Originally Posted by nancy-h

Listen to your rheumy and as long as his paperwork is done properly along with any and all other docs you see, you should be ok.

nh

Originally Posted by Idealist

Can anyone out there explain to me what terms like that are supposes to mean? I understand that my fibro was caused by the chronic pain I've lived with for five years now. I was diagnosed with the fibro four years ago. So far I have seen twenty-seven doctors and specialists, and they still haven't diagnosed the source of my original pain. But each one of them seems to have a different perspective on fibromyaligia. Some say I have it, others say that it's a secondary condition, so it's not that important. And now I keep hearing that I don't have fibro at all, just "fibro-like reactions to living with pain all the time."

When a Rheumatologist first diagnosed me with fibromyalgia, I researched the condition very thoroughly, and one thing that I read over and over again is that this condition is usually unleashed by some type of physical or mental trauma in the patient's life. Does the fact that the trauma still exists mean that the fibro doesn't? It wouldn't bother me so much except for two reasons. One is that my disability is officially for fibro. And the other is that some of the specialists I go to seem to immediately view me differently when I use the word fibro at all.

Has anyone else had to deal with this problem? I know I can't be the only one who has fibro in conjunction with other illnesses. Have any of you been told that it's not important because something else is worse? I would really love to come up with some effective line to use with these doctors so they would quit making me feel like an idiot.

I am so sorry you have had to go through all this. I also went through it untill I was allowed to see a fabulous neuroscientist at Mass General. Bottom line, she wrote and article to neruologist.....start looking at the immue system. There are all these new things. Treatment for me was successful. I have small fiber polyneuropathy and ra and low immunse system....ie, i get infusions. My doc is not someone that I can put out here but I can assure you, she thinks they are just calling it that.......good luck ....I also have sjrogens all auto immune diseases that have names

Thanks A Lot, Everyone,
Idealist