is the primary or only mechanism involved in the condition. It is likely multifactorial and would certainly involve larger, myelinated nerves as well. |
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04-22-2015, 09:21 AM | #54 | ||
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I am glad to hear there is a Dr. at U of M who has the latest information on Fibromyalgia. I was diagnosed in 2011 by a Rheumatologist after several years of going to a GP. I have tried almost every drug on the planet, and have either had an allergic reaction or it didn't work. I'm currently seeing a pain management doctor who prescribed Ketamine Infusions, PSTIM and Suboxone. I am so confused. I live close to U of M, so will try to get an appointment with Dr. Clauw. Thanks for the info!
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10-29-2019, 09:14 PM | #55 | ||
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Junior Member
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10-29-2019, 09:39 PM | #56 | ||
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Junior Member
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Also, I changed chiropractors on advice of my orthopedic specialist to a chiropractor who tests and reactivates the muscles that don't want to work properly - for me these are my glutes and lats. I also attend physical therapy there. I learn simple exercises to help me keep up or reactivate muscles and just recently added strengthening. This could mean doing only 5-10 reps because exercise exacerbates other conditions I have. I love a massage even if it's just all about an hour of relaxation. I call it my reset switch! Be your own advocate! Best of luck! |
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10-29-2019, 10:07 PM | #57 | ||
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I've been the medicine guinea pig for years. I feel your pain! It's hard to find the perfect "cocktail" for relief. One medicine I've tried with some success for general pain is Low Dose Naltrexone from a local compounding pharmacy. In larger doses, the med is used to treat drug addiction. However, Neurologists and Rheumatologists are using this medication at low doses for FM/neuropathy/arthritic pain. I was ramped up every 30 days from 1mg to 2mg to 3 mg to 4.5 mg. For onset of my headaches, I use Ketamin nose spray (also from a compound pharmacy), Clonazepam orally disintegrating tablet 0.25 mg and Carbamazepine (Tegretol), 100 mg tab chew. The ketamin burns, so I swab with a gel I was also prescribed prior to use. This is the first time I've been given this combination and it works about 50% of the time. The key is getting the meds in upon first symptoms. Mine just come on very quickly. I wish you the best of luck. Be your own advocate! |
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03-28-2021, 03:53 AM | #58 | ||
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Newly Joined
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I found it interesting that he didn’t recommend opioids but also said that tramadol had a moderate success. Tramadol is an opioid.
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