Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS).


advertisement
Reply
 
Thread Tools Display Modes
Old 07-07-2014, 11:21 PM #1
kalli kalli is offline
New Member
 
Join Date: Jul 2014
Posts: 4
8 yr Member
kalli kalli is offline
New Member
 
Join Date: Jul 2014
Posts: 4
8 yr Member
Post advice for a young one

Having fibro, myofascial, neuropathy, sciatica and 3 herniated discs (lumbar), SI joint dysfunction, DDD, and stenosis. I need it tattooed somewhere to keep up the list....sadly some people have more and they have my sympathy and prayers!!!!
I feel like when I get one "okay" the other decide to act up. I have been diagnosed with fibro/myo for over 2 years; thought it is I've had it most of my life. I was a preemie (1lb 8 oz; 20 weeker). I've put my body through some hard stuff (racing, taekwondo, weight training) but not as much as some, I realize that. At 28, my parents are in better shape than I am (pain wise). I have managed to get off all my meds (Cymbalta--hell; and arthrotec) and am only taking vitamins and tylenol or aleve to take the edge off pain.
I get massages (trigger release) twice a month. Expensive but needed.
I am having trouble now with my neuropathy (came back after I got off Cymbalta, I am allergic to Gabapentin). I take pro-biotics to help my immunity. I was wondering: What is a good position to sleep in when your legs act up?
Also: My arms and legs do okay with movement but if I have to hold something for a period of time, my arms get real weak. If I stand still for a period of time my legs get real wobbly.
I am back in Taekwondo once a week to help me lose the 30+ pounds I gained from my meds and my sedentary lifestyle. I don't expect miracles, but I know people have good advice.

Thank you for your patience and may you know each day is not in vain.

Blessings,
Kalli
kalli is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Lara (07-19-2014)

advertisement
Old 07-18-2014, 11:34 PM #2
sick-of-being-sick3 sick-of-being-sick3 is offline
n/a
 
Join Date: May 2012
Posts: 33
10 yr Member
sick-of-being-sick3 sick-of-being-sick3 is offline
n/a
 
Join Date: May 2012
Posts: 33
10 yr Member
Default

sorry to hear people like you give me encourage men to fight harder

the legs ebay has wedges all sizes upper or lower body

sometimes nothing works and i just have to wait ti out

im on feyntenal for my leg problems

good luck
sick-of-being-sick3 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Lara (07-19-2014)
Old 07-19-2014, 05:48 AM #3
Lara Lara is offline
Legendary
 
Join Date: Sep 2006
Posts: 10,984
15 yr Member
Lara Lara is offline
Legendary
 
Join Date: Sep 2006
Posts: 10,984
15 yr Member
Default

Quote:
Originally Posted by kalli View Post
I am having trouble now with my neuropathy
(came back after I got off Cymbalta, I am allergic to Gabapentin).
I take pro-biotics to help my immunity. I was wondering:
What is a good position to sleep in when your legs act up?
Hi Kalli,
Welcome to the NeuroTalk Support Groups.

I know you've made a few posts already, but I just wanted to say hello
and to tell you that there is a Peripheral Neuropathy Forum here and the
members there may be able to give you some ideas about sleeping positions etc..

There's actually also a subforum for PN

PN Tips, Resources, Supplements & Other Treatments Forum

take care there...
Lara is offline   Reply With QuoteReply With Quote
Old 07-19-2014, 09:41 AM #4
anon1028 anon1028 is offline
n/a
 
Join Date: May 2013
Posts: 1,229
10 yr Member
anon1028 anon1028 is offline
n/a
 
Join Date: May 2013
Posts: 1,229
10 yr Member
Default

my brain innury doctor told me I have fibro yesterday so I don't know what to think lol but if you can't take gaba0entin there are other meds out there dd you want to try one of them and talk to your doctor.
anon1028 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Lara (07-19-2014)
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Looking for advice from moms with rsd and young children Allanira Reflex Sympathetic Dystrophy (RSD and CRPS) 4 11-12-2013 03:06 PM
TBI\Concussion impacts for those who are young and those not so young rmschaver Traumatic Brain Injury and Post Concussion Syndrome 4 07-31-2012 04:08 PM
too young tornado New Member Introductions 2 02-23-2011 02:13 AM
MVD for someone young with TN sadie324 Trigeminal Neuralgia 2 02-06-2011 02:28 PM
too young to have TN bthomas527 Trigeminal Neuralgia 3 11-22-2010 01:48 PM


All times are GMT -5. The time now is 02:33 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.