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Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS).

A few fibro questions

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Old 06-04-2016, 01:28 PM   #1
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Default A few fibro questions

Hello everybody!

I want to preface these questions by stating that I have not been diagnosed with fibromyalgia (yet) but am in the process of seeing a rheumatologist - first appointment in 3 weeks.

That being said, I have had a few blood tests done to determine the cause of my extreme joint pain and neuropathy in my feet. I've had joint pain (that I have assumed is in my joints, anyway) for the past 3 years. It moves around from spot to spot, sometimes going away for months at a time. It's been at an all time horrible level as of lately, with 4-5 joints affected starting around 6-7 pm every single night. My blood tests came back with a positive rheumatoid factor (112) an elevated sed rate, and an elevated c-reactive protein. Negative ANA - ruling out lupus. My doctor thinks RA, but I honestly don't have much of the symptoms other than the joint pain. I don't really have the swelling, the redness, the lumps, the joint pain occurring in both joints at the same time. I also can't find anything about an RA flare lasting for weeks at a time with extreme flare ups every single evening.

Along with the joint pain is the neuropathy in my feet. Numbness, tingling, burning. The thing about it is though, it kind of comes and goes, but has been absolutely horrible lately along with my pain. I have a few other fibro symptoms as well, the extreme fatigue, depression & anxiety, and my symptoms are ALWAYS worse before a menstrual cycle begins.

I guess my main question is... can you have fibro with a positive rheumatoid factor? Or does this sound more like RA? I know I won't know until I see the rheumy and the neurologist for the neuropathy, but I am losing my mind a little bit. The pain is so bad at night.

A little bit about me: I'm 30, relatively inactive (although working on that) and I am overweight, but am losing weight. I've lost 55 pounds so far with weight watchers and have recently been cutting carbs and not eating gluten and nightshades.

Edit: I also want to state that my stress levels are through the roof lately as I am moving in a month and I really don't want to. I also used to be a binge eater and would eat my feelings (deep rooted childhood issues) and I have found that my anxiety is worse now that I am dealing with a few buried traumas and no longer just covering them up with food. Not sure if my emotional stress is manifesting itself into worsened physical symptoms.

Any advice would be so appreciated.
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Old 06-06-2016, 03:39 PM   #2
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Your RA factor appears to be high. I don't know if there are various RA factor tests, but my MD checked mine in 2014 labs and it was 9.9 and the range was 0 to 13.9.

My challenge is OA and a hip replacement mess in 2010 and I was told I had the FM "stuff" in 1999, but I always questioned it. I was working for 10 yrs to get my thyroid supported and over years have been told by many on health groups, that this FM dx is so much connected to HypoT. Tests for Fibro issues as far as I know are tender points and so so many walking on this earth have tender points. I finally got my thyroid supported in 2002 at about age 63, but had been working on that since I was in my early 50's...

I take a lot of supps and have bodywide pain but also deal with bodywide OA....so I don't know. Magnesium is important, getting adrenals supported, hormones supported, so much to consider with this FM issue. I think so many MD's just plunk that dx on people as they don't know what to do. We have to do so much of our own research and healing.

RA is another factor and I know my neighbor now deals with it for 2 yrs and she's in her late 60's...but it can hit people at any age.

Cut out sugars/carbs for all health issues anyway. RA for sure. OA too.
OA onset at 18, now 79. Fibro onset at 61, Hip Replacement "mess" 72 (nerve damage, IT band damage, shorter leg). Otherwise, pretty good health.

Most important supplement: grape seed extract
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Old 06-06-2016, 03:53 PM   #3
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The RA factor test is not hugely accurate:

Tests for Diagnosing Arthritis - Arthritis Center - EverydayHealth.com

So the doctors take many things into account make a diagnosis.

I'd have the test redone, because labs today do make many mistakes too.
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei


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Old 06-07-2016, 10:08 AM   #4
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Like mrsD stated, rheumatoid factor is not accurate and is really not as specific for rheumatoid arthritis. The Anti-CCP test is more specific and is usually ordered in conjunction with or as a follow up to the RF test. Mine were both negative.

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fibro, joint, neuropathy, pain, time

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