Yes, thanks guys for all your wisdom and help. I consider myself fairly well educated about FMS as a condition, but the reason why I am concerned is that mine is not the major problem with me. I have another, undiagnosed condition that causes most of my problems. But since it hasn't been classified yet, my disability is based on my fibro, so it worries me some when the docs start telling me that I don't really have it, even though it was diagnosed in me by a Rheumatologist.

Listen to the Rheumy.....he would know best.

Listen to your rheumy and as long as his paperwork is done properly along with any and all other docs you see, you should be ok.

nh

As far as the cause of Fibromyalgia goes, there is no official explanation: could be infection (with mycoplasma or other pathogens), stress, childhood or other trauma, spinal cord injury, thyroid problems, etc.
I would go with the rheumy, as others said. My orthopedic doctor doesn't particularly believe in fibro. He calls it polymalgia.
I even had a neurologist who didn't believe in him.
Stay with the docs that help you out.

This is a good thread. I have been looking for one. Trying to understand better.

I have a good doctor just learning this disorder. And wanting to know what I'm doing more.

So thanks and keep adding.

Donna

From what I've been learning is that Fibro is actually Flouride poisioning. The symptoms are identical. But they will not admit this because of possible law suits. It reminds me of what happened to my father with Agent Orange. They waited till it was to late and no chance of fighting it to admit he had it and how he got it. By time he was properly diagnosed with it he had only 2 yrs left to live. Although Fibro won't kill us so they say. It can be directly connected to flouride poisioning, but they don't tell you this. And most doctors themselves don't make the connection as well.

Secondary, primary. To me it's all a way to keep us in circles so that we don't find the truth behind it all.

Personally I'm not waiting around for a cure from people who've been covering up the cause. I'm trying to find a way to eliminate Flouride from everything I consume. And see if that helps. Although who knows how bad the damage is already done and how much of it's reversible.

Sara

Well, Sara you bring up an intrguing idea but I just looked up fluoride poisoning and none of my symptoms are there.
Can you lead me to more information about the FM/fluoride link?

Hey Nancy, I was just reading over your reply, and I just left a response to someone else about author Devin Starlanyl. He has another book co written with Mary Ellen Copeland titled: Fibromyalgia & Chronic Myofascial Pain (2nd edition). I highly recommend it! I hope that all who have responded gets a grip on their fibro. Don't give up, relief can be achieved. (I hope) LOL

Wow, this post is getting old, but it's getting better, too. Tinkieanne, I have been to a neurologist a few times. In fact, so far I've seen 28 doctors and specialists of one kind or another, and been to six hospitals. I do suffer from MPS on occasion, but it usually happens because I tighten myself up so much to minimize the other pain. Thanks for the input. It all makes me think.

DizySara, I've never heard of the flouride connection before. Can you tell me where you read that at? I live out in the country, so our water isn't flourinated. It comes strait from a well. Isn't water the major source of fluoride in most people's diets? I'd love to hear anything else you know on the subject.

I've continued to grow and learn with my conditions, and I put a lot of effort into it. I consider myself rather well-informed. But there are so many opinions out there right now that it would drive Confuscious crazy!

Thanks everyone for all your thoughts and advice. It's a really big help to be able to discuss this with people who really know what I'm talking about.

Idealist

I haven't been diagnosed with Fibromayalgia. I stumbled over for information. I'm 3 months into whiplash despite massage therapy im still in chronic pain.

The last 2 weeks I have neck pain, shoulder pain (spasms), right up to my elbow followed by tingling and numbness and cold hands.

Yesterday was my left arm. I woke up with migraine, neck and shoulder pain but my arms were fine until I tapped my right arm on a door handle and for the last 2 hrs I've been in agony!

hand and arm is freezing cold and numb, tingly and oh so painful.

My doctors is closed today. Could this be Fibro or pinched nerve?

I have all the other cognitive symptoms but I also have post concussion syndrome.

Thanks

Kelly