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Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS).

Could I have Fibro after 15 years of muscle fasiculations ?

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Old 01-01-2016, 02:57 PM   #1
pennben
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Default Could I have Fibro after 15 years of muscle fasiculations ?

Just a quick history of my symptoms...

About 15 years ago I was at a conference in Chicago and for what ever reason I started getting muscle twitching all over my body, legs, chest, back, all over...it freaked me out of course..over time the entire body wide twitching settled down and just remained in my calves mostly. I would get a thumper in my arms or other muscles sometimes but they didn't last long. After about 2 years of Dr visits and tons of blood work and 3 EMG's over the span of that 2 years they diagnosed me with benign fasciculation syndrome. OK..thats great no serious motor neuron disease. I went about my life as normal as I could except for the constant legs twitching and aches and pains that would move around my body.
Fast forward to this year 15 years after twitching and muscle pain started and I had a knee replacement this summer due to an old sports injury that had my knee bone on bone. Trying to recover from the surgery was and is a struggle, even my good leg is feeling strange, calf and thigh muscle get sore daily and I'm not doing that much other than walking as best I can from the knee replacement. Feet, ankles, calves and even up into the thigh muscles are sore all the time. Lower back pain that moves around from side to side. Back muscles get sore, shoulders hurt then they get better after a day or so. Just all around body aches and pains. I'm going to a neurologist now and they gave me Lyrica, 50 Mg which does make me sleep, can't say it kills the muscle pains and aches. They are sending me to aqua therapy and ordered another EMG. I don't know what Fibro people feel and was wondering if its possible I have it ?
I'm in my lower 60's, and can't believe this is a age related thing.
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Old 01-01-2016, 05:05 PM   #2
caroline2
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Hi, I don't know who FM people like either, for the most part. I was dx'd with FM in 1999 after an emotional trauma, job loss at 61. Fight/flight/fright set in my body as it went into a concrete block like feeling. I truly believe so much of the FM issue is firstly thyroid dsyfunction. I finally got on desiccated thyroid support in 2002 and believe had I been on it at time of trauma, my body would have reacted differently. This is my theory after all these years. I had been trying to thyroid supported starting in 1991. 10 yrs of depression led me to believe it was thyroid and the lab numbers told the MD I was normal.....NOT SO. I've also worked on hormones with DHEA for years under my IM's supervision and adrenals and take a multitude of supps including importantly magnesium.

I've never had the twitching you mention, so that has not been my issue.

On your knee replacement, I have had a holy mess from hip replacement in 2010 which made the OA knee worse and the whole body is off from this replacement.

So I chug along at 77 with supps, knee supports, ankle supports and back support. OA started in my body at 18 and here I am hobbling thru this life but prior to my hip job I had done a LOT in my life....no surgery except hysterectomy in the 80's which left me with sciatic nerve damage.

I am dealing with nerve damage from anterior hip replacement which brought me to NT when I was looking for support group re: nerve damage.

I'll stop now with my issues and you may want to say more now. I've taken none of the drugs for the FM issues which as I've read long time back, FM is close to rheumatism but with a modern day name and new drugs.

I hope you get some insights here. Welcome.
__________________
OA onset at 18, now 79. Fibro onset at 61, Hip Replacement "mess" 72 (nerve damage, IT band damage, shorter leg). Otherwise, pretty good health.

Most important supplement: grape seed extract
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Old 01-03-2016, 06:35 AM   #3
pennben
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Quote:
Originally Posted by caroline2 View Post
Hi, I don't know who FM people like either, for the most part. I was dx'd with FM in 1999 after an emotional trauma, job loss at 61. Fight/flight/fright set in my body as it went into a concrete block like feeling. I truly believe so much of the FM issue is firstly thyroid dsyfunction. I finally got on desiccated thyroid support in 2002 and believe had I been on it at time of trauma, my body would have reacted differently. This is my theory after all these years. I had been trying to thyroid supported starting in 1991. 10 yrs of depression led me to believe it was thyroid and the lab numbers told the MD I was normal.....NOT SO. I've also worked on hormones with DHEA for years under my IM's supervision and adrenals and take a multitude of supps including importantly magnesium.

I've never had the twitching you mention, so that has not been my issue.

On your knee replacement, I have had a holy mess from hip replacement in 2010 which made the OA knee worse and the whole body is off from this replacement.

So I chug along at 77 with supps, knee supports, ankle supports and back support. OA started in my body at 18 and here I am hobbling thru this life but prior to my hip job I had done a LOT in my life....no surgery except hysterectomy in the 80's which left me with sciatic nerve damage.

I am dealing with nerve damage from anterior hip replacement which brought me to NT when I was looking for support group re: nerve damage.

I'll stop now with my issues and you may want to say more now. I've taken none of the drugs for the FM issues which as I've read long time back, FM is close to rheumatism but with a modern day name and new drugs.

I hope you get some insights here. Welcome.
Caroline,

Thanks for the reply.

Actually I do have an underactive thyroid and didn't know this until about 2 years ago when I had some blood work done during a routine physical. My count was around 6.5 and they said that was to high. So I've been taking Levonthroxide 25 mcg and my blood work went to around 3.o which they said was normal. So I don't know how long it was bad but I can't say that it has made any difference in my symptoms.
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Old 01-03-2016, 11:40 AM   #4
caroline2
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Hi, I just posted this the other day. I NEVER did good on the thyroid med you are taking. I love the way doctors used "normal"... I heard that word for 10 miserable years.

http://neurotalk.psychcentral.com/thread230559.html
__________________
OA onset at 18, now 79. Fibro onset at 61, Hip Replacement "mess" 72 (nerve damage, IT band damage, shorter leg). Otherwise, pretty good health.

Most important supplement: grape seed extract
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