Go Back   NeuroTalk Support Groups > >

Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS).

confused diagnosis

Reply
 
Thread Tools Display Modes
Old 05-12-2016, 03:41 AM   #1
indigo
Junior Member
 
Join Date: Aug 2015
Location: New Zealand
Posts: 71
Default confused diagnosis

hi I have been ill for 3 years now with severe ongoing pain both muscular and neuropathic, significant fatigue and multiple neurological symptoms such as difficulty walking, speech impediment etc. the doctor that I first saw suggested that I probably had fibromyalgia and that certainly seemed the case for the first 6 to 8 months. I had all of the symptoms of fibromyalgia. However things began to change as I developed more symptoms that I don't think fit for the diagnosis including as I said before speech impediment, and other things such as photosensitivity, difficulties using my hands, etc.

I've ended up with two diagnoses both of which have created more problems than help. I don't really fit anywhere. My diagnoses are functional neurological disorder and Central sensitisation. Pain is by far the biggest issue but I have multiple other symptoms that affect my life a great deal.

I saw a pain specialist who examined me and she checked the 18 points that are sometimes used when a doctor is trying to diagnose fibromyalgia. 14 out of the 18 were extremely painful. I don't know if this is a good way to reach a diagnosis but it does make me wonder if I have fibromyalgia as 1 of the things I am dealing with. I guess my question is what has been the experience of other people with fibromyalgia? have some people then gone on to develop Central sensitisation or something similar? I have read some things on the Net about this.

I did see a rheumatologist but it was a complete waste of time and money. He didn't exam me and decided my symptoms were the result of using antidepressants. Any thoughts or advice would be appreciated. Thank you.
indigo is offline   Reply With Quote
"Thanks for this!" says:
bddouglas (05-30-2016), heb1212 (06-21-2016), St George 2013 (05-13-2016)
Old 05-30-2016, 09:57 PM   #2
bddouglas
Member
 
Join Date: Jul 2014
Posts: 141
Default

I have seen 2 rheumatologists and both of them have checked the trigger points and I have had significant pain 18/18. Yes, Fibro is an individualized syndrome (as they like to call it) and I had all that you had. I don't think I would call what I experience a speech impediment, I have slurring, stuttering and stammering. I often forget words in the middle of sentences. I have also undergone testing for the past couple of years and recently been Dx'd with MS. I was originally Dx'd with Fibro 2 yrs ago when they could not conclusively Dx me with MS.

Both rheumies and my neuro (and my PCP) kept telling me my symptoms were normal for Fibro. I hope this helps a little.
bddouglas is offline   Reply With Quote
"Thanks for this!" says:
beatle (06-12-2016), bluesfan (06-02-2016), indigo (06-03-2016)
Old 06-03-2016, 03:32 AM   #3
indigo
Junior Member
 
Join Date: Aug 2015
Location: New Zealand
Posts: 71
Default

Hey thank you very much. That is helpful. I have the same sort of difficulties with speech that you mention. I probably use speech impediment as short hand to describe what's happening. The neurologist in 2013 was almost certain that I had MS but all tests came back clear. Most medical people who see me presume I have MS because of the way I move. The hospital refuses to retest me. This week my GP confirmed she believes I have fibromyalgia (alongside the neurological and pain disorder)and she is allowed to diagnose me so next week I'm contacting the Arthritis foundation. Thanks for replying to my post. All the best.
indigo is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Confused and Concerned - New Tourette's Diagnosis SeekingMom Tourette Syndrome 8 05-18-2013 08:01 PM
Confused by quick diagnosis dcb123 Parkinson's Disease 3 04-12-2012 11:31 AM
Yet another diagnosis I am so confused! Liftyourhands7 Peripheral Neuropathy 18 11-14-2011 07:32 AM
Diagnosis Parkinson's Disease: You Are Not Alone Video Diagnosis Parkinson's Diseas Stitcher Parkinson's Disease 0 02-01-2009 11:56 PM
Fibromyalgia Syndrome: Presentation, Diagnosis, and Differential Diagnosis firemonkey Fibromyalgia and Chronic Fatigue 0 11-19-2006 08:51 PM


All times are GMT -5. The time now is 08:33 AM.
Brought to you by the fine folks who publish mental health and psychology information at Psych Central Mental Health Forums

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider. Always consult your doctor before trying anything you read here.


Powered by vBulletin • Copyright ©2000 - 2018, Jelsoft Enterprises Ltd.
Search Engine Optimisation provided by DragonByte SEO v2.0.31 (Lite) - vBulletin Mods & Addons Copyright © 2018 DragonByte Technologies Ltd.

All posts copyright their original authors Community Guidelines Terms of Use Privacy Policy