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Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS). |
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05-25-2013, 10:13 AM | #1 | ||
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I just joined this site and I am so thankful I did. Even just reading everyone's posts made me feel I'm not alone. I really get the "i'm 40 but feel like 90". I don't want to feel this way anymore. I have chronic headaches... tension I guess the most but leads to migraines. I'm suppose to see a neurologist in July at Vanderbilt and I guess go from there. I would love input from you all as to which direction to go. I just came off Paxil because I just took it while in Nursing School and all the stress with it. But all the pain is still there, from head to my toes. My shoulder blades and neck are unbearable at times. I can take a lot of pain but its to the point where I'm grouchy and I don't do things like I use to do. I've been taking Valium and Fioricet® (Butalbital, Acetaminophen, and Caffeine) and that can give me some relief for a very short while. I've taken Amitriptyline but those class of drugs make my ears ring very loud, so we stopped those in hopes of something else. I started Lyrica last night, 75mg and woke up this morning very dizzy. And I read on here about people taking 600mg a day. How does one function? Right now I'm tired, hurting and can't even think what to do next. Being in nursing.. I sure can't go around dizzy. The valium etc does not make me sleepy at all so I have no problems taking it and functioning. But I just live with the pain until I break and cannot bear it anymore. sigh... like I said... i'm just overwhelmed, hurting all over, and I don't know what to do as the drugs that are for Fibro seem to give me side effects I can't live with either. Any thoughts are appreciated so much!
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06-19-2013, 03:03 PM | #2 | |||
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Wisest Elder Ever
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This is very interesting:
http://psychcentral.com/news/2013/06...gia/56233.html nerves around certain blood vessels, which may malfunction and actually cause Fibro.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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"Thanks for this!" says: | glenntaj (06-20-2013) |
11-06-2013, 11:53 AM | #3 | |||
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Wisest Elder Ever
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Here is another new paper on Fibro and its associated pain state:
http://psychcentral.com/news/2013/11...ays/61672.html
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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01-31-2014, 08:45 PM | #4 | |||
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Elder
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Question: does fibro cause spasticity-severe enough to cause a 12 degree bend in the knee joint?
I was dxd with fibro in the mid 80s and have had few flares in the past decade. I was dxd with MS in late 08 after a few years of increasing sxs. I had knee replacement surgery 8 weeks ago…the narcotics worked on the pain from spasms and the surgical site, but then I had a severe flare of fibro that continues to this day; I also had a flareup of MS sxs. The narcotics did nothing for the fibro pain. I discontinued the narcotics several weeks ago, and my joints and muscles are feeling that old familiar ripping feeling of fibro. Just wondering if the spasms are from MS or from fibro...
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10-29-2019, 10:07 PM | #5 | ||
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Junior Member
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Quote:
I've been the medicine guinea pig for years. I feel your pain! It's hard to find the perfect "cocktail" for relief. One medicine I've tried with some success for general pain is Low Dose Naltrexone from a local compounding pharmacy. In larger doses, the med is used to treat drug addiction. However, Neurologists and Rheumatologists are using this medication at low doses for FM/neuropathy/arthritic pain. I was ramped up every 30 days from 1mg to 2mg to 3 mg to 4.5 mg. For onset of my headaches, I use Ketamin nose spray (also from a compound pharmacy), Clonazepam orally disintegrating tablet 0.25 mg and Carbamazepine (Tegretol), 100 mg tab chew. The ketamin burns, so I swab with a gel I was also prescribed prior to use. This is the first time I've been given this combination and it works about 50% of the time. The key is getting the meds in upon first symptoms. Mine just come on very quickly. I wish you the best of luck. Be your own advocate! |
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