Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS).


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Old 03-17-2011, 07:15 PM #1
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Default D-Ribose

In another thread in this forum, MrsD mentioned taking D-Ribose with a link to another thread in which she was posting updates while taking D-Ribose.

I was so intrigued with her good reaction to it, I bought a jar myself. Knock on wood....it really has been helping with energy and pain levels!

Just today on Facebook there was a post from the Fibromyalgia & Fatigue Centers talking about D-Ribose. I thought you all would be interested.

http://www.fibroandfatigue.com/the-a...-d-ribose.html
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Old 03-18-2011, 07:32 AM #2
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Thanks for the link. I have always had sore muscles, poor response to exercise and a "suspected" fibro diagnosis. But I just am not severe enough to be considered a Fibro patient.

I think the Ribose is good for anyone suspected of low mitochondrial functions...and PN and some other chronic pain states. Some drugs damage mitochondria...like statins do for lowering cholesterol. So many people may be developing low functions, where the ribose may help. Not just the Fibro patients.

I found that I do well on lower doses after 6mos of 7.5grams a day. In fact, I don't use it every day anymore. I think this summer I will however, being more active.

There are researchers who say simple aging results in low mito functions, and there are supplements for this, like Juvenon.
If you go to Juvenon.com you'll see graphics and papers about using acetyl carnitine and lipoic acid as mito supports. Both of these also help PN, it turns out.

That link I gave you to my thread has some information for diabetics. I'd like to expand on that. If any here try the ribose, be aware that some glucose monitoring meters, would read its presence and give a false high reading. The only meter I know now that is unaffected by this is One Touch. This is because the other meters use a different chemical to read the glucose. (it includes all sugars, even those in artificial sweeteners). The One Touch only reads glucose in the blood.
This post has a link that describes this chemistry in more detail.

http://neurotalk.psychcentral.com/post748576-2.html

Ribose itself does not raise glucose and has shown no effect on diabetics in gram ranges of 10gr/day.

I really don't think really high doses are necessary, but to start when you may be really low, you need to be patient. I found this a very SLOW supplement to show effects. But once it gets rolling you do feel so much better if you need it. You should know by the end of the first tub if you buy the 8oz one.

It also helped me with sleeping problems.

Thanks for the link!
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Old 03-18-2011, 12:35 PM #3
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Thanks MrsD!!! Like any supplements or medicines, I started on a low dose of it and yes, it did take awhile to notice results. And I've only been doing one scoop a day. I'm planning to up that to 2 scoops for awhile.

I love that you can't even taste it. I put mine in my morning juice and you'd never know the D-Ribose is int he juice. No taste! I remember you commenting about the smell. Guess my smeller is different because the smell doesn't bother me one way or another. The first time I opened the jar I prepared myself to be disgusted with the smell, LOL!

Thank you for the other critical information. I think this stuff is simply amazing.
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Old 03-18-2011, 12:43 PM #4
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Lightbulb

The odor is not "disgusting"....it is just unpleasant to me... like a burnt food item. (unappetizing). I don't like burnt food.

I put mine just in water, and it is just faintly sweet. Very easy, I agree.

I am glad it is working for you. I sort of feel like caffeine without the tension, etc. It is a gentle but positive "lift". It also helps me sleep.
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Old 03-18-2011, 12:47 PM #5
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I stand corrected. I'm not sure about the helping with my sleep yet. I've been having a bit of a stretch of problems with sleeping. But then...that could be for so many other reasons.

And yes, you're right. It is just a gentle lift. Like...you are almost a normal person with energy and no pain!
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Old 11-19-2015, 02:05 PM #6
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Oh I see there is an earlier posting on DRibose. I'm doing more research since I've been out of it recently and "think" I was feeling worse. Back on it thankfully. I try various brands and need to keep within my so called budget. I've found info on it's effects for pain in general too. I've been taking it off and on since about 1999 but take it faithfully at this time.
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Old 08-18-2020, 12:56 PM #7
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I was off it for some time and now back on and HOPE it will help me walk better. A fellow on an FM/CFS group said he walks much better since taking 2-3 rounded tsps daily....I'm upping my dose now and will buy the bulk product from amazon or ebay soon enough to save $$$,

5 Emerging Benefits of D-Ribose
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Old 08-18-2020, 03:36 PM #8
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@caroline2: Please post a link with the best price that you find. I shop on Vitacost and Amazon. Not so much on eBay. Also started using nuts.com for açaí.

I haven't used D-ribose in a long time. Maybe I wasn't using enough to reach an effective dose. My neuropathy is so bad this summer, I don't even want to get out of bed.

Hope everyone here is getting along.
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Old 08-18-2020, 04:22 PM #9
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I just purchased the 500grams of bulk on ebay for 26.42...amazon has same deal and if you can get within that range, it's a good deal. It's the bulk powder.
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Old 08-18-2020, 06:43 PM #10
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^^Excellent! One pound on Vitacost is approx. $42.00. I'll look on Amazon (even though I hate Amazon).
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