Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS).


advertisement
Reply
 
Thread Tools Display Modes
Old 02-14-2014, 08:54 AM #1
Babieminnie Babieminnie is offline
Junior Member
 
Join Date: Dec 2013
Location: Ohio
Posts: 12
10 yr Member
Babieminnie Babieminnie is offline
Junior Member
 
Join Date: Dec 2013
Location: Ohio
Posts: 12
10 yr Member
Default Living with Fibro & Neuropathy

I have been living with fibromyalgia for 14 years yesterday all day an night long and this morning I have been in so much severe pain I am wanting to cry it hurts so bad nothing that I have tried has seemed to help I was at the doctors yesterday and he tried to give me something new and don't you know it is not covered on my insurance I am so tired of living in pain all the time an nothing seems to help touch it. I also live with neuropathy and I have the pain there what do I do? What will ease some of my pain? I would just like to relax but cannot does anyone else have these issues?
Babieminnie is offline   Reply With QuoteReply With Quote

advertisement
Old 02-14-2014, 12:02 PM #2
Dr. Smith's Avatar
Dr. Smith Dr. Smith is offline
Senior Member (**Dr Smith is named after a character from Lost in Space, not a medical doctor)
 
Join Date: Oct 2010
Location: Lost in Space
Posts: 3,515
10 yr Member
Dr. Smith Dr. Smith is offline
Senior Member (**Dr Smith is named after a character from Lost in Space, not a medical doctor)
Dr. Smith's Avatar
 
Join Date: Oct 2010
Location: Lost in Space
Posts: 3,515
10 yr Member
Default

Hi Minnie,

I have these problems and I don't even have fibro! My wife has fibro (I have other chronic pain issues) and has found some relief/ways of coping with mindfulness meditation; she meditates for 20-30 minutes twice a day. She's pretty good when she can do her thing, and pretty bad when she can't/doesn't work it in.

I can't/won't make any promises (it doesn't work for me, for example) but if it can't hurt to try it, then it can't hurt to try it.

Another technique I've tried (with limited success) is biofeedback.

Have you been able to identify any triggers? Eliminating food triggers and making other lifestyle adjustments have been more effective than we thought.

What is it that your doctor prescribed that your insurance won't cover?

Doc

EDIT: This just in...
http://neurotalk.psychcentral.com/post1051021-1.html
__________________
Dr. Zachary Smith
Oh, the pain... THE PAIN...

Dr. Smith is NOT a medical doctor. He was a character from LOST IN SPACE.
All opinions expressed are my own. For medical advice/opinion, consult your doctor.

Last edited by Dr. Smith; 02-14-2014 at 09:27 PM. Reason: Added News Post Link
Dr. Smith is offline   Reply With QuoteReply With Quote
Old 02-15-2014, 08:46 PM #3
Babieminnie Babieminnie is offline
Junior Member
 
Join Date: Dec 2013
Location: Ohio
Posts: 12
10 yr Member
Babieminnie Babieminnie is offline
Junior Member
 
Join Date: Dec 2013
Location: Ohio
Posts: 12
10 yr Member
Default Reply Fibro & Neuropathy

Hello Dr Smith and thank you for your advice as far as food goes I can barley eat much of anything and not sure if it to deal with all the pain I am dealing with day in and out. I have not tried doing what you said that your wife does I guess it cannot hurt to try. Sorry that your living in pain an that you do not have fibromyalgia do you have neuropathy? Whatever it may be non stop severe pain it no fun what so ever usually I can tolerate pain but not as bad as I have now. I cannot remember the name of the new medicine that my insurance would not cover but it would not cover it because I am older than 18 never heard of so much silliness. I find when I do lay down a stretch out for a bit it helps a little not much but a little it is hard when you are a housewife as well and have to take care of things around the house. I hope and wish you some pain relief and it was nice to hear from you thanks again for the health tips.
Babieminnie is offline   Reply With QuoteReply With Quote
Old 02-16-2014, 08:59 AM #4
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

Medications that are not covered past 18 yrs old, are typically stimulants. They are used for ADHD (ADD) in children, and adult use may require a prior authorization.

When you are denied this way, you should find out if a prior authorization by the doctor, is allowed. This then is evaluated and often allowed for special circumstances. Often this is done by phone or fax from the doctor's office. So call your insurance carrier for more details.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dr. Smith (02-16-2014)
Old 02-16-2014, 12:35 PM #5
Dr. Smith's Avatar
Dr. Smith Dr. Smith is offline
Senior Member (**Dr Smith is named after a character from Lost in Space, not a medical doctor)
 
Join Date: Oct 2010
Location: Lost in Space
Posts: 3,515
10 yr Member
Dr. Smith Dr. Smith is offline
Senior Member (**Dr Smith is named after a character from Lost in Space, not a medical doctor)
Dr. Smith's Avatar
 
Join Date: Oct 2010
Location: Lost in Space
Posts: 3,515
10 yr Member
Default

Hi Minnie,

I do have peripheral neuropathy (PN), and severe osteoarthritis OA), but the pain from those is overshadowed by the effects of the OA and degenerative disc disease (DDD). The discs near the top & bottom of my spine are pressing against nerves (stenosis), and in a couple of places there is so little disk material left as to leave bone-on-bone. The vertebrae in my neck have begun to autofuse, which is good in some ways—not so good in others. My doctors tell me I'm inoperable due to the severity of the arthritis.

I was going to say pretty much what MrsD said about getting prior approval—or override—with medical justification from your doctor for the medication. Exceptions can sometimes be made for insurance company R&Rs (I agree that many are inane—even stupid) but it takes a doctor who is willing to go to bat for his/her patients, knows how—and is willing to—play their game, and has the gumption.

If you haven't read/seen it yet, here's a book many chronic painees here (and everywhere) have read and recommended. It's free to download, and contains much useful information.

The Intractable Pain Patients Handbook for Survival

In looking for the above link (the previous link has expired) I also came across this:

More Evidence That Naltrexone Aids Fibromyalgia

Doc
__________________
Dr. Zachary Smith
Oh, the pain... THE PAIN...

Dr. Smith is NOT a medical doctor. He was a character from LOST IN SPACE.
All opinions expressed are my own. For medical advice/opinion, consult your doctor.
Dr. Smith is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SloRian (01-11-2015)
Old 03-15-2014, 01:52 AM #6
twilightlilly twilightlilly is offline
New Member
 
Join Date: Mar 2014
Location: West Palm Beach, FL
Posts: 2
10 yr Member
twilightlilly twilightlilly is offline
New Member
 
Join Date: Mar 2014
Location: West Palm Beach, FL
Posts: 2
10 yr Member
Default

Quote:
Originally Posted by Babieminnie View Post
I have been living with fibromyalgia for 14 years yesterday all day an night long and this morning I have been in so much severe pain I am wanting to cry it hurts so bad nothing that I have tried has seemed to help I was at the doctors yesterday and he tried to give me something new and don't you know it is not covered on my insurance I am so tired of living in pain all the time an nothing seems to help touch it. I also live with neuropathy and I have the pain there what do I do? What will ease some of my pain? I would just like to relax but cannot does anyone else have these issues?
I have received relief from acupuncture. It is actually the only thing that has helped me. I tried it when I was at a point of desperation. Good luck.
twilightlilly is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Sea Pines 50 (03-15-2014)
Old 01-11-2015, 04:03 PM #7
SloRian's Avatar
SloRian SloRian is offline
Member
 
Join Date: Apr 2013
Location: Phoenix, AZ
Posts: 212
10 yr Member
SloRian SloRian is offline
Member
SloRian's Avatar
 
Join Date: Apr 2013
Location: Phoenix, AZ
Posts: 212
10 yr Member
Default

Quote:
Originally Posted by Dr. Smith View Post
Hi Minnie,

I do have peripheral neuropathy (PN), and severe osteoarthritis OA), but the pain from those is overshadowed by the effects of the OA and degenerative disc disease (DDD). The discs near the top & bottom of my spine are pressing against nerves (stenosis), and in a couple of places there is so little disk material left as to leave bone-on-bone. The vertebrae in my neck have begun to autofuse, which is good in some ways—not so good in others. My doctors tell me I'm inoperable due to the severity of the arthritis.

I was going to say pretty much what MrsD said about getting prior approval—or override—with medical justification from your doctor for the medication. Exceptions can sometimes be made for insurance company R&Rs (I agree that many are inane—even stupid) but it takes a doctor who is willing to go to bat for his/her patients, knows how—and is willing to—play their game, and has the gumption.

If you haven't read/seen it yet, here's a book many chronic painees here (and everywhere) have read and recommended. It's free to download, and contains much useful information.

The Intractable Pain Patients Handbook for Survival

In looking for the above link (the previous link has expired) I also came across this:

More Evidence That Naltrexone Aids Fibromyalgia

Doc
Those are great links - thanks!
SloRian is offline   Reply With QuoteReply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Health Advice for Peripheral Neuropathy & Drug Induced/ Toxic Neuropathy Jesse M Peripheral Neuropathy 78 08-01-2015 08:59 PM
interesting video, LIVING WELL CHALLENGE: THE 10 COMMANDMENTS OF LIVING WELL WITH PAR soccertese Parkinson's Disease 0 12-19-2012 07:08 PM
Secondary Fibro? Fibro-like Symptoms? Idealist Fibromyalgia and Chronic Fatigue 19 09-09-2012 06:02 PM
Is Fibro the new name for Small Fiber Neuropathy? cyclelops Peripheral Neuropathy 31 08-31-2012 12:36 AM
Small Fiber Neuropathy (or Length-Dependent Neuropathy) plgerrard PN Tips, Resources, Supplements & Other Treatments 1 05-09-2010 06:56 AM


All times are GMT -5. The time now is 02:50 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.