NeuroTalk Support Groups - Secondary Fibro? Fibro-like Symptoms?

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- Fibromyalgia and Chronic Fatigue (https://www.neurotalk.org/fibromyalgia-and-chronic-fatigue/)

- - Secondary Fibro? Fibro-like Symptoms? (https://www.neurotalk.org/fibromyalgia-and-chronic-fatigue/21353-secondary-fibro-fibro-symptoms.html)

As far as the cause of Fibromyalgia goes, there is no official explanation: could be infection (with mycoplasma or other pathogens), stress, childhood or other trauma, spinal cord injury, thyroid problems, etc.
I would go with the rheumy, as others said. My orthopedic doctor doesn't particularly believe in fibro. He calls it polymalgia.
I even had a neurologist who didn't believe in him.
Stay with the docs that help you out.

This is a good thread. I have been looking for one. Trying to understand better.

I have a good doctor just learning this disorder. And wanting to know what I'm doing more.

So thanks and keep adding.

Donna

From what I've been learning is that Fibro is actually Flouride poisioning. The symptoms are identical. But they will not admit this because of possible law suits. It reminds me of what happened to my father with Agent Orange. They waited till it was to late and no chance of fighting it to admit he had it and how he got it. By time he was properly diagnosed with it he had only 2 yrs left to live. Although Fibro won't kill us so they say. It can be directly connected to flouride poisioning, but they don't tell you this. And most doctors themselves don't make the connection as well.

Secondary, primary. To me it's all a way to keep us in circles so that we don't find the truth behind it all.

Personally I'm not waiting around for a cure from people who've been covering up the cause. I'm trying to find a way to eliminate Flouride from everything I consume. And see if that helps. Although who knows how bad the damage is already done and how much of it's reversible.

Sara

Well, Sara you bring up an intrguing idea but I just looked up fluoride poisoning and none of my symptoms are there.
Can you lead me to more information about the FM/fluoride link?

this is to idealist about secondary fm what the others have said is right,but maybe u should go to a neurologist and see what they say i've read that fm is a neuro problem and not related to arthritis.have u checked out mayofascialpain disorder? hope this helps:)?

Quote:

Originally Posted by nancy-h (Post 113591)

Listen to your rheumy and as long as his paperwork is done properly along with any and all other docs you see, you should be ok.

nh

Hey Nancy, I was just reading over your reply, and I just left a response to someone else about author Devin Starlanyl. He has another book co written with Mary Ellen Copeland titled: Fibromyalgia & Chronic Myofascial Pain (2nd edition). I highly recommend it! I hope that all who have responded gets a grip on their fibro. Don't give up, relief can be achieved. (I hope) LOL:rolleyes:

Wow, this post is getting old, but it's getting better, too. Tinkieanne, I have been to a neurologist a few times. In fact, so far I've seen 28 doctors and specialists of one kind or another, and been to six hospitals. I do suffer from MPS on occasion, but it usually happens because I tighten myself up so much to minimize the other pain. Thanks for the input. It all makes me think.

DizySara, I've never heard of the flouride connection before. Can you tell me where you read that at? I live out in the country, so our water isn't flourinated. It comes strait from a well. Isn't water the major source of fluoride in most people's diets? I'd love to hear anything else you know on the subject.

I've continued to grow and learn with my conditions, and I put a lot of effort into it. I consider myself rather well-informed. But there are so many opinions out there right now that it would drive Confuscious crazy!

Thanks everyone for all your thoughts and advice. It's a really big help to be able to discuss this with people who really know what I'm talking about.

Idealist

I have fibro and Sjogren's - sometimes hard to know what's going on. But I have found a good rheumy and hope you have a good one, too. I am on permanent disability. Good doctor will keep you safe with that.

Wish you well.

therapydogmom

I haven't been diagnosed with Fibromayalgia. I stumbled over for information. I'm 3 months into whiplash despite massage therapy im still in chronic pain.

The last 2 weeks I have neck pain, shoulder pain (spasms), right up to my elbow followed by tingling and numbness and cold hands.

Yesterday was my left arm. I woke up with migraine, neck and shoulder pain but my arms were fine until I tapped my right arm on a door handle and for the last 2 hrs I've been in agony!

hand and arm is freezing cold and numb, tingly and oh so painful.

My doctors is closed today. Could this be Fibro or pinched nerve?

I have all the other cognitive symptoms but I also have post concussion syndrome.

Thanks

Kelly

not fibro, no such thing...........

Quote:

Originally Posted by Idealist (Post 110388)

Can anyone out there explain to me what terms like that are supposes to mean? I understand that my fibro was caused by the chronic pain I've lived with for five years now. I was diagnosed with the fibro four years ago. So far I have seen twenty-seven doctors and specialists, and they still haven't diagnosed the source of my original pain. But each one of them seems to have a different perspective on fibromyaligia. Some say I have it, others say that it's a secondary condition, so it's not that important. And now I keep hearing that I don't have fibro at all, just "fibro-like reactions to living with pain all the time."

When a Rheumatologist first diagnosed me with fibromyalgia, I researched the condition very thoroughly, and one thing that I read over and over again is that this condition is usually unleashed by some type of physical or mental trauma in the patient's life. Does the fact that the trauma still exists mean that the fibro doesn't? It wouldn't bother me so much except for two reasons. One is that my disability is officially for fibro. And the other is that some of the specialists I go to seem to immediately view me differently when I use the word fibro at all.

Has anyone else had to deal with this problem? I know I can't be the only one who has fibro in conjunction with other illnesses. Have any of you been told that it's not important because something else is worse? I would really love to come up with some effective line to use with these doctors so they would quit making me feel like an idiot.

I am so sorry you have had to go through all this. I also went through it untill I was allowed to see a fabulous neuroscientist at Mass General. Bottom line, she wrote and article to neruologist.....start looking at the immue system. There are all these new things. Treatment for me was successful. I have small fiber polyneuropathy and ra and low immunse system....ie, i get infusions. My doc is not someone that I can put out here but I can assure you, she thinks they are just calling it that.......good luck ....I also have sjrogens all auto immune diseases that have names

Thanks A Lot, Everyone,
Idealist

I am so sorry you have had to go through all this. I also went through it untill I was allowed to see a fabulous neuroscientist at Mass General. Bottom line, she wrote and article to neruologist.....start looking at the immue system. There are all these new things. Treatment for me was successful. I have small fiber polyneuropathy and ra and low immunse system....ie, i get infusions. My doc is not someone that I can put out here but I can assure you, she thinks they are just calling it that.......good luck ....I also have sjrogens all auto immune diseases that have names