Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS).


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Old 01-15-2016, 04:53 PM #1
pennben pennben is offline
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Default Just had EMG and NCS..EMG OK NCS NOT OK

The EMG guy told me my EMG part on all 4 limbs was basically a normal study, muscles were quite with needle in and when I moved muscle he got the response that was normal. Even though my calves twitch constantly and you can see them he said none showed up in the EMG which is weird.

The NCS study on all four limbs was not as good. He said the responses were all slow and said that was the myelin sheath damage that causes the slow response. He said he would send report to DR next week.

SO what does having slow and myelin sheath issues possibly mean ? Are there drugs to help heal the myelin issues ?

I've had muscle twitching for over 15 years now but never had the muscle aches and pains I get lately.
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Old 01-15-2016, 08:16 PM #2
caroline2 caroline2 is offline
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You mention myelin sheath, well a naturopath suggested 4 remedies for the Burn issue I have dealt with since hip replacement nerve damage which was 5 yrs of burn/tingle.

I took Sphingolin and Inosine for 3 months and the burn/tingle is gone. I still get "twitching" now and then and think MAYBE the nerves are trying to come back but who knows. 80% of my thigh is still numb but burn is gone.

Read up on these two and see what you think. I bought them from pureformulas

Do you feel better now on the Levo? I read your other post and you mentioned under active thyroid.
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Old 01-16-2016, 07:28 AM #3
pennben pennben is offline
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Quote:
Originally Posted by caroline2 View Post
You mention myelin sheath, well a naturopath suggested 4 remedies for the Burn issue I have dealt with since hip replacement nerve damage which was 5 yrs of burn/tingle.

I took Sphingolin and Inosine for 3 months and the burn/tingle is gone. I still get "twitching" now and then and think MAYBE the nerves are trying to come back but who knows. 80% of my thigh is still numb but burn is gone.

Read up on these two and see what you think. I bought them from pureformulas

Do you feel better now on the Levo? I read your other post and you mentioned under active thyroid.
Hi Caroline,

My Thyroid blood tests which I had a few weeks ago showed TSH 3.310 and T4 FREE was .90. Dr said this was in normal range....range in TSH is .35 to 5.50 the sheet said. T4 range is .56 to 1.64.
DO I feel better since taking the Levo ? Honestly I didn't notice much of any change since I started taking it back in February of this year.

Since the EMG part was normal that sort of makes me feel a little better, he did strength tests on me, arms, hands and legs and said my strength was powerful. But this morning I have pain in my achillies tendon on my right leg really bad and I'm not sure what I did to hurt it. It didn't hurt yesterday after the procedure and when I came home it was OK. Over night it just started to hurt. I did do my normal exercises like toe and heel raises and squats that I do for me knee, but I do those every day. I just took a hydrocodone the pain is so bad. I've had this before but not this bad, and when it happened before I actually hurt it by twisting from hitting too many golf balls. It just seems like my ankles are weak and prone to injury quickly. The seem to heal up quickly also. In a day or 2 this pain will subside. And maybe that's do to the myelin issues the EMG guy said I had, I don't know but its frustrating. I'm wondering if the NCS might have stressed out the nerve on that ankle ?
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Old 01-16-2016, 03:54 PM #4
caroline2 caroline2 is offline
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Hi again, that is higher end TSH, the lower the better. And that is low T4, it needs to be higher end and where is the T3 #. I've followed the advice of stop the thyroid madness (STTM) people and the author of the book by the same name and own the book. I went thru 10 yrs of holy H starting back in 1991 and then finally in 2002 my D.O. called in, no labs etc, and 10 yrs of depression lifted in 4 days...he called in Armour...TODAY, all conventional thyroid "experts" will only prescribe Levo T4 thyroid support...it doesn't support most folks as I've followed so many on my path.

I have a high school friend in Pgh, so we go back MANY years and we talked about thyroid for years and she had the hardest time finding an MD who would work with NDT (natural desiccated thyroid)...she finally did, a sort of an MD friend.

If you can ever see your way to an integrative/functional MD they will work with NDT and know so much more about the thyroid symptoms vs numbers...numbers in today's modern world are guidelines but long before labs, doctors prescribed NDT by symptoms. I've studied this thyroid issue and read books since 1991 when I was about 53. Didn't finally get on NDT until about 63....lot of years of misery.

http://neurotalk.psychcentral.com/thread230559.html

Take care and keep seeking the "good" stuff for healing best.
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